Families coping with cancer during childhood and adolescence. Practicability of standardized self-assessment methods: Results of a pilot study;Die familiäre Bewältigung einer krebserkrankung im kindes- und jugendalter

Praxis der Kinderpsychologie und Kinderpsychiatrie

Volumn 47, Issue 8, 1998, Pages 552-573

  Goldbeck, Lutz ^a  

^a UNIVERSITY HOSPITAL ULM   (Germany)

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ARTICLE; CHILD; DEFENSE MECHANISM; FEMALE; HUMAN; LEUKEMIA; MALE; NEOPLASM; PARENT; PATIENT ATTITUDE; PERSONALITY TEST; PILOT STUDY; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; REPRODUCIBILITY; STATISTICS;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; CHILD; DEFENSE MECHANISMS; FEMALE; HUMANS; LEUKEMIA; MALE; NEOPLASMS; PARENTS; PERSONALITY INVENTORY; PILOT PROJECTS; PSYCHOMETRICS; REPRODUCIBILITY OF RESULTS; SICK ROLE;

EID: 0032177751     PISSN: 00327034     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (69)

1. AUSTIN, J.K./PATTERSON, J.M./HUBERTY, T.J. (1991): Development of the Coping Health Inventory for Children. Journal of Pediatric Nursing 6, 166-174.
2. BARBARIN, O.A./HUGHES, D./CHESLER, M.A. (1985): Stress, coping and marital functioning among, parents of children with cancer. Journal of Marriage and the Family 47, 473-480.
3. BASKIN, CH./FOREHAND, R./SAYLOR, C. (1985): Predictors of psychological adjustment in mothers of children with cancer. J. Psychosoc. One. 3, 43-54.
4. BIRENBAUM, L.K. (1990): Family coping with childhood cancer. Hospice Journal 6, 17-33.
5. BLOTCKY, A.D./RACZYNSKI, J.M./GURwITCH, R./SMITH, K. (1985): Family Influences on Hopelessness Among Children Early in the Cancer Experience. J. Pediatr. Psychol. 10 (4), 479-493.
6. BRADLEY, I.A./BURISH, T.G. (1983): Coping with Chronic Disease: Current Status and Future Directions. In: BURISH, T.G./AND BRADLEY, L.A. (eds.): Coping with Chron. Disease. New York: Research and Applications Academic Press, S. 475-482.
7. BRÄHLER, E. (1992): Gießener Beschwerdebogen für Kinder und Jugendliche (GBB-KJ); Handanweisung. Bern: Huber.
8. BRETT, K.M./DAVIES, E.M. (1988): "What does it mean?" Sibling and parental appraisals of childhood leukemia. Cancer Nursing 11 (6), 329-38.
9. BROWN, J.M./O'KEEFE, J.O./SANDERS, ST.H./BAKER, B. (1986): Developmental changes in childrens cognition to stressful and painful situations. J. Pediatr. Psychol. 11 (3), 343-357.
10. BROWN, R.T./KASLOW, N.J./MADAN-SWAIN, A./DOEPKE, K.J./SEXSON, S.B./HILL, L.J. (1993): Parental psychopathology and children's adjustment to leukemia. Journal of the American Academy of Child and Adolescent Psychiatry (3) 554-61.
11. BULL, B.A./DROTAR, D. (1991): Coping with Cancer in Remission: Stressors and Strategies Reported by Children and Adolescents. J. Pediatr. Psychol. 16 (6), 767-782.
12. BULLINGER, M. (1989): Forschungsinstrumente zur Erfassung der Lebensqualität bei Krebs - ein Überblick. In: VERRES, R./HASENBRING, M. (Hg.): Psychosoziale Onkologie. Berlin: Springer, S. 45-57.
13. BULLINGER, M./RAVENS-SIEBERER, U. (1995): Stand der Forschung zur gesundheitsbezogenen Lebensqualität von Kindern. Prävention und Rehabilitation 7 (3), 106-121.
14. BÜRGIN, D. (1981): Das Kind, die lebensbedrohende Krankheit und der Tod. Bern: Huber.
