Communication about parental illness with children who have learning disabilities and behavioural problems: Three case studies

Child: Care, Health and Development

Volumn 24, Issue 6, 1998, Pages 441-456

  Barnes, J ^a   Kroll, L ^a   Lee, J ^a   Jones, A ^a   Stein, A ^a  

^a ROYAL FREE AND UNIVERSITY COLLEGE MEDICAL SCHOOL   (United Kingdom)

Author keywords

Children; Communication; Coping; Disability; Parental illness

Indexed keywords

ADOLESCENT; ANXIETY; ARTICLE; AUTISM; BEHAVIOR DISORDER; BREAST TUMOR; CASE REPORT; CHILD; CHILD PARENT RELATION; CHILD WELFARE; DOWN SYNDROME; FAMILY HEALTH; FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; LEARNING DISORDER; MENTAL STRESS; MIDDLE AGED; MOTHER; PSYCHOLOGICAL ASPECT;

ADOLESCENT; ANXIETY; AUTISTIC DISORDER; BREAST NEOPLASMS; CHILD; CHILD BEHAVIOR DISORDERS; CHILD WELFARE; COMMUNICATION; DOWN SYNDROME; FAMILY HEALTH; FEMALE; HUMANS; LEARNING DISORDERS; MIDDLE AGED; MOTHERS; PARENT-CHILD RELATIONS; STRESS, PSYCHOLOGICAL;

EID: 0032199349     PISSN: 03051862     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2214.1998.00081.x     Document Type: Article

References (31)

1. Barnett, W. S. & Boyce, G. C. (1995) Effects of children with Down syndrome on parents' activities. American Journal of Mental Retardation, 100, 115-127.
2. Beresford, B. A. (1994) Resources and strategies: how parents cope with the care of a disabled child. Journal of Child Psychology and Psychiatry, 35, 171-209.
3. Bloom, J. R. & Kessler, L. (1994) Risk and timing of counseling and support interventions for younger women with breast cancer. Journal of the National Cancer Institute Monographs, 16, 199-206.
4. Cancer Research Campaign (1996) Fact Sheet 6. London: The Cancer Research Campaign.
5. Carver, C. S., Scheier, M. F. & Weintraub, J. K. (1989) Assessing coping strategies: a theoretically based approach. Journal of Personality and Social Psychology, 56, 267-283.
6. Cohler, B. J., Picken, S. A. & Cook, J. A. (1991) The psychiatric patient grows older: issues in family care. In E. Light & B.D. Lebowitz (Eds.) The elderly with chronic mental illness (pp. 82-110). New York: Springer.
7. Cooper, E. T. (1984) a pilot study on the effects of the diagnosis of lung cancer on family relationships. Cancer Nursing, 7, 301-308.
8. Dyson, L. L. (1993) Response to the presence of a child with disabilities: parental stress and family functioning over time. American Journal of Mental Retardation, 98, 207-218.
9. Eiser, C. (1994) Making sense of chronic disease. Journal of Child Psychology and Psychiatry., 35, 1373-1390.
10. Fallowfield, L. J., Hall, A., Maguire, P., Baum, M. & ÁHern, R. P. (1994) Psychological effects of being offered choice of surgery for breast cancer. British Medical Journal, 309, 448.
11. Folkman, S. (1984) Personal control and stress and coping processes: a theoretical analysis. Journal of Personality and Social Psychology, 46, 839-852.
12. Folkman, S. & Lazarus, R. S. (1980) An analysis of coping in a middle-aged community sample. Journal of Health and Social Behavior, 21, 219-239.
13. Gallimore, R., Weisner, T. S., Bernheimer, L. P., Guthrie, D. & Nihira, K. (1993) Family responses to young children with developmental delays: accommodation activity in ecological and cultural context. American Journal of Mental Retardation, 98, 185-206.
14. Harris, V. S. & McHale, S. M. (1989) Family life problems, daily caretaking activities, and the psychological well-being of mothers of mentally retarded children, American Journal of Mental Retardation, 94, 231-9.
15. Kane, B. (1979) Children's concepts of death. Journal of Genetic Psychology, 134, 141-153.
16. Krauss, M. W. & Seltzer, M. M. (1993) Current well-being and future plans of older caregiving mothers. Irish Journal of Psychology, 14, 47-64.
17. Kroll, L., Barnes, J., Jones, A. & Stein, A. (1998) Cancer in parents: telling children. British Medical Journal, 316, 880.
18. Lansdown, R. & Benjamin, G. (1985) The development of the concept of death in children aged 5-9 years. Child: Care, Health and Development, 11, 13-20.
19. Lazarus, R. S. & Folkman, S. (1984) Stress, appraisal, and coping. New York: Springer.
20. Lewis, R., Ellison, E. & Woods, J. (1985) The impact of breast cancer on the family. Seminars in Oncological Nursing, 1, 206-213.
21. Lichtman, R. R., Taylor, S. E., Wood, J. V. et al. (1984) Relations with children after breast cancer. The mother-daughter relationship at risk. Journal of Psychosocial Oncology, 2, 1-19.
22. Maguire, P. (1994) ABC of Breast Diseases - Psychological Aspects. British Medical Journal, 309, 1649-1652.
23. Maxwell, V. (1993) Look through the parents' eyes. Helping parents of children with a learning disability. Professional Nurse, 9, 200-202.
24. Mengel, M. H., Marcus, D. B. & Dunkle, R. E. (1996) "What will happen to my child when I'm gone?" A support and education group for aging parents as caregivers. The Gerontologist, 36, 816-820.
25. Offord, D. R., Boyle, M. H. & Racine, Y. A. (1989) Ontario child health study: correlates of disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 28, 856-860.
26. Oswin, M. (1991) Am I allowed to cry? London: Souvenir Press (Educational & Academic) Ltd.
27. Seltzer, M. M., Greenberg, J. S. & Krauss, M. W. (1995) A comparison of coping strategies of aging mothers of adults with mental illness or mental retardation. Psychology and Aging, 10, 64-75.
28. Sloper, P. & Turner; S. (1993) Risk and resistance factors in the adaptation of parents of children with severe disability. Journal of Child Psychology and Psychiatry, 34, 167-188.
29. Stallard, P. & Dickinson, F. (1994) Groups for parents of pre-school children with severe disabilities. Child: Care, Health and Development, 20, 197-207.
30. Tunali, B. & Power, T. G. (1993) Creating satisfaction: a psychological perspective on stress and coping in families of handicapped children. Journal of Child Psychology and Psychiatry, 34, 945-957.
31. Woolley, H., Stein, A., Forrest, G. C. & Baum, J. D. (1989) Imparting the diagnosis of life-threatening illness in children. British Medical Journal, 298, 1623-1626.