Geneticizing Disability: The Human Genome Project and the Commodification of Self

Issues in Law and Medicine

Volumn 14, Issue 2, 1998, Pages 147-163

  Fitzgerald, Jennifer ^a  

^a Queensland Advocacy Incorporated   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; ATTITUDE TO HEALTH; BEHAVIOR GENETICS; BIOETHICS; BIOMEDICAL AND BEHAVIORAL RESEARCH; COMMODIFICATION; DISABLED PERSON; GENETIC DISORDER; GENETIC PRIVACY; GENETIC VARIABILITY; GENETICS AND REPRODUCTION; HEALTH; HEREDITY; HUMAN; HUMAN GENOME PROJECT; MEDICAL GENETICS; PSYCHOLOGICAL ASPECT; SOCIAL JUSTICE; SOCIAL PSYCHOLOGY;

BIOMEDICAL AND BEHAVIORAL RESEARCH; GENETICS AND REPRODUCTION; HUMAN GENOME PROJECT;

ATTITUDE TO HEALTH; BIOETHICS; COMMODIFICATION; DISABLED PERSONS; EUGENICS; GENETIC DETERMINISM; GENETIC DISEASES, INBORN; GENETIC PRIVACY; GENETICS, BEHAVIORAL; HEALTH; HUMAN GENOME PROJECT; HUMANS; PREJUDICE; SOCIAL JUSTICE; SOCIAL VALUES; VARIATION (GENETICS);

EID: 0032151611     PISSN: 87568160     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (61)

