Quality of life and psychosocial adjustment in patients with myelodysplastic syndromes

Leukemia Research

Volumn 22, Issue SUPPL. 1, 1998, Pages

  Thomas, Mary Laudon ^a  

^a VA PALO ALTO HEALTH CARE SYSTEM   (United States)

Author keywords

Fatigue; Myelodysplastic syndromes; Quality of life; Uncertainty

Indexed keywords

ACUTE LEUKEMIA; AGED; BLEEDING; CONFERENCE PAPER; CYTOPENIA; FATIGUE; HUMAN; INFECTION; MYELODYSPLASTIC SYNDROME; PRIORITY JOURNAL; QUALITY OF LIFE; SOCIAL PSYCHOLOGY;

ADAPTATION, PSYCHOLOGICAL; AGING; FATIGUE; HUMANS; MYELODYSPLASTIC SYNDROMES; QUALITY OF LIFE; SOCIAL SUPPORT;

EID: 0031849544     PISSN: 01452126     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0145-2126(98)00055-1     Document Type: Conference Paper

References (45)

1. Greenberg P. Myelodysplastic syndromes. In: Hoffman R et al, editors. Hematology: Basic Principles and Practice. New York: Churchill Livingstone, 1995:1098-1121.
2. Fenaux P. Myelodysplastic syndromes. Hematol Cell Ther 1996;38:363-80.
3. Lowenthal RM, Marsden KA. Myelodysplastic syndromes. Int J Hematol 1997;65:319-38.
4. Cella D. Measuring quality of life in palliative care. Semin Oncol 1995;22(2 (suppl 3):73-81.
5. Ferrell BR, Dow KH, Grant M. Measurement of the quality of life in cancer survivors. Qual Life Res 1995;4:523-31.
6. Cella DF, Tulsky DS. Quality of life in cancer: definition, purpose, and method of measurement. Cancer Invest 1993;11:327-36.
7. Aaronson NK et al. The EORTC core quality-of-life questionnaire: interim results of an international field study. In: Osoba D, editor. Effect of Cancer on Quality of Life. Boca Raton, FL: CRC Press, 1991:185-203.
8. Osoba D. Current applications of health-related quality-of-life assessment in oncology. Support Care Cancer 1997;5:100-4.
9. Health Services Research Committee, American Society of Clinical Oncology. Outcomes of cancer treatment for technology assessment and cancer treatment guidelines. J Clin Oncol 1996;14:671-9.
10. Guyatt GH, Feeny DH, Patrick DL. Measuring health-related quality of life. Ann Intern Med 1993;118:622-9.
11. Clark A, Fallowfield LJ. Quality of life measurements in patients with malignant disease: a review. J R Soc Med 1986;79:165-9.
12. Van Knippenberg FC, de Haes JC. Measuring the quality of life of cancer patients: psychometric properties of instruments. J Clin Epidemiol 1988;41:1043-53.
13. Hutchinson TA, et al. Scientific problems in clinical states as demonstrated in the Karnofsky index of performance status. J Chron Dis 1979;32:661-6.
14. Aul C, Gattermann N, Schneider W. Age-related incidence and other epidemiological aspects of myelodysplastic syndromes. Br J Hematol 1992;82:358-67.
15. Yanick R, Ries LA. Cancer in older persons: magnitude of the problem: how do we apply what we know? Cancer 1994;74:1995-2003.
16. Trimble EL, Carter CL, Cain D, Freidlin B, Ungerleider RS, Friedman MA. Representation of older patients in cancer treatment trials. Cancer 1994;74:2208-14.
17. McKenna RJ. Clinical aspects of cancer in the elderly: treatment decisions, treatment choices, and follow-up. Cancer 1994;74:2107-17.
18. Mor V, Allen S, Malin M. The psychosocial impact of cancer on older versus younger patients and their families. Cancer 1994;74:2118-27.
19. Havlik RJ, Yanick R, Long S, Ries L, Edwards B. The National Institute on Aging and the National Cancer Institute SEER collaborative study on comorbidity and early diagnosis of cancer in the elderly. Cancer 1994;74:2101-6.