15. BÜRGIN, D. (1990): Kranheitsverarbeitung (bei Leukämie) in der Früh-Adoleszenz. In: ZIEGLER, G./JÄGER, R.S./ SCHÜLE, J. (Hg): Krankheitsverarbeitung bei Tumorpatienten. Stuttgart: Enke, S. 149-174.
16. COMPAS, B.E. (1987): Coping With Stress During Childhood and Adolescence. Psychological Bulletin 101 (3), 393-403.
17. COMPAS, B.E./WORSHAM, N.L./EY, S. (1992): Conceptual and Developmental Issues in Children's Coping with Stress. In: LA GRECA, A.M./SIEGEL, L.J./WALLANDER, J.L./WALKER, C.E. (eds.): Stress and Coping in Child Health. New York: Guilford Press, S. 7-24.
18. DAHLQUIST, L.M./CZYZEWSKI, D.I./COPELAND, K.G./JONES, C.J./TAUB, E./VAUGHAN, J.K. (1993): Parents of children newly diagnosed with cancer: anxiety, coping and marital distress. J. Pediatr. Psychol. 18, 365-376.
19. DOLGIN, M.J. (1989): Behavioral effects of chemotherapy in children with cancer. J. Psychosoc. One. 6, 99-107.
20. FIFE, B./NORTON, J./GROORN, G. (1987): The family's adaptation to childhood leukemia. Soc. Sci. Med, 24, 159-168.
21. GOLDBECK, L. (1994): CHIP Coping Health Inventory for Parents. Deutsche Version (unveröffentl.).
22. GOLDBECK, L. (1994): ClHC Coping Health Inventory for Children. Deutsche Version (unveröffentl.)
23. HEIM, E. (1988): Coping und Adaptrvität: Gibt es geeignetes und ungeeignetes Coping? Psychother. med. Psychol. 3 8, 8-18.
24. KAZAK, A.E. (1992): The Social Context of Coping with Childhood Illness: Family Systems and Social Support. In: LA GRECA, A.M./SIEGEL, L.J./WALLANDER, J.L./WALKER, C.E. (eds.): Stress and Coping in Child Health. New York: Guilford Press, S, 262-278.
25. KAZAK, A.E. (1993): Editorial: Psychological Research in Pediatric Oncology. J. Pediatr. Psychol. 18 (3), 313-318.
26. KELLER, C./NICOLLS, R. (1990): Coping Strategies of Chronically III Adolescents and their Parents. Issues in Comprehensive Pediatric Nursing 13, 73-80.
27. KOOCHER, G.P./O'MALLEY, J.E. (1981): The Damocles Syndrome: Psychological consequences of surviving childhood cancer. New York.
28. KUPST, M.J. (1992): Long-Term Family Coping with Acute Lymphoblastic Leukemia in Childhood. In: LA GRECA, A.M./SIEGEL, L.J./WALLANDER, J.L./WALKER,. C.E. (eds.): Stress and Coping in Child Health. New York: Guilford Press, S. 241-261.
29. KUPST, M.J./NATTA, M.B./RICHARDSON, C.C./SCHULMAN, J.L./LAVIGNE, J.V./DAS, L. (1995): Family coping with pediatric leukemia: Ten years after treatment. J. Pediatr. Psychol. 20, 601-617.
30. KUPST, M.J./SCHULMAN, L.J. (1988): Long-term coping with pediatric leukemia: a six-year follow-up study. J. Pediatr. Psychol. 13, 7-22.
31. KUPST, M.J./SCHULMAN, J.L./MAURER, H./MORGAN, E./HONIG, G./FOCHTMAN, D. (1982): Family Coping with Childhood Leukemia: One Year after Diagnosis. J. Pediatr. Psychol. 7 (2), 157-174.
32. KUPST, M.J./SCHULMAN, J.L./MAURER, H./MORGAN, E./HONIG, G./FOCHTMAN, D. (1984): Coping with Pediatric Leukemia: A Two-Year Follow-up. J. Pediatr. Psychol. 9 (2), 149-163.
33. KUPST, M.J./SCHULMAN, J.L/MAURER, H./HONIG, G./FOCHTMAN, D. (1983): Psychosocial Aspects of Pediatric Leukemia: From Diagnosis Through The First Six Months of Treatment. Medical and Pediatric Oncology 11, 269-278.
34. KUSCH, M./LABOVIE, H./BODE, U. (1994): Unterschiede im aktuellen Befinden zu Beginn der Krebstherapie und mögliche Folgen: Eine Pilotstudie in der pädiatrischen Onkologie. Prax Kinderpsychol. Kinderpsychiat. 43 (3), 98-106.
