Nutritional support for children with epidermolysis bullosa

Journal of Human Nutrition and Dietetics

Volumn 11, Issue 2, 1998, Pages 163-173

  Haynes, L ^a,b  

^a GREAT ORMOND STREET HOSPITAL   (United Kingdom)

^b UNIVERSITY COLLEGE LONDON   (United Kingdom)

Author keywords

Children; Constipation; Epidermolysis bullosa; Growth; Nutrition

Indexed keywords

ANUS DISEASE; ARTICLE; BLISTER; CHILD; CHILD GROWTH; CONSTIPATION; DIETARY INTAKE; EPIDERMOLYSIS BULLOSA; ESOPHAGUS DISEASE; GASTROESOPHAGEAL REFLUX; GASTROSTOMY; HUMAN; MORBIDITY; MORTALITY; MOUTH DISEASE; NUTRITIONAL SUPPORT; PROGNOSIS; QUALITY OF LIFE; SKIN INFECTION;

EID: 0032434626     PISSN: 09523871     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-277X.1998.00090.x     Document Type: Article

References (20)

1. Allman, S., Haynes, L., McKinnon, P. & Atherton, D.J. (1992) Nutrition in dystrophic epidermolysis bullosa. Pediatr. Dermatol. 9 (3), 231-238.
2. Atherton, D.J. & Denyer, J. (1997) Epidermolysis Bullosa. An Outline for Professionals. Berkshire, UK: Dystrophic Epidermolysis Bullosa Research Association.
3. Birge, K. (1995) Nutrition management of patients with epidermolysis bullosa. J. Am. Diet. Assoc. 95, 575-579.
4. Clayden, G. (1990) Dysphagia and constipation in epidermolysis bullosa. In Epidermolysis Bullosa: A Comprehensive Review of Classification, Management and Laboratory Studies. eds G.C. Priestley, M.J. Tidman, J.B. Weiss, R.A.J. Eady, pp. 67-71. Berkshire, UK: Dystrophic Epidermolysis Bullosa Research Association.
5. Department of Health (DoH) (1991) Dietary Reference Values for Food Energy and Nutrients for the United Kingdom. Report on health and social subjects 41. London: HMSO.
6. Dunnill, M.G.S. & Eady, R.A.J. (1995) The management of dystrophic epidermolysis bullosa. Clin. Exp. Dermatol. 20, 179-188.
7. Ergun, G. & Schaefer, R.A. (1992) Gastrointestinal aspects of epidermolysis bullosa. In Epidermolysis Bullosa. Basic and Clinical Aspects. eds A.N. Lin & D.M. Carter, pp. 169-184. NewYork: Springer-Verlag.
8. Freeman, J.V., Cole, T.J., Chinn, S., Jones, P.R.M., White, E.M. & Preece, M.A. (1995) Cross sectional stature and weight reference curves for the UK. Arch. Dis. Child. 73, 17-24.
9. Giardina, P.J. & Lin, A.N. (1992) Hematologic problems in epidermolysis bullosa. In Epidermolysis Bullosa. Basic and Clinical Aspects. eds A.N. Lin & D.M. Carter, pp. 191-197. New York: Springer-Verlag.
10. Harmel, R.P. (1986) Esophageal replacement in two siblings with epidermolysis bullosa. J. Pediatr. Surg. 21, 175-176.
11. Haynes, L. (1994) Epidermolysis bullosa. In Clinical Paediatric Dietetics. eds V. Shaw & M. Lawson, pp. 295-303, 1st edn. Oxford: Blackwell Scientific Publications.
12. Haynes, L., Atherton, D.J., Ade-Ajayi, N., Wheeler, R. & Kiely, E.M. (1996) Gastrostomy and growth in dystrophic epidermolysis bullosa. Br. J. Dermatol. 134, 872-879.
13. Haynes, L., Atherton, D.J. & Clayden, G. (1997) Constipation in epidermolysis bullosa: successful treatment with a liquid fiber-containing formula. Pediatr. Dermatol. 14(5), 393-396.
14. Kern, I.B., Eisenberg, M. & Willis, S. (1989) Management of eosophageal stenosis in epidermolysis bullosa dystrophica. Arch. Dis. Child. 64, 551-556.
15. Lechner-Gruskay, D., Honig, P.J., Pereira, G. & McKinney, S. (1988) Nutritional and metabolic profile of children with epidermolysis bullosa. Pediatr. Dermatol. 5, 22-27.
16. McBurney, M.I. & Thompson, L.U. (1991) Dietary fiber and total enteral nutrition: Fermentative assessment of five fiber supplements. J. Parenter. Ent. Nutr. 15, 267-270.
17. Melville, C., Atherton, D., Burch, M., Cohn, A. & Sullivan, I. (1996) Fatal cardiomyopathy in dystrophic epidermolysis bullosa. Br. J. Dermatol. 135, 603-606.
18. Moss, C. (1995) Hereditary bullous disorders. Curr. Paediatr. 5, 252-257.
19. Riches, P.G. & Sheldon, J. (1994) Proteins. In Clinical Biochemistry in the Sick Child. eds B. Clayton & J. Round, pp. 469-170, 2nd edn. Oxford: Blackwell Scientific Publications.
20. Stunkard, A.J. & Waxman, M. (1981) Accuracy of self-reports of food intake. J. Am. Diet. Assoc. 79, 547-551.