Patient information materials in oncology: Are they needed and do they work?

Clinical Oncology

Volumn 11, Issue 4, 1999, Pages 225-231

  Thomas, R ^a   Thornton, H ^b   MacKay, J ^a  

^a ADDENBROOKE S HOSPITAL   (United Kingdom)

^b Consumers' Advsy Grp Clin Trails ^*  (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ANXIETY; AUDIOVISUAL EQUIPMENT; CANCER; CANCER THERAPY; HUMAN; INTERNET; MEDICAL DECISION MAKING; ONCOLOGY; PATIENT EDUCATION; PATIENT INFORMATION; PATIENT SATISFACTION; PRIORITY JOURNAL; REVIEW; VIDEOTAPE;

EID: 0032836139     PISSN: 09366555     EISSN: None     Source Type: Journal    
DOI: 10.1053/clon.1999.9054     Document Type: Review

References (76)

1. Lerman C, Daly M, Walsh W P. Communication between patients with breast cancer and health care providers. Determinants and implications. Cancer. 72:1993;2612-2620.
2. Meredith C, Symonds P, Webster L. Information needs of cancer patients in the west of Scotland: crosssectional survey of patients' views. BMJ. 313:1996;724-726.
3. Thomas R, Brown C, Dalton L. Anxiety and depression - effect on patients' preferences for information following a diagnosis of cancer. Ann Oncol. 9:1998;141.
4. What seems to be the matter: communication between hospitals and patients. 1993;HMSO: London.
5. Ford S. Can oncologists detect distress in their outpatients and how satisfied are they with their performance during bad news consultation? Breast Cancer J. 70:1994;767-770.
6. Patient-centred cancer services? What patients say. 1996;National Cancer Alliance.
7. Mosconi P, Meyerowitz B E, Liberati M C. Disclosure of breast cancer diagnosis: patient and physician reports. GIVIO (Interdisciplinary Group for Cancer Care Evaluation. Ann Oncol. 2:1991;273-280.
8. Br J Cancer. 54:1986;319-326.
9. Thomas R, Stockton D, Akass K. Patients' preferences for video directed information. Effects of age, sex and ethnic group. Eur J Cancer Care. 3:1999;81-86.
10. Ingelfinger F. Arrogance. N Engl J Med. 303:1980;1507-1511.
11. Fallowfield L, Lewis S, Ford S. No news is not good news: information preferences of patients with cancer. Psycho Oncol. 4:1995;197-202.
12. Fallowfield L. Giving sad and bad news. Lancet. 341:1993;476-478.
13. Lloyd A, Haynes P, London N. Patients' ability to recall risk associated with treatment options. Lancet. 353:1999;645.
14. Coulter A. Partnerships with patients: the pros and cons of shared clinical decision-making. J Health Serv Res Policy. 2:1997;112-121.
15. Thornton H. Breast cancer trials: a patient's viewpoint. Lancet. 339:1992;44-45.
16. Neuling S J, Winefield H R. Social support and recovery after surgery for breast cancer: frequency and correlates of social behaviour by family friends and surgeons. Soc Sci Med. 27:1988;385-392.
17. Rainey L C. Effects of preparatory patient education for radiation oncology patients. Cancer. 56:1985;1056-1061.
18. Dodd M J. Efficacy of proactive information on self-care in radiation therapy patients. Heart Lung. 16:1987;538-544.
19. Fallowfield L J, Hall A, Maguire P. Psychological effects of being offered choice of surgery for breast cancer. BMJ. 309:1994;448.
20. Elsass B, Junge J, Lykke J. Psychological effect of detailed preanaesthetic information. Acta Anaesthesiol Scand. 31:1987;579-583.
21. Kulik J A, Mahler H. Effects of preoperative roommate assignment on preoperative anxiety and recovery from coronary-bypass surgery. Health Psychol. 6:1987;525-543.
22. Shingler G, Bulusu R, Thomas R. Where do patients seek additional information after a diagnosis of cancer? A multicentre survey. Eur J Cancer. 33:1996;1426.
23. Coulter A, Entwistle V, Gilbert D. Sharing decisions with patients: is the information good enough? BMJ. 318:1999;318-322.
24. Report of the Health Service Ombudsman. 1995;HMSO, London:
25. Black N. Medical litigation and the quality of care. Lancet. 335:1990;35-37.
26. McHugh P, Lewis S, Ford S. The efficacy of audiotapes in promoting psychological well-being in cancer patients: a randomised controlled trial. Br J Cancer. 71:1995;388-392.
27. Eardley A. Patients' worries about radiotherapy: evaluation of a preparatory booklet. Psychol Health. 2:1988;79-89.
28. Reynolds P M, Sanson-Fisher R W, Poole A D. Cancer and communication: information-giving in an oncology clinic. BMJ. 282:1981;1449-1451.
29. .Thomas, R, Daly, M, Dalton, L, et al. Preparatory information on video significantly improves treatment associated anxiety, depression and satisfaction - a multicentre. 1999 In press.
30. Deustch G. Improving communication with oncology patients: taping the consultation. Clin Oncol. 4:1992;46-47.
31. Hogbin B, Fallowfield L J. Getting it taped: the bad news consultation with cancer patients. Br J Hosp Med. 41:1989;330.
32. .Kroll, L, Barnes, J, Jones, A, et al. Cancer in parents: telling children. BMJ1998;316:880.
33. Rosenheim R, Reicher R. Informing children about a parent's terminal illness. J Child Psychiatry. 26:1985;995-998.
34. Welch A S, Wandsworth M E, Compas B E. Adjustment of children and adolescents to parental cancer. Cancer. 77:1996;1409-1418.
35. Bonn D, Fallowfield L. Blending psychology with science. Lancet. 353:1999;906.
36. Training and consultancy. 1999;HMSO: London.
37. Fallowfield L, Lipkin M, Hall A. Teaching senior oncologists communication skills: results. J Clin Oncol. 16:1998;1961-1968.
