Stressors in Families with a Child with a Chronic Condition: An Analysis of Qualitative Studies and a Framework

Canadian Journal of Nursing Research

Volumn 30, Issue 1, 1998, Pages 71-95

  Burke, Sharon Ogden ^a   Kauffmann, Elizabeth ^a   Costello, Edith ^a   Wiskin, Nesta ^b   Harrison, Margaret B ^c  

^a QUEEN S UNIVERSITY   (Canada)

^b Ontario Easter Seal Society ^*

^c UNIVERSITY OF OTTAWA   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CHILD; CHILD PSYCHOLOGY; CHRONIC DISEASE; CLINICAL TRIAL; FAMILY; HUMAN; MENTAL STRESS; META ANALYSIS; METHODOLOGY; MODEL; NURSING; NURSING METHODOLOGY RESEARCH; PSYCHOLOGICAL ASPECT; RISK FACTOR;

ADULT; CHILD; CHILD PSYCHOLOGY; CHRONIC DISEASE; FAMILY; HUMANS; MODELS, NURSING; NURSING METHODOLOGY RESEARCH; RESEARCH DESIGN; RISK FACTORS; STRESS, PSYCHOLOGICAL;

EID: 0032015102     PISSN: 08445621     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (50)

1. Allen, N.L., Simone, J.A., & Wingenbach, G.F. (1994). Families with a ventilator-assisted child: Transitional issues. Journal of Perinatology, 14(1), 48-55.
2. Auslander, W.F., Bubb, J., Rogge, M., & Santiago, J.V. (1993). Family stress and resources: Potential areas of intervention in children recently diagnosed with diabetes. Health & Social Work, 18(2), 101-113.
3. Barnes, C.M., Bandak, A.G., & Beardslee, C.I. (1990). Content analysis of 186 descriptive case studies of hospitalized children. Maternal-Child Nursing Journal, 19(4), 281-296.
4. Burke, S.O., Costello, E. A., Handley-Derry, M., Kauffmann, E., & Dillon, M. (1997). Stress-point preparation for parents of repeatedly hospitalized children with chronic conditions. Research in Nursing and Health, 20, 475-485.
5. Burke, S.O., Handley-Derry, M., & Costello, E.A. (1989). Maternal stress and repeated hospitalizations of children who are physically disabled. Children's Health Care, 18, 82-90.
6. Burke, S.O., Kauffmann, E., Costello, E.A., & Dillon, M.C. (1991). Hazardous secrets and reluctantly taking charge: Parenting a child with repeated hospitalizations. Image: Journal of Nursing Scholarship, 23(1), 39-45.
7. Burke, S.O., Kauffmann, E. Harrison, M.B., & Wiskin, N. (1995). Children with chronic illnesses and their parent in the community. In M.J. Stewart (Ed.), Community nursing: Promoting Canadian health (pp. 284-313). Toronto: W.B. Saunders.
8. Burke, S.O., Kauffmann, E., Harrison, M.B., & Wiskin, N. (In press). Assessment of stressors in families with a child who has a chronic condition. MCN: The Journal of Maternal Child Nursing.
9. Burke, S.O., & Roberts, C.A. (1990). Nursing research and the care of chronically ill and disabled children. Journal of Pediatric Nursing, 5(5), 316-327.
10. Canam, C. (1986). Talking about cystic fibrosis within the family - what parents need to know. Issues in Comprehensive Pediatric Nursing, 9, 167-178.
11. Cohen, M.H. (1993). The unknown and the unknowable - managing sustained uncertainty. Western Journal of Nursing Research, 15(1), 77-96.
12. Cooper, H.A. (1989). Integrating research: A guide for literature reviews. Newbury Park, CA: Sage.
13. Deatrick, J.A., & Knafl, K.A. (1990). Management behaviors: Day-to-day adjustments to childhood chronic conditions. Journal of Pediatric Nursing, 5(1), 15-22.
14. Deatrick, J.A., Knafl, K.A., & Guyer, K. (1993). The meaning of caregiving behaviors: Inductive approaches to family theory development. In S.L. Feetham, S.B. Meister, J.M. Bell, & C.L. Gilliss (Eds.), The nursing of families: Theory, research education, practice (pp. 38-45). Newbury Park, CA: Sage.
15. Deatrick, J.A., Knafl, K.A., & Walsh, M. (1988). The process of parenting a child with a disability: Normalization through accommodations. Journal of Advanced Nursing, 13, 15-21.
16. Erickson, M.L. (1976). Assessment and management of developmental changes in children. St. Louis: Mosby.
17. Feeley, N. (1991), modified from Gottlieb, L. (1986). Categories of health concerns: RCT nursing intervention. Unpublished document, McGill University School of Nursing, Montreal, Quebec.
18. Harrison, M.B., Burke, S.O., Kauffmann, E., Doyle, D., & Handley-Derry, M. (1990). Feasibility study for a clinical trial of stress-point preparation for children experiencing extended and repeated hospitalizations. Unpublished study proposal. Children's Hospital of Eastern Ontario Research Institute, Ottawa, Ontario.
19. Hodges, L.C., & Parker, J. (1987). Concerns of parents with diabetic children. Pediatric Nursing, 13(1), 22-24, 68.
20. Holroyd, J. (1987). Questionnaire on resources and stress for families with chronically ill or handicapped members. Brandon, VT: Clinical Psychology Publishing.
21. Horner, M.M., Rawlins, P., & Giles, K. (1987, Jan./Feb.). How parents of children with chronic conditions perceive their own needs. American Journal of Maternal/Child Nursing, 12, 40-43.
22. Hymovich, D.P. (1984). Assessing the impact of chronic childhood illness on family and parent coping. Image: Journal of Nursing Scholarship, 13, 71-74.
