메뉴 건너뛰기




Volumn 26, Issue 3, 1998, Pages 189-197

Genetic Discrimination in the Workplace

(1)  Miller, Paul Steven a  

a NONE

Author keywords

[No Author keywords available]

Indexed keywords

AMERICANS WITH DISABILITIES ACT 1990; CIVIL RIGHTS; CIVIL RIGHTS ACT 1964; DISABLED PERSON; EMPIRICAL RESEARCH; EMPLOYMENT; EQUAL EMPLOYMENT OPPORTUNITY COMMISSION; GENETIC DISORDER; GENETIC PRIVACY; GENETIC SCREENING; GENETICS; GENETICS AND REPRODUCTION; GOVERNMENT; GOVERNMENT REGULATION; HEALTH INSURANCE PORTABILITY AND ACCOUNTABILITY ACT 1996; HUMAN; LEGAL APPROACH; LEGAL ASPECT; NUCLEIC ACID DATABASE; REVIEW; SOCIAL PSYCHOLOGY; U.S. CONGRESS; UNITED STATES;

EID: 0032149011     PISSN: 10731105     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1748-720X.1998.tb01419.x     Document Type: Article
Times cited : (36)

References (92)
  • 1
    • 0013627667 scopus 로고    scopus 로고
    • visited Oct. 27
    • The Human Genome Project (HGP) is a coordinated, international research effort, jointly managed by the U.S. Department of Energy and the National Institutes of Health, to analyze the structure of human DNA and to map and sequence the estimated 50,000 to 100,000 human genes. The HGP will improve technology for biomedical research and influence medicine, including reproductive planning, prenatal diagnosis and treatment, and preventive and therapeutic health treatment for a range of genetically related illnesses. Recognizing that the acquisition and use of genetic information has enormous individual and societal implications, analysis of the ethical, legal, and social implications of genetic knowledge has been an important component of the HGP research effort. For a discussion of the HGP, see, for example, National Human Genome Research Institute, The Human Genome Project (visited Oct. 27, 1998) 〈http://www.nhgri.nih.gov/HGP〉; A. Patrinos and D.W. Drell, "Introducing the Human Genome Project: Its Relevance, Triumphs, and Challenges," The Judges' Journal, 36 (1997): 3, 5-10; and M.A. Rothstein, "Genetic Discrimination in Employment and the Americans with Disabilities Act," Houston Law Review, 29 (1992): at 24-25.
    • (1998) The Human Genome Project
  • 2
    • 0008826177 scopus 로고    scopus 로고
    • Introducing the Human Genome Project: Its Relevance, Triumphs, and Challenges
    • The Human Genome Project (HGP) is a coordinated, international research effort, jointly managed by the U.S. Department of Energy and the National Institutes of Health, to analyze the structure of human DNA and to map and sequence the estimated 50,000 to 100,000 human genes. The HGP will improve technology for biomedical research and influence medicine, including reproductive planning, prenatal diagnosis and treatment, and preventive and therapeutic health treatment for a range of genetically related illnesses. Recognizing that the acquisition and use of genetic information has enormous individual and societal implications, analysis of the ethical, legal, and social implications of genetic knowledge has been an important component of the HGP research effort. For a discussion of the HGP, see, for example, National Human Genome Research Institute, The Human Genome Project (visited Oct. 27, 1998) 〈http://www.nhgri.nih.gov/HGP〉; A. Patrinos and D.W. Drell, "Introducing the Human Genome Project: Its Relevance, Triumphs, and Challenges," The Judges' Journal, 36 (1997): 3, 5-10; and M.A. Rothstein, "Genetic Discrimination in Employment and the Americans with Disabilities Act," Houston Law Review, 29 (1992): at 24-25.
    • (1997) The Judges' Journal , vol.36 , pp. 3
    • Patrinos, A.1    Drell, D.W.2
  • 3
    • 0026840249 scopus 로고
    • Genetic Discrimination in Employment and the Americans with Disabilities Act
    • The Human Genome Project (HGP) is a coordinated, international research effort, jointly managed by the U.S. Department of Energy and the National Institutes of Health, to analyze the structure of human DNA and to map and sequence the estimated 50,000 to 100,000 human genes. The HGP will improve technology for biomedical research and influence medicine, including reproductive planning, prenatal diagnosis and treatment, and preventive and therapeutic health treatment for a range of genetically related illnesses. Recognizing that the acquisition and use of genetic information has enormous individual and societal implications, analysis of the ethical, legal, and social implications of genetic knowledge has been an important component of the HGP research effort. For a discussion of the HGP, see, for example, National Human Genome Research Institute, The Human Genome Project (visited Oct. 27, 1998) 〈http://www.nhgri.nih.gov/HGP〉; A. Patrinos and D.W. Drell, "Introducing the Human Genome Project: Its Relevance, Triumphs, and Challenges," The Judges' Journal, 36 (1997): 3, 5-10; and M.A. Rothstein, "Genetic Discrimination in Employment and the Americans with Disabilities Act," Houston Law Review, 29 (1992): at 24-25.