20. Welch HG, Albertsen PC, Nease RF, Bubolz TA, Wasson JH. Estimating treatment benefits for the elderly: the effect of competing risks. Ann Intern Med 1996;124:577-84.
21. Cohen HJ. Biology of aging as related to cancer. Cancer 1994;74:2092-100.
22. Cella D. The Functional Assessment of Cancer Therapy-Anemia (FACT-An) scale: a new tool for the assessment of outcomes in cancer anemia and fatigue. Semin Hematol 1997;34(3 suppl 2):13-9.
23. Vogelzang NJ, et al. Patient, caregiver, and oncologist perceptions of cancer-related fatigue: results of a tripart assessment survey. Semin Hematol 1997;34(3 (suppl 2):4-12.
24. Nall LM, Winningham ML. Fatigue and weakness in cancer patients: the symptom experience. Semin Oncol Nurs 1995;11:272-8.
25. Glaus A. Assessment of fatigue in cancer and non-cancer patients and in healthy individuals. Support Care Cancer 1993;1:305-15.
26. Ream E, Richardson A. Fatigue in patients with cancer and chronic obstructive airways disease: a phenomenological inquiry. Int J Nurs Stud 1997;34(1):44-53.
27. Ferrell BR, Grant M, Dean GE, Funk B, Ly J. Bone tired: the experience of fatigue and its impact on quality of life. Oncol Nurs Forum 1996;23:1539-47.
28. Hickie I, Lloyd A, Wakefield D, Ricci C. Is there a postinfection fatigue syndrome? Australian Family Physician 1996;25:1847-52.
29. Jones EA, Bolyard AA, Dale DC. Quality of life with severe chronic neutropenia receiving long-term treatment with granulocyte colony-stimulating factor. J Am Med Assoc 1993;270:1132-3.
30. Vellenga E, et al. Randomized placebo-controlled trial of granulocyte-macrophage colony-stimulating factor in patients with chemotherapy-related febrile neutropenia. J Clin Oncol 1996;14:619-27.
31. Mishel MH. Uncertainty in illness. Image 1988;20:225-32.
32. Mishel MH. The measurement of uncertainty in illness. Nurs Res 1981;30:258-63.
33. Mishel MH, Hostetter T, King B, Graham V. Predictors of psychological adjustment in patients newly diagnosed with gynecological cancer. Cancer Nurs 1984;7:291-9.
34. Selder F. Life transition theory: the resolution of uncertainty. Nurs Health Care 1989;10:437-51.
35. Cohen MH. The unknown and the unknowable: managing sustained uncertainty. West J Nurs Res 1993;15:77-96.
36. Staples P, Jeffrey J. Quality of life, hope, and uncertainty of cardiac patients and their spouses before coronary artery bypass surgery. Can J Cardiovasc Nurs 1997;8:7-16.
37. Haberman M. The meaning of cancer therapy: bone marrow transplant as an exemplar of therapy. Semin Oncol Nurs 1995;11:23-31.
38. Cohen SR, Mount BM, Tomas J, Mount LF. Existential wellbeing is an important determinant of quality of life. Cancer 1996;77:577-86.
39. Barr JT. The outcomes movement and health status measures. J Allied Health Winter 1995;24(1):13-28.
40. Cella DF. Methods and problems in measuring quality of life. Support Care Cancer 1995;3:11-22.
41. Donovan K, Sanson-Fisher RW, Redman S. Measuring quality of life in cancer patients. J Clin Oncol 1989;7:959-68.
42. Greenberg P, et al. International scoring system for evaluating prognosis in myelodysplastic syndromes. Blood 1997;89:2079-88.
43. Feifel H. Psychology and death: meaningful rediscovery. In: DeSpelder LA, Strickland AL, editors. Readings in Death and Dying: The Path Ahead. Mountain View, CA: Mayfield, 1995:19-28.
44. Shipper H, Levitt M. Measuring quality of life: risks and benefits. Cancer Treat Rep 1985;69:1115-23.
45. Gough IR, Furnival CM, Schilder L, Grove W. Assessment of the quality of life of patients with advanced cancer. Eur J Cancer Clin Oncol 1983;19:1161-5.