35. LAZARUS, R.S. (1979): Stress and Coping as Factors in Health and Illness. In: COHEN, J./CULLEN, J.W./MARTIN, L.R. (eds.): Psychosocial Aspects of Cancer. New York: Raven Press, S. 163-198
36. LAZARUS, R.S. (1981): Streß und Streßbewältigung - ein Paradigma. In: FILIPP, S.-H. (Hg.): Kritische Lebensereignisse. München: Urban, S. 198-232.
37. MAGNI, G./SILVESTRO, A./TAMIELLO, M./ZANESCO, L/CARLI, M. (1988): An integrated approach to the assessment of family adjustment to acute lymphocytic leukemia in children. Acta Psychiatrica Scancinavi 78 (5) 639-42.
38. Martinson, J.M./Cohen, M.H. (1989): Themes from a longitudinal study of family reaction to childhood cancer. J. Psychosoc. Onc. 6, 81-98.
39. MCCUBBIN, H.I./MCCUBBIN, M.A. (1991): Family System Assessment in Health Care. In: MCCUBBIN, H.I./THOMPSON, A.I. (eds.): Inventories for Research and Practice. University of WisconsinMadison, Madison, S. 63-80.
40. MCCUBBIN, H.I./MCCUBBIN, M.H./PATTERSON, J.M./CAUBLE, A.E./WlLSON, LR./WARWICK, W. (1983): CHIP - Coping Health Inventory for Parents - An Assessment for parental coping patterns in the care of a chronically ill child. Journal of Marriage and the Family 45, 359-370.
41. MCCUBBIN, M.A./MCCUBBIN, H.L (1991): Family Stress Theory and Assessment. The Resiliency Model of Adjustment and Adaptation. In: MCCUBBIN, H.I./THOMPSON, A.I. (eds.): Family Assessment Inventories for Research and Practice. University of Wisconsin-Madison, Madison.
42. MULHERN, R.K./CRISCO, J.J./CAMITTA, B.M. (1981): Patterns of communication among pediatric patients with leukemia, parents and physicians: Prognostic disagreements and misunderstandings. J. Pediatr. 99, 480-483.
43. MULHERN, R.K./OCHS, J./ARMSTONG, F.D./HOROWITZ, M.E./FRIDMAN, A.G./COPELAND, D. (1989): Assessment of quality of life among pediatric patients with cancer. J. Consult. Clin. Psychol. 2, 130-138.
44. MUTHNY, F. (1988): Zur klinischen Erfassung von Krankheitsverarbeitung und zur Spezifitätsfrage. Grundsatzüberlegungen und erste Erfahrungen mit einem neuentwickelten Forschungsinstrument. Prax Klin. Verhaltensmed. Rehab. 1, 9-16.
45. MUTHNY, F.A. (1988): Einschätzung der Krankheitsverarbeitung durch Patienten, Ärzte und Personal - Gemeinsamkeiten, Diskrepanzen und ihre mögliche Bedeutung. Zeitschrift fur Klinische Psychologie 17 (4), 319-333.
46. MUTHNY, F.A. (1989): Erfahrungen mit dem Freiburger Fragebogen zur Krankheitsverarbeitung (FKV). In: VERRES, R./HASENBRING, M. (Hg.): Psychosoziale Onkologie. Berlin: Springer, S. 86-101.
47. MUTHNY, F.A. (1989): Freiburger Fragebogen zur Krankheitsverarbeitung (FKV). Weinheim: Beltz.
48. NICHOLS, M.L. (1995): Social support and coping in young adolescents with cancer. Pediatric Nursing 1 (3) 235-40.
49. O'MALLEY, J.E./KOOCHER, D./FOSTER, L/SLAVIN, L. (1979): Psychiatric sequelae of surviving childhood cancer. Am. J. Orthopsychiatr. 49, 608-616.
50. PEARLIN, L.I./SCHOOLER, C. (1978): The Structure of Coping. Journal of Health and Social Behavior 19, 2-21.
51. PETERMANN, F./BODE, U. (1986): Five coping styles in families of children with cancer. Pediatric Hematology and Oncology 3, 299-309.
52. POWERS, G.M./GAUDET L.M./POWERS, S. (1986): Coping Patterns of Parents of chronically ill children. Psychological Reports 59, 519-522.