    • (1992) Houston Law Review , vol.29 , pp. 24-25
    • Rothstein, M.A.1
  • 4
    • 25944462197 scopus 로고    scopus 로고
    • Workers Fear Genetic Discrimination
    • Feb. 25
    • See S. Armour, "Workers Fear Genetic Discrimination," USA Today, Feb. 25, 1998, at 4B.
    • (1998) USA Today
    • Armour, S.1
  • 5
    • 0003635176 scopus 로고    scopus 로고
    • Jan. 20, (unpublished) citing Harris Poll, no. 34 1995
    • See Joint Report of Department of Labor, Department of Health and Human Services, Equal Employment Opportunity Commission, and Department of Justice, Genetic Information and the Workplace, at 2 (Jan. 20, 1998) (unpublished) (citing Harris Poll, no. 34 (1995)).
    • (1998) Genetic Information and the Workplace , pp. 2
  • 6
    • 0029831202 scopus 로고    scopus 로고
    • Genetic Discrimination: Perspectives of Consumers
    • See E.V. Lapham, C. Kozma, and J.O. Weiss, "Genetic Discrimination: Perspectives of Consumers," Science, 274 (1996): at 621-24 (noting that survey findings are applicable only to the group studied because volunteers for this study were recruited through genetic support groups and did not constitute a statistically representative sample). The Health Insurance Association of America, which represents approximately 200 health insurers and managed care corporations, contends that fears of genetic discrimination are "overblown," because existing surveys of discrimination are usually self-selected, based on individual's perceptions of discrimination, and not statistically representative samples. See K.C. Swanson, "New Tests, New Concerns," National Journal, Jan. 4, 1996, at 29; and Health Insurance Association of America, Genetic Testing: Media Kit (visited Oct. 27, 1998) 〈http://www.hiaa.org/newsroom/ genetic.html#1〉 (criticizing the study by E. Virginia Lapham, Chahira Kozma, and Joanne Weiss, id., in particular).
    • (1996) Science , vol.274 , pp. 621-624
    • Lapham, E.V.1    Kozma, C.2    Weiss, J.O.3
  • 7
    • 0029831202 scopus 로고    scopus 로고
    • New Tests, New Concerns
    • Jan. 4
    • See E.V. Lapham, C. Kozma, and J.O. Weiss, "Genetic Discrimination: Perspectives of Consumers," Science, 274 (1996): at 621-24 (noting that survey findings are applicable only to the group studied because volunteers for this study were recruited through genetic support groups and did not constitute a statistically representative sample). The Health Insurance Association of America, which represents approximately 200 health insurers and managed care corporations, contends that fears of genetic discrimination are "overblown," because existing surveys of discrimination are usually self-selected, based on individual's perceptions of discrimination, and not statistically representative samples. See K.C. Swanson, "New Tests, New Concerns," National Journal, Jan. 4, 1996, at 29; and Health Insurance Association of America, Genetic Testing: Media Kit (visited Oct. 27, 1998) 〈http://www.hiaa.org/newsroom/ genetic.html#1〉 (criticizing the study by E. Virginia Lapham, Chahira Kozma, and Joanne Weiss, id., in particular).
    • (1996) National Journal , pp. 29
    • Swanson, K.C.1
  • 8
    • 0029831202 scopus 로고    scopus 로고
    • visited Oct. 27
    • See E.V. Lapham, C. Kozma, and J.O. Weiss, "Genetic Discrimination: Perspectives of Consumers," Science, 274 (1996): at 621-24 (noting that survey findings are applicable only to the group studied because volunteers for this study were recruited through genetic support groups and did not constitute a statistically representative sample). The Health Insurance Association of America, which represents approximately 200 health insurers and managed care corporations, contends that fears of genetic discrimination are "overblown," because existing surveys of discrimination are usually self-selected, based on individual's perceptions of discrimination, and not statistically representative samples. See K.C. Swanson, "New Tests, New Concerns," National Journal, Jan. 4, 1996, at 29; and Health Insurance Association of America, Genetic Testing: Media Kit (visited Oct. 27, 1998) 〈http://www.hiaa.org/newsroom/ genetic.html#1〉 (criticizing the study by E. Virginia Lapham, Chahira Kozma, and Joanne Weiss, id., in particular).
    • (1998) Genetic Testing: Media Kit
  • 9
    • 0346693387 scopus 로고    scopus 로고
    • See Lapham, Kozma, and Weiss, id.
    • See Lapham, Kozma, and Weiss, id.
  • 10
    • 0347323912 scopus 로고    scopus 로고
    • See id.
    • See id.
  • 11
    • 0003571561 scopus 로고
    • New York: McGraw-Hill, 11th ed.
