Genetic testing: Implications for professional nursing

Journal of Professional Nursing

Volumn 14, Issue 3, 1998, Pages 184-188

  Williams, Janet K ^a,b  

^a UNIVERSITY OF IOWA COLLEGE OF NURSING   (United States)

^b UNIVERSITY OF IOWA   (United States)

Author keywords

Decision making; Genetic counseling; Genetic testing; Informed consent; Risk identification

Indexed keywords

ADAPTIVE BEHAVIOR; CONFIDENTIALITY; DECISION MAKING; EDUCATION; GENETIC PRIVACY; GENETIC SCREENING; GENETICS AND REPRODUCTION; HUMAN; INCIDENTAL FINDING; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; MEDICAL GENETICS; NURSE ATTITUDE; NURSE PATIENT RELATIONSHIP; NURSING; NURSING EDUCATION; PSYCHOLOGICAL ASPECT; REVIEW; RISK ASSESSMENT;

GENETICS AND REPRODUCTION;

ADAPTATION, PSYCHOLOGICAL; CONFIDENTIALITY; DECISION MAKING; DISCLOSURE; EDUCATION, NURSING, GRADUATE; GENETIC PRIVACY; GENETIC SCREENING; GENETICS, MEDICAL; HUMANS; INCIDENTAL FINDINGS; INFORMED CONSENT; NURSE'S ROLE; NURSE-PATIENT RELATIONS; RISK ASSESSMENT;

EID: 0032060401     PISSN: 87557223     EISSN: None     Source Type: Journal    
DOI: 10.1016/S8755-7223(98)80094-X     Document Type: Article

References (22)

1. Andrews, L., Fullarton, J., Holtzman, N., & Motulsky, A. (1994). Assessing genetic risks: Implications for health and social policy. Washington, DC: National Academy Press.
2. Annas, G. (1995). Genetic prophecy and genetic privacy - Can we prevent the dream from becoming a nightmare? American Journal of Public Health, 85, 1196-1197.
3. Baum, A., Friedman, A., & Zakowski, S. (1997). Stress and genetic testing for disease risk. Health Psychology, 16, 8-19.
4. Billings, P., Kohn, M., de Cuevas, M., Beckwith, J., Alper, J., & Natowicz, M. (1992). Discrimination as a consequence of genetic testing. American Journal of Human Genetics, 50, 476-482.
5. Codori, A., & Brandt, J. (1994). Psychological costs and benefits of predictive testing for Huntington disease. American Journal of Medical Genetics, 54, 174-184.
6. Committee (1994). Guidelines for the molecular genetics predictive test in Huntington's disease. Journal of Medical Genetics, 31, 555-559.
7. Consensus Development Conference Statement (1997). Genetic testing for cystic fibrosis. Bethesda, MD: National Institutes of Health.
8. Corder, E., Saunders, A., Strittmatter, W., Schmechel, D., Gaskell, P., Small, G., Roses, A., Haines, J., & Perica-Vance, M. (1993). Gene dose of apolipoprotein E type 4 allele and the risk of Alzheimer's disease in late onset families. Science, 261, 921-923.
9. Ford, D., Easton, D., Bishop, D., Narod, S., Goldgar, D., and the Breast Cancer Linkage Consortium (1994). Risks of cancer in BRCA1-mutation carriers. Lancet, 343, 692-695.
10. Goldstein, J., & Brown, M. (1994). Genetics and disease. In K. Isselbacher, E. Brainwald, J. Wilson, J. Martin, A. Fauci, & D. Kasper (Eds.), Harrison's principles of internal medicine (13 ed.), New York: McGraw-Hill.
11. Holloway, S., Mennie, M., Crosbie, A., Smith, G., Raeburn, S., Dinwoodie, D., Wright, A., May, H., Calder, K., Barron, L., & Brock, D. (1994). Predictive testing for Huntington disease: Social characteristics and knowledge of applicants, attitudes to the test procedure and decisions made after testing. Clinical Genetics, 46, 175-180.
12. Jenkins, J. (1997). Educational issues related to cancer genetics. Seminars in Oncology Nursing, 13, 141-144.
13. Marteau, T., Dundas, R., & Axworthy, D. (1997). Long-term cognitive and emotional impact of genetic testing for carriers of cystic fibrosis: The effects of test result and gender. Health Psychology, 16, 51-62.
14. McCloskey, J., & Bulechek, G. (1996). Nursing interventions classification (2nd ed.), St. Louis, MO: Mosby.
15. National Cancer Institute (1995). Understanding genetic testing (NIH Publication No. 96-3905). Washington DC: US Department of Health and Human Services.
16. Scanlon, C., & Fibison, W. (1995). Managing genetic information: Implications for nursing practice. Washington, DC: American Nurses Association.
17. Tibben, A., Duivenvooden, H., Vegter-van der Vlis, M., Niermaeijer, M., Frets, P., van d Kamp, J., Roos, R., Rooijmans, H., & Verhage, F. (1993b). Presymptomatic DNA testing for Huntington disease: Pretest attitudes and expectations of applicants and their partners in the Dutch program. American Journal of Medical Genetics, 48, 10-16.
18. Tibben, A., Duivenvooden, H., Vegter-van der Vlis, M., Niermaeijer, M., Frets, P., van d Kamp, J., Roos, R., Rooijmans, H., & Verhage, F. (1993a). Presymptomatic DNA testing for Huntington disease: Identifying the need for psychological intervention. American Journal of Medical Genetics, 48, 137-144.
19. Tsui, L., Buchwald, M., Barker, D., Braman, J., Knowlton, J., Schumm, J., Eiberg, H., Mohr, J., Kennedy, D., Plavsic, N., Zsiga, M., Markiewics, D., Akots, G., Browh, V., Helms, C., Gravius, T., Parker, C., Redliker, K., & Donis-Keller, H. (1985). Cystic fibrosis locus defined by a genetically linked polymorphic DNA marker. Science, 230, 1054-1057.
20. Vernon, S., Gritz, E., Peterson, S., Amos, C., Perz, C., Baile, W., & Lynch, P. (1997). Correlates of psychologic distress in colorectal cancer patients undergoing genetic testing for hereditary colon cancer. Health Psychology, 16, 73-86.
21. Weir, R., & Horton, J. (1995). DNA banking and informed consent-Part 1. IRB: A Review of Human Subjects Research, 17, 1-4.
22. Williams, J. K., & Schutte, D. (1997). Benefits and burdens of genetic carrier identification. Western Journal of Nursing Research, 19, 71-81.