53. SANGER, M.S (1991): Psychological Actustment Among Pediatric Cancer Patients: A Multidimensional Assessment. Journal of Pediatric Psychology 16 (4), 463-474.
54. SCHRAPPE, M./REITER, A./SUATER, S./LUDWIG, W.-D./WÖRMANN, B./HARBOTT, J./BENDER-GÖTZE, C./DÖRFFEL, W./ DOPFER, R./FREY, E./HAVERS, W./HENZE, G./KÜHL, J./RICHTER, R./RITTER, J./TREUNER, J./ZINTL, F./ODENWAID, E./ WELTE, K./RIEHM, H. (1994): Konzeption und Zwischenergebnis der Therapiestudie ALL-BFM 90 zur Behandlung der akuten lymphoblastischen Leukämie bei Kindern und Jugendlichen: Die Bedeutung des initialen Therapieansprechens in Blut und Knochenmark. Klin. Pädiatr. 206, 208-221.
55. SEIFFGE-KRENKE, I./BOEGER, A./HÜRTER, A./MOORMANN, D./NILLES, D./SUCKOW, A. (1994): Die Bewältigung chronischer Krankheiten im Jugendalter: Individuelle und familiäre Bewältigungsformen. In: SCHÜ ßLER, G./LEIBING, E. (Hg.): Coping. Verlaufs- und Therapiestadien chronischer Krankheit, Göttingen: Hogrefe, S. 75-82.
56. SESTERHENN, H. (1991): Chronische Krankheit im Kindesalter im Kontext der Familie. Heidelberg: Edition Schindle.
57. SMITH, K.E./ACHERSON, J.P./BLOTCKY, A.D./BERKOW, R. (1990): Preferred coping styles of pediatric cancer patients during invasive medical procedures. Journal of Psychosocial Oncology 8, 59-70.
58. SPEECHLEY, K.N./NOH, S. (1992): Surviving Childhood Cancer, Social Support, and Parents' Psychological Adjustment. J. Pediatr. Psychol. 17, 15-31.
59. SPINETTA, J.J./MURPHY, J.L/VIK, P.L./DAY, J./MOTT, M.A. (1989): Long-term adjustment in families of children with cancer. Psychosoc. One. 6, 179-191.
60. SPINETTA, A./WARNER, J.A./SHEPOSH, J.P. (1981): Effective parental coping following a death of a child from cancer. Psychol. 6, 252-263.
61. SPIRITO, A./STARK, L.J./KNAPP, L.G. (1992): The Assessment of Coping in Chronically III Children: Implications for Clinical Practice. In: LA GRECA, A.M./SIEGEL, L.J./WALLANDER, J.L./WALKER, C.E. (eds.): Stress and Coping in Child Health. New York: Guilford Press, S. 327-344.
62. STRAUSS, A./GLASER, B.C. (1975): Chronic llless and the Quality of Life. St. Louis.
63. SUSMAN, E.J./HERTH, S.P./NANNIS, E.D./STROPE, B.E./WOODRUFF, P.J./PIZZO, P.A./LEVINE, A.S. (1982): Conceptions of cancer: The perspectives of child and adolescent patients and their families. J. Pediatr. Psychol. 7, 253-261.
64. TOWNES, B.D./WOLD, D.A./HOLMES, T. (1974): Parental adjustment to childhood leukemia. J. psychosom. Res. 18, 9-14.
65. TYC, V.L./MULHERN, R.K./JAYAWARDENE, D./FAIRCLOUGH D. (1995): Chemotherapy-induced nausea and emesis in pediatric cancer patients: An analysis of coping strategies. Journal of Pain and Symptom Management 10, 338-347.
66. VAN EYS, J. (1991): The Truly Cured Child? Pediatrician 18, 90-95.
67. WEBER, H. (1994): Effektivität von Bewältigung: Kriterien, Methoden, Urteile. In: HEIM, E./PERREZ, M. (Hg.): Krankheitsverarbeitung. Göttingen: Hogrefe, S. 49-62.
68. WIEDEBUSCH, S. (1994): Die Entwicklung des Schmerzbegriffs im Kindesalter. In: PETERMANN, F./WIEDEBUSCH, S./KROLL, TH. (Hg.): Schmerz im Kindesalter. Göttingen: Hogrefe, S. 133-156.
69. WITTROCK, D.A./LARSON, L.S./SANDGREN, A.K. (1994): When a child is diagnosed with cancer: II. Parental coping, psychological adjustment, and relationships with medical personnel. Journal of Psychosocial Oncology 12 (3), 17-32.