    • Cystic fibrosis is an inherited multisystem disorder that is characterized by abnormal functioning of the endocrine gland and results in chronic progressive disease of the respiratory system for nearly all patients. See E. Braunwald et al., eds., Harrison's Principles of Internal Medicine (New York: McGraw-Hill, 11th ed., 1987): at 1085-86.
    • (1987) Harrison's Principles of Internal Medicine , pp. 1085-1086
    • Braunwald, E.1
  • 12
    • 0347323914 scopus 로고    scopus 로고
    • Huntington's disease is an untreatable, hereditary autosomal disorder that is characterized by involuntary movements and progressive dementia. See id. at 2014-15
    • Huntington's disease is an untreatable, hereditary autosomal disorder that is characterized by involuntary movements and progressive dementia. See id. at 2014-15.
  • 13
    • 0347954315 scopus 로고    scopus 로고
    • See Lapham, Kozma, and Weiss, supra note 4
    • See Lapham, Kozma, and Weiss, supra note 4.
  • 14
    • 0346062794 scopus 로고    scopus 로고
    • See Joint Report, supra note 3, at 2-3
    • See Joint Report, supra note 3, at 2-3.
  • 15
    • 0031003216 scopus 로고    scopus 로고
    • Genetic Information in the Workplace: Legislative Approaches and Policy Changes
    • See K. Rothenberg et al., "Genetic Information in the Workplace: Legislative Approaches and Policy Changes," Science, 275 (1997): at 1755-57; Lapham, Kozma, and Weiss, supra note 4, at 621 (noting that fears of genetic discrimination may affect the number of individuals willing to participate in scientific research); and L. Gostin, "Genetic Discrimination: The Use of Genetically Based Diagnostic and Prognostic Tests by Employers and Insurers," American Journal of Law & Medicine, XVII (1991): at 113 (noting that benefits of genetic data collection will not be achieved if fear of discrimination deters people from genetic diagnoses).
    • (1997) Science , vol.275 , pp. 1755-1757
    • Rothenberg, K.1
  • 16
    • 0025766980 scopus 로고
    • Genetic Discrimination: The Use of Genetically Based Diagnostic and Prognostic Tests by Employers and Insurers
    • See K. Rothenberg et al., "Genetic Information in the Workplace: Legislative Approaches and Policy Changes," Science, 275 (1997): at 1755-57; Lapham, Kozma, and Weiss, supra note 4, at 621 (noting that fears of genetic discrimination may affect the number of individuals willing to participate in scientific research); and L. Gostin, "Genetic Discrimination: The Use of Genetically Based Diagnostic and Prognostic Tests by Employers and Insurers," American Journal of Law & Medicine, XVII (1991): at 113 (noting that benefits of genetic data collection will not be achieved if fear of discrimination deters people from genetic diagnoses).
    • (1991) American Journal of Law & Medicine , vol.17 , pp. 113
    • Gostin, L.1
  • 17
    • 0031552075 scopus 로고    scopus 로고
    • Advent of Testing for Breast Cancer Genes Leads to Fears of Disclosure and Discrimination
    • Feb. 4
    • See G. Kolata, "Advent of Testing for Breast Cancer Genes Leads to Fears of Disclosure and Discrimination," New York Times, Feb. 4, 1997, at C1.
    • (1997) New York Times
    • Kolata, G.1
  • 18
    • 0346693397 scopus 로고    scopus 로고
    • Genetic Discrimination is Less Widespread than Feared
    • Nov. 20
    • As Karen Rothenberg has noted, this lack of data is not surprising because there is an inherent problem in documenting actual genetic discrimination: because individuals must reveal that they have, or are at risk for, genetic abnormalities in order to register a discrimination complaint, many will not file a complaint because they have too much to lose by revealing this confidential information. See S.M. Kopinsky, "Genetic Discrimination is Less Widespread than Feared," Health Care News Server (Nov. 20, 1997) 〈http://www.healthcarenewsserver.com/stories/ HCN1997112000021.shtml〈 (reporting Rothenberg's comments at an October 29, 1997 panel on Genetic Testing in the Marketplace).
    • (1997) Health Care News Server
    • Kopinsky, S.M.1
  • 19
    • 0026609094 scopus 로고
    • Discrimination as a Consequence of Genetic Screening
    • See, for example, P.R. Billings et al., "Discrimination as a Consequence of Genetic Screening," American Journal of Human Genetics, 50 (1992): 476-82 (describing anecdotal evidence of discrimination against individuals based on "apparent or perceived" genetic abnormalities); Armour, supra note 2, at 4B (citing statements by that director of National Center for Genome Resources that people have lost jobs because of genetic discrimination).
    • (1992) American Journal of Human Genetics , vol.50 , pp. 476-482
    • Billings, P.R.1
  • 20
    • 0029677157 scopus 로고    scopus 로고
    • Individual, Family, and Societal Dimensions of Genetic Discrimination: A Case Study Analysis
    • See L.N. Geller et al., "Individual, Family, and Societal Dimensions of Genetic Discrimination: A Case Study Analysis," Science & Engineering Ethics, 2, no. 1 (1996): at 71-88.