23. Hymovich, D.P. (1988, May). Assessment of parent pscyhosocial situational tasks and stressors. Unpublished materials from Workshop at International Family Nursing Conference, Calgary, Alberta.
24. Hymovich, D.P., & Baker, C.D. (1985). The needs, concerns and coping of parents of children with cystic fibrosis. Family Relations, 34, 91-97.
25. Hymovich, D.P., & Hagopian, G.A. (1992). Chronic illness in children and adults: A psychosocial approach. Toronto: W.B. Saunders.
26. Kauffmann, E., Harrison, M. B., Burke, S. O., & Wong, C. (In press). Stress-point intervention for parents of children hospitalized with chronic conditions. Pediatric Nursing.
27. Knox, J.E., & Hayes, V.E. (1983). Hospitalization of a chronically ill child: A stressful time for parents. Issues in Comprehensive Pediatric Nursing, 6, 217-226.
28. Krefting, L. (1991). Rigor in qualitative research: Trustworthiness. American Journal of Occupational Therapy, 45(3), 214-222.
29. Magyary, D., & Brandt, P. (1994). Evaluation of an intervention designed to enhance family management and health outcomes of children with chronic health conditions. Proceedings of the Third International Family Nursing Conference (p. 53). Montreal: McGill University School of Nursing.
30. McCubbin, H.I., McCubbin, M.A., Patterson, J.M., Cauble, A.E., Wilson, L.R., & Warwick, W. (1983, May). CHIP - Coping Health Inventory for Parents: An assessment of parental coping patterns in the care of the chronically ill child. Journal of Marriage and the Family, 45, 359-370.
31. Morse, J.M., &. Johnson, J.L. (1991). Toward a theory of illness: The illness-constellation model. In J. M. Morse & J. L. Johnson (Eds.), The illness experience: Dimensions of suffering (pp. 315-342). Newbury Park, CA: Sage.
32. Noblit, G.W., & Hare, R.D. (1988). Meta-ethnography: Synthesizing qualitative studies. Newbury Park, CA: Sage.
33. Patterson, J.M., McCubbin, H.I., & Warwick, W.J. (1990). The impact of family functioning on health changes in children with cystic fibrosis. Social Science & Medicine, 31(2), 159-164.
34. Perrin, E.C., Newacheck, P., Pless, I.B., Drotar, D., Gortmaker, S.L., Leventhal, J., Perrin, J.M., Stein, R.E.K., Walker, D.K., & Weitzman, M. (1993). Issues involved in the definition and classification of chronic health conditions. Pediatrics, 91, 787-793.
35. Petr, C.G., & Barney, D.D. (1993). Reasonable efforts for children with disabilities: The parents' perspective. Social Work, 38(3), 247-254.
36. Pless, I.B., Feeley, N., Gottlieb, L., Rowat, K., Dougherty, G., & Willard, B. (1994). A randomized trial of a nursing intervention to promote the adjustment of children with chronic physical disorders. Pediatrics, 94(1), 70-75.
37. Robinson, C.A. (1987, Fall). Roadblocks to family-centered care when a chronically ill child is hospitalized. Maternal-Child Nursing Journal, 16(3), 181-193.
38. Shaw, O.S., & Emery, R.E. (1988). Chronic family adversity and school-age children's adjustment. Journal of the American Academy of Child and Adolescent Psychiatry, 27(2), 200-206.
39. Snowdon, A.W., Cameron, S., & Dunham, K. (1994). Relationships between stress, coping resources, and satisfaction with family functioning in families of children with disabilities. Canadian Journal of Nursing Research, 26(3), 63-76.
40. Strauss, A.L, & Corbin, J.M. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.
41. Strauss, S.S., & Munton, M. (1985). Common concerns of parents with disabled children. Pediatric Nursing, 11, 371-375.
42. Thorne, S.E. (1994). Secondary analysis in qualitative research: Issues and implications. In J.M. Morse (Ed.), Critical issues in qualitative research methods (pp. 263-279). Newbury Park, CA: Sage.
43. Thorne, S.E., & Robinson, C.A. (1988a). Health care relationships: The chronic illness perspective. Research in Nursing & Health, 11, 293-300.
44. Thorne, S.E., & Robinson, C.A. (1988b). Reciprocal trust in health care relationships. Journal of Advanced Nursing, 13, 782-789.
45. Thorne, S.E., & Robinson, C.A. (1989). Guarded alliance: Health care relationships in chronic illness. Image: Journal of Nursing Scholarship, 21(3), 153-157.
46. Venters, M. (1981). Familial coping with chronic and severe childhood illness: The case of cystic fibrosis. Social Science & Medicine, 15A, 289-297.
47. Visintainer, M.A., & Wolfer, J.A. (1975). Psychological preparation for surgical pediatric patients: The effect on children's and parents' stress responses and adjustment. Pediatrics, 56, 187-202.
48. Werner, J.S. (1993). Stressors and health outcomes: Synthesis of nursing research, 1980-1990. In J.S. Barnfather & B.L. Lyon (Eds.), Stress and coping: State of the science and implications for nursing theory, research and practice. Indianapolis: Sigma Theta Tau International.
49. Young, L.Y., Creighton, D.E., & Sauve, R.S. (1988). The needs of families of infants discharged home with continuous oxygen therapy. Journal of Obstetric, Gynecologic, and Neonatal Nursing, May/June, 187-193.
50. Zelle, R.S., & Coyner, A.B. (1983). Developmentally disabled infants and toddlers: Assessment and intervention. Philadelphia: Davis.