Gaining and sustaining minority participation in longitudinal research projects

Alzheimer Disease and Associated Disorders

Volumn 13, Issue SUPPL. 1, 1999, Pages

  Gauthier, Mary Anne ^a   Clarke, Willie Pearl ^a  

^a BOSTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

African Americans; Alzheimler disease; Longitudinal research; Participant recruitment; Race

Indexed keywords

AGED; ALZHEIMER DISEASE; ELDERLY CARE; ETHNIC GROUP; HEALTH CARE NEED; HEALTH CARE PERSONNEL; HEALTH CENTER; HUMAN; HUMAN RELATION; LONGITUDINAL STUDY; MEDICAL RESEARCH; NEGRO; PRIORITY JOURNAL; PUBLIC HEALTH; SHORT SURVEY; TELEPHONE; UNITED STATES; URBAN AREA;

EID: 0032825531     PISSN: 08930341     EISSN: None     Source Type: Journal    
DOI: 10.1097/00002093-199904001-00008     Document Type: Short Survey

References (17)

1. Auchus A. Dementia in urban black outpatients: initial experience at the Emory Satellite Clinics. Gerontologist 1997;37:25-9.
2. Burrus BB, Liburd LC, Burroughs A J. Maximizing participation by black Americans in population-based diabetes research: the project DIRECT pilot experience. Community Health 1998;23:15-27.
3. Cohen C, Carlin L. Racial difference in clinical and social variables among patients evaluated in a dementia assessment center. J Natl Med Assoc 1993;85:379-84.
4. Coleman EA, Tyll L, LaCroix AZ, et al. Recruiting African-American older adults for a community-based health promotion intervention: which strategies are effective? Am J Prev Med 1997;13(suppl 6): 51-6.
5. Evans DA, Funkenstein HH. Albert MS, et al. Prevalence of Alzheimer's disease in a community population of older persons: higher than previously reported. JAMA 1989;262:2551-6.
6. Gorelick PB, Freels S, Harris Y, Dollear T, Billingsley M, Brown N. Epidemiology of vascular and Alzheimer's dementia among African Americans in Chicago, Ill. Baseline frequency and comparison of risk factors. Neurology 1994;44:1391-6.
7. Gorelick PB, Richardson D, Hudson E, et al. Establishing a community network for recruitment of African Americans into a clinical trial. The African American antiplatelet stroke prevention study experience. J Natl Med Assoc 1996;88:701-4.
8. Hazuda HP. Minority issues in outcomes research. Alzheimer Dis Assoc Disord 1997;11:156-61.
9. Heyman A, Fillenbaum G, Prosnitz B, Raiford K, Burchett B, Clark C. Estimated prevalence of dementia among elderly black and white community residents. Arch Neurol 1991;48:595-8.
10. National Institutes of Health. NIH guidelines on the inclusion of women and minorities as subjects in clinical research, 14508. Federal Regulation vol. 59, no. 59. NIH Publication No. 94-5435. Bethesda, MD: National Institutes of Health, 1994.
11. Robinson SB, Ashley M, Haynes MA. Attitude of African American regarding prostate cancer clinical trials. J Community Health 1996;21: 77-87.
12. Salyer J, Geddes N, Smith CS, Mark BA. Commitment and communication: keys to minimizing attrition in multisite longitudinal organizational studies. Nurs Res 1998;47:123-5.
13. Schoenburg BS, Anderson DW, Haerer AF. Severe dementia: prevalence and clinical features in a biracial US population. Arch Neurol 1985; 42:740-3.
14. Shavers-Hornaday VL, Lynch CF, Burmeister LF, Torner JC. Why are African Americans under-represented in medical research studies? Impediments to participation. Ethnic Health 1997;2:31-45.
15. U.S. Bureau of the Census. Current population reports: sixty-five plus in America. U.S. Bureau of the Census Series P23-178. Washington, DC: U.S. Government Printing Office, 1992.
16. U.S. Department of Health and Human Services. Healthy people 2000: national promotion objectives. Washington, DC: U.S. Government Printing Office, 1990.
17. Whelton PK, Lee JY, Kusek JW, et al. Recruitment experience in the African American Study of Kidney Disease and Hypertension (AASK.) Pilot Study. Control Clin Trials 1996;17(4 suppl):17S-33S.