    • (1996) Science & Engineering Ethics , vol.2 , Issue.1 , pp. 71-88
    • Geller, L.N.1
  • 21
    • 25944478901 scopus 로고    scopus 로고
    • White House: Ban Gene Bias in Workplace
    • Jan. 20
    • See S. Page, "White House: Ban Gene Bias in Workplace," USA Today, Jan. 20, 1998, at A1.
    • (1998) USA Today
    • Page, S.1
  • 22
    • 0347954311 scopus 로고    scopus 로고
    • See Lapham, Kozma, and Weiss, supra note 4
    • See Lapham, Kozma, and Weiss, supra note 4.
  • 23
    • 0347323917 scopus 로고    scopus 로고
    • See id
    • See id.
  • 24
    • 0347954307 scopus 로고    scopus 로고
    • See Kopinsky, supra note 13 (citing results of survey by Dorothy Wertz and colleagues at the Shriver Center for Mental Retardation, in Massachusetts)
    • See Kopinsky, supra note 13 (citing results of survey by Dorothy Wertz and colleagues at the Shriver Center for Mental Retardation, in Massachusetts).
  • 25
    • 0347323916 scopus 로고    scopus 로고
    • See id
    • See id.
  • 26
    • 0346062793 scopus 로고    scopus 로고
    • Americans with Disabilities Act, 42 U.S.C. §§ 12111-12117 (1994)
    • Americans with Disabilities Act, 42 U.S.C. §§ 12111-12117 (1994).
  • 27
    • 0346062789 scopus 로고    scopus 로고
    • See id. § 12112(a)
    • See id. § 12112(a).
  • 28
    • 0346693392 scopus 로고    scopus 로고
    • See id. § 12102(2)
    • See id. § 12102(2).
  • 29
    • 0346693391 scopus 로고    scopus 로고
    • See id. § 12112(b)(5)
    • See id. § 12112(b)(5).
  • 30
    • 0346062792 scopus 로고    scopus 로고
    • See id. § 12111(5)(A)
    • See id. § 12111(5)(A).
  • 31
    • 0346693399 scopus 로고    scopus 로고
    • note
    • See, for example, Harris v. H & W Contracting Co., 102 F.3d 516 (11th Cir. 1997) (noting that an individual with Graves disease is covered by the Americans with Disabilities Act (ADA)); Gilday v. Mecosta County, No. 96-1571, 1997 U.S. App. LEXIS 33306 (6th Cir. Sept. 2, 1997) (noting that an individual with diabetes is covered by the ADA); and Matczak v. Frankford Candy and Chocolate Co., 136 F.3d 933 (3rd Cir. 1997) (noting that an individual with epilepsy is covered by the ADA).
  • 32
    • 0347323910 scopus 로고    scopus 로고
    • Genes in the Workplace: An Ethical and Legal Analysis of Genetic Discrimination under the Employment Provisions of the Americans with Disabilities Act
    • (unpublished) on file with author
    • See R.S. Olick, "Genes in the Workplace: An Ethical and Legal Analysis of Genetic Discrimination Under the Employment Provisions of the Americans with Disabilities Act," Obermann Summer Seminar, 10 (1997) (unpublished) (on file with author); and M.S. Dichter and S.E. Sutor, "The New Genetic Age: Do Our Genes Make Us Disabled Individuals Under the Americans with Disabilities Act?," Villanova Law Review, 42 (1997): 613-33.
    • (1997) Obermann Summer Seminar , vol.10
    • Olick, R.S.1
  • 33
    • 0031290147 scopus 로고    scopus 로고
    • The New Genetic Age: Do Our Genes Make Us Disabled Individuals under the Americans with Disabilities Act?
    • See R.S. Olick, "Genes in the Workplace: An Ethical and Legal Analysis of Genetic Discrimination Under the Employment Provisions of the Americans with Disabilities Act," Obermann Summer Seminar, 10 (1997) (unpublished) (on file with author); and M.S. Dichter and S.E. Sutor, "The New Genetic Age: Do Our Genes Make Us Disabled Individuals Under the Americans with Disabilities Act?," Villanova Law Review, 42 (1997): 613-33.