1. THOMAS MURRAY, THE WORTH OF A CHILD 133 (1996).
2. Id. at 134.
3. Jerome Bickenbach, The Perils of Human Genetics, 1 ETHICS & INTELL. DISABILITY 2 (1996).
4. Robert A. Bohrer, Future Fall-Out From the Genetic Revolution, 24 FUTURES 681 (1992).
5. THE CODE OF CODES: SCIENTIFIC AND SOCIAL ISSUES IN THE HUMAN GENOME PROJECT (Daniel Kevles & Leroy Hood eds., 1992).
6. For a fuller discussion of our historical legacy of disdain for difference see Sohail Inayatullah & Jennifer Fitzgerald, Gene Discourses: Politics, Culture, Law, and Futures, 52 TECHNOLOGICAL FORECASTING & SOC. CHANGE 161 (1996).
7. Barbara Field, Foucault's Power/Knowledge Model Applied to Genetic Screening (Paper presented at the 10th World Congress of the International Association for the Scientific Study of Intellectual Disabilities, Helsinki, Finland (July 8 1996)).
8. Id.
9. For a discussion of the legal and ethical aspects of selective abortion, see Jennifer Fitzgerald, Selective Abortion and Wrongful Birth in Queensland: Veivers v. Connolly, 25 QUEENSL. L. SOC'Y J. 189 (1995).
10. Field, supra note 7, at 3.
11. Ramana Williams, Transformation, Tools and Transcendence, in TRANSCENDING BOUNDARIES: PRABHAT RAINJAN SARKAR'S THEORIES OF INDIVIDUAL AND SOCIAL TRANSFORMATION (Sohail Inayatullah & Jennifer Fitzgerald eds., forthcoming, 1998).
12. Sohail Inayatullah, Leadership, Evil and Future Generations-Orientation: Towards a Global Conversation of Cultures, in GOVERNANCE FOR FUTURE GENERATIONS (Tae-Chang Kim & James A. Dator eds., 1996).
13. Steven Edwards, Intellectual Disability, Genetics and the Value of Human Life (Paper presented at the 10th World Congress of the International Association for the Scientific Study of Intellectual Disabilities, Helsinki, Finland (July 8, 1996)).
14. James Santiago Grisolia, The Human Genome Project and Our Sense of Self, 41 IMPACT SCI. ON SOC'Y 45 (1991).
15. Ziauddin Sardar, Conquests, Chaos and Complexity: The Other in Modern and Postmodern Science, 26 FUTURES 665, 674 (1994).
16. Herman Meininger, Parental Decisions After Prenatal Diagnosis of Foetal Defects (Paper presented at the 10th World Congress of the International Association for the Scientific Study of Intellectual Disabilities, Helsinki, Finland (July 8, 1996)).
17. TOM WILKIE, PERILOUS KNOWLEDGE: THE HUMAN GENOME PROJECT AND ITS IMPLICATIONS 3 (1993).
18. Susan Wendell, Toward a Feminist Theory of Disability, in FEMINIST PERSPECTIVES IN MEDICAL ETHICS 63, 74 (Helen Bequaert Holmes & Laura M. Purdy eds., 1992).
19. Id. at 71.
20. Bickenbach, supra note 3, at 2
21. Id.
22. Id.
23. Robyn Love, Knowing Your Genes, PUB. UNDERSTANDING SCI., Jan. 21-27, 1996, at 25.
24. P. S. Greenspan, Free Will and the Genome Project, 22 PHIL. & PUB. AFF. 31-43 (1993).
25. Sardar, supra note 15, at 674.
26. D. Shields & Rohan Samarajiva, Competing Frameworks for Research on Information-Communication Technologies and Society: Towards a Synthesis, in 16 INTERNATIONAL COMMUNICATION ASSOCIATION, COMMUNICATION YEARBOOK 354 (1993).
27. Sardar, supra note 15, at 672.
28. BONNIE SPANIER, IMPARTIAL SCIENCE: GENDER IDEOLOGY IN MOLECULAR BIOLOGY 6 (1995).
29. Williams, supra note 11.
30. SPANIER, supra note 28, at 101.
31. Jennifer Alister, Values in End-of-Life Decision-Making: Some Implications for People with Disability, AUSTRALIAN DISABILITY REV., Apr. 1994, at 45-53.
32. For a further discussion see Jennifer Fitzgerald, Economic Rationalism and the Decline of the Civic Culture, GLOBAL TIMES, Mar./Apr., 1997, at 12.
33. Bickenbach, supra note 3, at 2.
34. Ruth Hubbard, Eugenics: New Tools, Old Ideas, in 13(1/2) WOMEN & HEALTH 225, 232 (1987) (issue title: EMBRYOS, ETHICS AND WOMEN'S RIGHTS: EXPLORING THE NEW REPRODUCTIVE TECHNOLOGIES (Elaine Hoffman Baruch et al. eds.)).
35. MURRAY, supra note 1, at 118.
36. Id. at 138.
37. Meininger, supra note 16, at 4.
38. MURRAY, supra note 1, at 136.
39. Dorothy Wertz & John Fletcher, Sex Selection Through Prenatal Diagnosis: A Feminist Critique, in FEMINIST PERSPECTIVES IN MEDICAL ETHICS 241 (Helen Bequaert Holmes and Larau Purdy, eds. 1992).
40. Meininger, supra note 16, at 3.
41. Id.
42. Anne Ballantyne, The Search for a Perfect Baby, WEEKEND AUSTRALIAN, Nov. 7-8, 1992, at 79.
43. Christopher Newell, Some Ethical Issues Associated with Genetic Engineering for People with Disabilities, AUSTRALIAN DISABILITY REV., Feb. 1992, at 79.
44. Id. at 82.
45. Wendell, supra note 18, at 73.
46. Id.
47. PETER COVENEY & ROGER HIGHFIELD, FRONTIERS OF COMPLEXITY: THE SEARCH FOR ORDER IN A CHAOTIC WORLD (1995).
48. Sardar, supra note 15, at 670.
49. Inayatullah, supra note 12.
50. Id.
51. For a more in depth discussion of the myth of perfection see Jennifer Fitzgerald, Threats to the Lives of People with Disability, in 1 QUEENSLAND ADVOCACY INCORPORATED, PAPERS ON ETHICAL ISSUES AFFECTING PEOPLE WITH DISABILITY (1996).
52. Meininger, supra note 16, at 5.
53. Inayatullah, supra note 12.
54. Michael Miles, Disability in an Eastern Religious Context: Historical Perspectives, 10 DISABILITY & SOC'Y 59 (1995).
55. Id.
56. Id.
57. PRABHAT RAINJAN SARKAR, A FEW PROBLEMS SOLVED (1987) (see pt. 6, Civilization, Science and Spiritual Progress).
58. Inayatullah, supra note 12.
59. Id.
60. Wendell, supra note 18, at 73.
61. Sardar, supra note 15, at 671.