38. Maher E J, Adewuyi-Dalton R, Walker G. Communication in cancer. Cancer Top. 10:1998;6-8.
39. Meryn S. Improving doctor-patient communication. BMJ. 316:1998;19223.
40. Coulter A. Evidence based patient information. BMJ. 317:1998;225-226.
41. A policy framework for commissioning cancer services. 1995;Department of Health and Welsh Office, HMSO: London
42. Adult patient consent and information. 1995;Royal College of Radiologists, London:
43. .General Medical Council. Duties of a doctor. London: GMC, 1995.
44. Venn M J, Darling E, Dickens C. The experience and impact of contacting a cancer information service. Eur J Cancer Care. 5:1996;38-42.
45. Entwistle V A, Watt I S, Davis H. Developing information materials to present the findings of technology assessments to consumers. Int J Technol Assess Health Care. 8:1996;425-437.
46. Kerrigan D D, Thevasagayam R S, Woods T O. Who's afraid of informed consent? BMJ. 306:1993;298-300.
47. Marteau T, Walker P, Kidd J. Reducing anxiety in women referred for colposcopy using an information booklet. Br J Health Psychol. 1:1996;181-189.
48. Smith H, Gooding S, Brown R. Evaluation of readability and accuracy of information leaflets in general practice for patients with asthma. BMJ. 317:1998;264-265.
49. DISCERN: an instrument for judging the quality of written consumer health information on treatment choices. 1997;Radcliffe Medical Press, Oxford:
50. Duman M. Promoting patients' choice - some do's for producing quality evidenced based patient choice information. 1998;King's Fund, London:
51. Duman M, Farrell C. The practicalities of producing patient information: the POPPI guide. 1999.
52. Kaminski E, DeZeeuz N, Thomas R. Patients' attitudes towards an individualised filofax information system. Eur J Cancer. 33:1997;1401.
53. DeZueew N, Balusu R, Thomas R. Cancer patient education and information; development of a new structured information package. Eur J Cancer. 33:1997;1401.
54. Carey S, Low S, Hansbro J. Adult literacy in Britain. 1997;Office for National Statistics, London:
55. Williams M V, Parker R M, Baker D W. Inadequate functional health literacy among patients at two public hospitals. JAMA. 274:1995;1677-1682.
56. Estey A, Musseau A, Keehn L. Comprehension levels of patient's reading health information. Patient Educ Counsel. 30:1996;205-208.
57. Doak C C, Doak L G, Root J. Teaching patients with low literacy skills. 2nd Edition. 1996;JM Lippincott, Philadelphia:
58. Weiss B D, Coyne C. Communication with patients who cannot read. N Engl J Med. 4:1997;272-274.
59. Moldofsky H, Broder I, Davies G. Videotape education programme for people with cancer: more knowledge in the clinic. Canadian Medical Association Journal. 120:1979;669-672.
60. Done M L, Lee A. The use of video to convey preanesthetic information to patients undergoing ambulatory surgery. Anesth Analg. 87:1998;531-536.
61. Chapman G B, Elstein A S, Huches K K. Effects of patient education on decisions about breast cancer treatments: a preliminary report. Med Decis Making. 15:1995;231-239.
62. Street R L, Voigt B, Geyer C. Increasing patient involvement in choosing treatment for early breast cancer. Cancer. 76:1995;2275-2285.
63. Agre P KR, Krauss B J. A randomised trial using videotape to present consent information for colonoscopy. Gastrointest Endosc. 40:1994;271-276.
64. Uzark K, Kloss D, Davis W. Use of videotape in the preparation of children for cardiac catheterization. Pediatr Cardiol. 3:1982;287-291.
65. Herrmann K S, Kreuzer H. A randomised prospective study on anxiety reduction by preparatory disclosure with and without video film show about a planned heart catheterization. Eur Heart J. 10:1989;753-757.
66. Bernstein S, Skarupski K, Grayson C. A randomised controlled trial of information-giving to patients referred for coronary angiography: effects on outcomes of care. Health Expectations. 1:1998;50-61.
67. Adler D N, Seibring A R, Bhaskar P. Information seeking and interactive video disc preparation for third molar extraction. J Oral Maxillofac Surg. 50:1992;27-32.
68. Cull A, Miller H, Porterfield T. The use of videotaped information in cancer genetic counselling: a randomised evaluation study. Br J Cancer. 77:1998;830-837.
69. Ferguson T. Consumer health informatics. Health Forum J. 12:1995;28-33.
70. Vaitones V. Protocol 'shopping' on the Internet. Cancer Pract. 3:1995;274-278.
71. Wyatt J. Measuring quality and impact of the world wide web. BMJ. 314:1997;1879-1881.
72. Bennett-Clark J. Where health information is byte-size: online advice can help you manage health costs. Kiplinger's Personal Finance. 1996;96-97.
73. Silberg W, Lundberg G, Musacchio R. Assessing, controlling and assuring the quality of medical information on the Internet. JAMA. 277:1997;1244-1245.
74. Jadad A, Gagliardi A. Rating health information on the Internet: navigating to knowledge or to Babel? JAMA. 279:1998;611-614.
75. Impicciatore P, Pandolfini C, Cesella N. Reliability of health information for the public on the world wide web: systematic survey of advice on managing fever in children at home. BMJ. 314:1997;1875-1881.
76. Kim P, Eng T, Deering M. Publishing criteria for evaluating health related websites: review. BMJ. 318:1999;647-649.