    • (1997) Villanova Law Review , vol.42 , pp. 613-633
    • Dichter, M.S.1    Sutor, S.E.2
  • 34
    • 0032149012 scopus 로고    scopus 로고
    • The Supreme Court Confronts HIV: Reflections on Bragdon v. Abbott
    • See Olick, id. at 10. The U.S. Supreme Court recently held in Bragdon v. Abbott, No. 97-156, 1998 WL 332958, at *5-*11 (U.S. June 25, 1998), that a person with asymptomatic human immunodeficiency virus (HIV) is an "individual with a disability" covered under the ADA. The Court reasoned that asymptomatic HIV is, in fact, a "physical impairment" that substantially limits the major life activity of reproduction. Because the Court found HIV to constitute a physical impairment in that it causes abnormalities in an infected person's hemic and lymphatic systems from the moment of infection, the reasoning of this case does extend to asymptomatic genetic conditions. An individual with a genetic predisposition is a person with a genetic marker for a particular trait, who may or may not develop the trait, disorder, or disease. Compare 1998 WL 332958, at *23 (Rehnquist, C.J., concurring in part and dissenting in part). For further analysis of Bragdon v. Abbott, see W.E. Parmet, "The Supreme Court Confronts HIV: Reflections on Bragdon v. Abbott," Journal of Law, Medicine & Ethics, 26 (1998): 225-40.
    • (1998) Journal of Law, Medicine & Ethics , vol.26 , pp. 225-240
    • Parmet, W.E.1
  • 36
    • 0346693390 scopus 로고    scopus 로고
    • See id.
    • See id.
  • 37
    • 0346062788 scopus 로고    scopus 로고
    • See id.
    • See id.
  • 38
    • 0346693394 scopus 로고    scopus 로고
    • Id. §§ 902-46
    • Id. §§ 902-46.
  • 39
    • 0347323913 scopus 로고    scopus 로고
    • See Dichter and Sutor, supra note 27, at 631
    • See Dichter and Sutor, supra note 27, at 631.
  • 40
    • 84889527071 scopus 로고    scopus 로고
    • supra note 29, at §§ 902-45
    • See id. at 630-31; and EEOC Compliance Manual, supra note 29, at §§ 902-45.
    • EEOC Compliance Manual
  • 41
    • 0346693389 scopus 로고    scopus 로고
    • note
    • The sickle cell trait originates through inheritance of an unstable hemoglobin variant (Hb S). The abnormality occurs almost exclusively in persons of color. About 8 percent of black Americans are heterozygous for Hb S. Although the genetic abnormality may give rise to congenital hemolytic anemia, Hb S carriers generally have minimal clinical problems. See Braunwald et al., supra note 7, at 1519. See also Jones v. Inter-County Imaging Ctrs., 889 F. Supp. 741, 744 (S.D.N.Y. 1995) (holding that the plaintiff stated a valid claim under the ADA when he alleged that he was terminated by his employer because the employer believed that his sickle cell condition would adversely affect future work attendance).
  • 42
    • 0346693395 scopus 로고    scopus 로고
    • note
    • See, for example, Anderson v. Gus Mayer Boston Store, 924 F. Supp. 763, 769 (E.D. Tex. 1996); 889 F. Supp. at 744; and Sawinski v. Bill Currie Ford, Inc., 866 F. Supp 1383, 1387 (M.D. Fla. 1994).
  • 43
    • 0347954314 scopus 로고    scopus 로고
    • note
    • See, for example, Dichter and Sutor, supra note 27 (arguing that courts should refrain from interpreting the ADA to provide protection to individuals with genetic disorders that are currently asymptomatic).
  • 44
    • 0347007293 scopus 로고
    • Genetic Blueprints, Employer Cost-Cutting, and the Americans with Disabilities Act
    • See F.H. Miller and P.A. Huvos, "Genetic Blueprints, Employer Cost-Cutting, and the Americans with Disabilities Act," Administrative Law Review, 46 (1994): at 375-77).
    • (1994) Administrative Law Review , vol.46 , pp. 375-377
    • Miller, F.H.1    Huvos, P.A.2
  • 45
    • 0346062791 scopus 로고    scopus 로고
    • See Gostin, supra note 11, at 109
    • See Gostin, supra note 11, at 109.
  • 46
    • 0346062786 scopus 로고    scopus 로고
    • See Olick, supra note 27, at 14-16; and Rothenberg et al., supra note 11
    • See Olick, supra note 27, at 14-16; and Rothenberg et al., supra note 11.
  • 47
    • 0347954312 scopus 로고    scopus 로고
    • See 42 U.S.C. § 12112(d)(2)(A) (1994)
    • See 42 U.S.C. § 12112(d)(2)(A) (1994).
  • 48
    • 0347954308 scopus 로고    scopus 로고
    • See id. § 12112(d)(2)(B)
    • See id. § 12112(d)(2)(B).
  • 49
    • 0347954309 scopus 로고    scopus 로고
    • See id. § 12112(d)(3)(A)
    • See id. § 12112(d)(3)(A).
  • 50
    • 0347954310 scopus 로고    scopus 로고
    • Id. § 12112(d)(4)(A)
    • Id. § 12112(d)(4)(A).
  • 51
    • 0346693383 scopus 로고    scopus 로고
    • See id. § 12112(d)(3)(B)
    • See id. § 12112(d)(3)(B).
  • 52
    • 0346693382 scopus 로고    scopus 로고
    • See Olick, supra note 27, at 14-16
    • See Olick, supra note 27, at 14-16.
  • 53
    • 0346693384 scopus 로고    scopus 로고
    • Civil Rights Act of 1964, 42 U.S.C. § 2000e (1994)
    • Civil Rights Act of 1964, 42 U.S.C. § 2000e (1994).
  • 54
    • 0346693386 scopus 로고    scopus 로고
    • See Rothstein, supra note 1, at 32
    • See Rothstein, supra note 1, at 32.
  • 55
    • 0347954306 scopus 로고    scopus 로고
    • note
    • Tay-Sachs disease is a relatively common inborn error of metabolism with thousands of documented cases. The trait is associated with a deficiency of hexosaminidase A, a protein activator. The features are similar in all carriers, beginning in the third to sixth month of infancy with rapid neurological deterioration. Ashkenazi Jews are about 100 times more likely than other ethnic groups to carry the Tay-Sachs trait. See Braunwald et al., supra note 7, at 1667-68. See, for example, Smith v. Olin Chemical Corp., 555 F.2d 1283, 1284-85 (5th Cir. 1977) (claiming that the plaintiff's dismissal was due to suspected sickle cell disease; alleging disparate impact race discrimination in violation of Title VII); and Peoples v. City of Salina, No. 88-42800-S, 1990 U.S. Dist. LEXIS 4070, at *1 (D. Kan. Mar. 20, 1990) (claiming dismissal based on employer's fears of sickle cell trait). One commentator has even suggested that discrimination in employment based on late-onset genetic conditions could constitute disparate impact age discrimination, in violation of the Age Discrimination in Employment Act, 29 U.S.C. §§ 621-634. See Rothstein, supra note 1, at 32 n.44.
  • 56
    • 0347323909 scopus 로고    scopus 로고
    • See Gostin, supra note 11, at 138
    • See Gostin, supra note 11, at 138.
  • 57
    • 0346693367 scopus 로고    scopus 로고
    • Genetic Discrimination in the Workplace: Employer Dream, Employee Nightmare - Legislative Regulation in the United States and the Federal Republic of Germany
    • See id.; Rothstein, supra note 1, at 32; and K.A. Deyerle, "Genetic Discrimination in the Workplace: Employer Dream, Employee Nightmare - Legislative Regulation in the United States and the Federal Republic of Germany," Comparative Labor Law Journal, 18 (1997): at 568 (citing Olin Chemical, 553 F.2d 1283).
    • (1997) Comparative Labor Law Journal , vol.18 , pp. 568
    • Deyerle, K.A.1
  • 58
    • 0347954304 scopus 로고    scopus 로고
    • See Deyerle, id. at 567-68
    • See Deyerle, id. at 567-68.
  • 59
    • 0346693375 scopus 로고    scopus 로고
    • Norman-Bloodsaw v. Lawrence Berkeley Laboratory 135 F.3d 1260 (9th Cir. 1998)
    • Norman-Bloodsaw v. Lawrence Berkeley Laboratory 135 F.3d 1260 (9th Cir. 1998).
  • 60
    • 0346062785 scopus 로고    scopus 로고
    • See id. at 1267-68
    • See id. at 1267-68.
  • 61
    • 0347954303 scopus 로고    scopus 로고
    • See id. at 1269-71
    • See id. at 1269-71.
  • 62
    • 0347323906 scopus 로고    scopus 로고
    • See id. at 1272-73
    • See id. at 1272-73.
  • 63
    • 0346062784 scopus 로고    scopus 로고
    • See id. at 1273-74
    • See id. at 1273-74.
  • 64
    • 0347954305 scopus 로고    scopus 로고
    • note
    • See id. at 1273. Under the ADA, an employer may condition an offer of employment based on the results of a medical examination if (1) the examination is given to all entering employees; (2) the results are kept confidential; and (3) the examination is not used to discriminate against individuals with disabilities, unless the results make the individual unqualified for the job. See 42 U.S.C. § 12112(c)(3) (1994).
  • 65
    • 0347323908 scopus 로고    scopus 로고
    • Mayfield v. Dalton, 109 F.3d 1423 (9th Cir. 1997)
    • Mayfield v. Dalton, 109 F.3d 1423 (9th Cir. 1997).
  • 66
    • 0346693380 scopus 로고    scopus 로고
    • See id. at 1425
    • See id. at 1425.
  • 67
    • 0347323903 scopus 로고    scopus 로고
    • See id.
    • See id.
  • 68
    • 0346693379 scopus 로고    scopus 로고
    • Health Insurance Portability and Accountability Act, Pub. L. No. 104-191, 110 Stat. 1936 (1996)
    • Health Insurance Portability and Accountability Act, Pub. L. No. 104-191, 110 Stat. 1936 (1996).
  • 69
    • 0031150461 scopus 로고    scopus 로고
    • Medical Record Confidentiality: Law, Scientific Research, and Data Collection in the Information Age
    • For a discussion of the issue of gathering and use of medical information in general, see R.C. Turkington, "Medical Record Confidentiality: Law, Scientific Research, and Data Collection in the Information Age," Journal of Law, Medicine & Ethics, 25 (1997): at 122-26.
    • (1997) Journal of Law, Medicine & Ethics , vol.25 , pp. 122-126
    • Turkington, R.C.1
  • 70
    • 0347954297 scopus 로고    scopus 로고
    • Arizona, Florida, Illinois, Iowa, Louisiana, New Hampshire, New Jersey, New York, North Carolina, Oregon, Rhode Island, Texas, and Wisconsin. See discussion below for specific statutes
    • Arizona, Florida, Illinois, Iowa, Louisiana, New Hampshire, New Jersey, New York, North Carolina, Oregon, Rhode Island, Texas, and Wisconsin. See discussion below for specific statutes.
  • 71
    • 0347954301 scopus 로고    scopus 로고
    • See Fla. Stat. Ann. § 448.075 (1998)
    • See Fla. Stat. Ann. § 448.075 (1998).
  • 72
    • 0347323904 scopus 로고    scopus 로고
    • note
    • See N.C. Gen. Stat. § 95-28.1 (1997). The hemoglobin C trait (Hb C) is related to sickle cell disorders. Although the gene frequency for Hb C is only one-fourth that for Hb S, the prevalence of sickle cell-related symptoms and illness is far greater. The tendency of sickle cell red cells to sickle, compared with sickle cell traits, can be explained by two phenomena: increased intercellular hemoglobin concentration and significantly higher percentage Hb S. See Braunwald et al., supra note 7, at 1522-23.
  • 73
    • 0346062782 scopus 로고    scopus 로고
    • See La. Rev. Stat. Ann. § 23:352 (West 1998)
    • See La. Rev. Stat. Ann. § 23:352 (West 1998).
  • 74
    • 0347954299 scopus 로고    scopus 로고
    • note
    • See N.J. Stat. Ann. §§ 10:5-5(x), :5-12 (West 1998). The thalassemias are a diverse group of congenital disorders in which there is a defect in the synthesis of one (or more) of the subunits of hemoglobin. As a result of the decreased production of hemoglobin, the red blood cells are microcytic and hypochromic. Thalassemias can lead to a variety of conditions, from subtle abnormalities to life-threatening disease. The two types of thalassemias are classified as α-chain thalassemia and ß-chain thalassemia. Normal individuals inherit two α-chain genes from each parent. The great majority of cases of α-chain thalassemia result from deletion or impaired production of α-chain genes. See Braunwald et al., supra note 7, at 1525-26.
  • 75
    • 0347954300 scopus 로고    scopus 로고
    • note
    • See N.Y. Civ. Rights Law §§ 48, 48-a (Consol. 1998). Normal individuals inherit only a single ß-chain gene from each parent. In persons who inherit the genetic ß-thalassemia trait, the ß-chains have normal structure but are produced at greatly reduces rates. The gene frequency for ß thalassemia approaches 0.1 in southern Italy and certain Mediterranean islands. Beta thalassemia is also encountered quite commonly in central Africa, Asia, and the south Pacific. See Braunwald et al., supra note 7, at 1525-27.
  • 76
    • 0346693378 scopus 로고    scopus 로고
    • note
    • See Ariz. Rev. Stat. Ann. § 41-1463(B) (West 1998); Iowa Code Ann. § 729.6 (West 1997); N.H. Rev. Stat. Ann. § 141-H:3.I(b) (1997); Or. Rev. Stat. § 659.036(1) (1997); R.I. Gen. Laws § 28-6.7-1(a) (1997); Tex. Lab. Code Ann. §§ 21.401(2), .402(a)(1) (West 1998); and Wis. Stat. § 111.372 (1997).
  • 77
    • 0346693376 scopus 로고    scopus 로고
    • note
    • See Iowa Code Ann. § 729.6.2.a; N.H. Stat. Ann. § 141-H:3.I(a); Or. Rev. Stat. § 659.227(1); R.I. Gen. Laws § 28-6.7-1(a)(1); Tex. Lab. Code Ann. § 21.402(a)(2); and Wis. Stat. § 111.372(1)(a).
  • 78
    • 0346062781 scopus 로고    scopus 로고
    • See Iowa Code Ann. § 729.6.4; N.H. Stat. Ann. § 141-H:3.III; and Wis. Stat. § 111.372(3)
    • See Iowa Code Ann. § 729.6.4; N.H. Stat. Ann. § 141-H:3.III; and Wis. Stat. § 111.372(3).
  • 79
    • 0347954296 scopus 로고    scopus 로고
    • See Iowa Code Ann. § 729.6.2.b; R.I. Gen. Laws § 28-6.7-1 (a)(2); and Wis. Stat. § 111.372(1)(b)
    • See Iowa Code Ann. § 729.6.2.b; R.I. Gen. Laws § 28-6.7-1 (a)(2); and Wis. Stat. § 111.372(1)(b).
  • 80
    • 0346062780 scopus 로고    scopus 로고
    • See Iowa Code Ann. § 729.6.7; N.H. Stat. Ann. § 141-H:3.IV; and Wis. Stat. § 111.372(4)
    • See Iowa Code Ann. § 729.6.7; N.H. Stat. Ann. § 141-H:3.IV; and Wis. Stat. § 111.372(4).
  • 81
    • 0346693374 scopus 로고    scopus 로고
    • Iowa Code Ann. § 729.6.1.c
    • Iowa Code Ann. § 729.6.1.c.
  • 82
    • 0346693373 scopus 로고    scopus 로고
    • N.J. Stat. Ann. § 10:5-12 (West 1998)
    • N.J. Stat. Ann. § 10:5-12 (West 1998).
  • 83
    • 0347954293 scopus 로고    scopus 로고
    • Id. § 10:5-5(oo)
    • Id. § 10:5-5(oo).
  • 84
    • 0346693370 scopus 로고    scopus 로고
    • N.Y. Exec. Law § 296 (Consol. 1998); and N.C. Gen. Stat. § 95-28.1A (1997)
    • N.Y. Exec. Law § 296 (Consol. 1998); and N.C. Gen. Stat. § 95-28.1A (1997).
  • 85
    • 0347954292 scopus 로고    scopus 로고
    • note
    • See N.Y. Exec. Law § 292.21-b ("'Genetic predisposition' shall mean the presence of a variation in the composition of the genes of an individual or an individual's family member which is scientifically or medically identifiable and which is determined to be associated with an increased statistical risk of being expressed as either a physical or mental disease or disability in the individual or having offspring with a genetically influenced disease, but which has not resulted in any symptoms of such disease or disorder." (emphasis added)); and N.C. Gen. Stat. § 95-28.1A(b) (similar).
  • 86
    • 0346062779 scopus 로고    scopus 로고
    • note
    • For example, Florida regulates genetic testing and prohibits genetic testing except with the informed consent of the individual to be tested, and provides that the results of such tests may not be disclosed without the consent of the tested individual. See Fla. Stat. Ann. § 760.40(2)(a) (1998). See also 410 Ill. Comp. Stat. § 513/15-30 (West 1998) (Illinois statute regulating confidentiality and disclosure of genetic information); Tex. Lab. Code Ann. § 21.403 (West 1998) (prohibiting disclosure of genetic information unless specifically authorized by the individual); and Wis. Stat. § 942.07 (1997) (prohibiting employers, labor organizations, employment agencies, and licensing agencies from disclosing the results of an individual's genetic test without individual's written informed consent).
  • 87
    • 0347323901 scopus 로고    scopus 로고
    • See Fla. Stat. Ann. § 760.40(2)(a). See also 410 Ill. Comp. Stat. § 513/15-30
    • See Fla. Stat. Ann. § 760.40(2)(a). See also 410 Ill. Comp. Stat. § 513/15-30.
  • 88
    • 0346693369 scopus 로고    scopus 로고
    • note
    • In addition to the bills discussed below, see also, H.R. 3299, 105th Cong. (1998) (establishing limits on use of genetic information in health insurance coverage and employment, introduced by Representative Linda Smith (R. Wash.)).
  • 89
    • 0346693371 scopus 로고    scopus 로고
    • See Genetic Justice Act, S. 1045, 105th Cong. (1997); and Genetic Employment Protection Act of 1997, H.R. 2275, 105th Cong. (1997)
    • See Genetic Justice Act, S. 1045, 105th Cong. (1997); and Genetic Employment Protection Act of 1997, H.R. 2275, 105th Cong. (1997).
  • 90
    • 0346062776 scopus 로고    scopus 로고
    • See Genetic Nondiscrimination in the Workplace Act, H.R. 2215, 105th Cong. (1997)
    • See Genetic Nondiscrimination in the Workplace Act, H.R. 2215, 105th Cong. (1997).
  • 91
    • 0347323902 scopus 로고    scopus 로고
    • See Genetic Confidentiality and Nondiscrimination Act of 1997, S. 422, 105th Cong. (1997); and Genetic Privacy and Nondiscrimination Act of 1997, H.R. 2198, 105th Cong. (1997)
    • See Genetic Confidentiality and Nondiscrimination Act of 1997, S. 422, 105th Cong. (1997); and Genetic Privacy and Nondiscrimination Act of 1997, H.R. 2198, 105th Cong. (1997).
  • 92
    • 0347954283 scopus 로고    scopus 로고
    • Gore Pushes Bill to Outlaw Genetic Bias
    • Mar. 2
    • See Joint Report, supra note 3, at 8-9; and C. Harris, "Gore Pushes Bill to Outlaw Genetic Bias," Federal Times, Mar. 2, 1998, at 4.
    • (1998) Federal Times , pp. 4
    • Harris, C.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.