Adoption and fostering of babies with down syndrome: A cohort of 593 cases

Prenatal Diagnosis

Volumn 18, Issue 5, 1998, Pages 437-445

  Dumaret, Annick Camille ^a   De Vigan, Catherine ^a   Julian Reynier, Claire ^b   Goujard, Janine ^a   Rosset, Dominique ^c   Aymé, Ségolène ^a  

^a INSERM   (France)

^b INSTITUT PAOLI CALMETTES   (France)

^c DASES   (France)

Author keywords

Down syndrome; Foster care; Human adoption

Indexed keywords

ADOPTION; ARTICLE; BIRTH ORDER; CULTURAL FACTOR; DOWN SYNDROME; FOSTER CARE; FRANCE; HUMAN; INFANT; MATERNAL AGE; MULTIPLE REGRESSION; NEWBORN; PRIORITY JOURNAL; RETROSPECTIVE STUDY; SOCIAL DESIRABILITY;

ADOLESCENT; ADOPTION; ADULT; COHORT STUDIES; FOSTER HOME CARE; FRANCE; HUMANS; INFANT, NEWBORN; MATERNAL AGE; OCCUPATIONS; RETROSPECTIVE STUDIES; SOCIAL CLASS;

EID: 0031837034     PISSN: 01973851     EISSN: None     Source Type: Journal    
DOI: 10.1002/(SICI)1097-0223(199805)18:5<437::AID-PD278>3.0.CO;2-W     Document Type: Article

References (35)

1. Ben-Neria, Z., Nissani, R., Chemke, J. (1986). Down's syndrome: denial of infant rights and the chance to live, Harefuah, 111, 67-68.
2. Berry, P., Gunn, P., Andrews, R., Price, C. (1981). Characteristics of DS infants and their families, Aust. Paediatr. J., 17, 40-43.
3. Brookes, M.A., Alberman, E. (1996). Early mortality and morbidity in children with Down's syndrome diagnosed in two regional heatlh authorities in 1989, J. Med. Screening, 3, 7-11.
4. Carr, E.F., Oppé, T.E. (1971). The birth of an abnormal child, telling the parents, Lancet, 2, 1075-1077.
5. Carr, J. (1975). Young Children with Down's Syndrome, London: Butterworth.
6. Carr, J. (1988). Six weeks to twenty one years old, a longitudinal study of children with Down's syndrome and their families, J. Child Psychol. Psychiatry, 29, 407-431.
7. Circulaire interministérielle (1985). Accueil de l'enfant né avec un handicap. Rôle des maternités, Journal Officiel, 23 December.
8. Cunningham, C., Sloper, P. (1977). Parents of Down's syndrome babies, their early needs, Child Care Health Dev., 3, 325-348.
9. Cunningham, C., Morgan, P.A., McGucken, R.B. (1984). Down's syndrome, is dissatisfaction with disclosure of diagnostic inevitable?, Dev. Med. Child Neurol., 26, 33-39.
10. Dumaret, A.C., Rosset, DJ. (1993). Trisomie 21 et abandon: enfants nés et remis en vue d'adoption à Paris, Arch. Fr. Pediatr., 50, 851-857.
11. Dumaret, A.C., Donnelly, A., Rosset, D.J. (1996). Annonce de la trisomie 21 et accueil en maternité: les propositions faites aux parents, J. Gynecol. Obstet. Biol. Reprod., 25, 629-635.
12. Elkins, T.E., Crutcher, D., Spinnato, J., et al. (1985). Baby Doe: is there really a problem?, Obstet. Gynecol., 65, 492-495.
13. Emde, R.N., Brown, C. (1978). Adaptation to the birth of a Down's syndrome infant, Am. Acad. Child Psychiatry, 17, 299-323.
14. Gath, A. (1985). Parental reactions to loss and disappointment: the diagnosis of Down's syndrome, Dev. Med. Child Neurol., 27, 392-400.
15. Gath, A., Gumley, D. (1984). Down's syndrome and the family: follow-up of children first seen in infancy, Dev. Med. Child Neural., 26, 500-508.
16. Gayton, W.F., Walker, L. (1974). Down's syndrome: informing the parents, Am. J. Dis. Child., 127, 510-512.
17. Geller, G., Tambor, E.S., Papiernik, E. (1993). Attitudes toward abortion for fetal anomaly in the second vs. the third trimester: a survey of Parisian obstetricians, Prenat. Diagn., 13, 707-722.
18. Halliday, J.L., Watson, L.F., Lumley, J., Danks, D.M., Sheffield, L.J. (1995). New estimate of Down's syndrome risks at chorionic villus sampling, amniocentesis, and livebirth in women of advanced maternal age from a uniquely defined population. Prenat. Diagn., 15, 455-4165.
19. Julian, C., Huard, P., Gouvernet, J., Mattei, J.F., Aymé, S. (1989). Physicians' acceptability of termination of pregnancy after prenatal diagnosis in southern France, Prenat. Diagn., 9, 77-89.
20. Julian-Reynier, C., Macquart-Moulin, G., Moatti, J.P., Loundou, A., Aurran, Y., Chabal, F., Aymé, S. (1993). Attitudes of women of childbearing age towards prenatal diagnosis in southeastern France, Prenat. Diagn., 13, 613-627.
21. Julian-Reynier, C., Aurran, Y., Dumaret, A., Maron, A., Chabal, F., Giraud, F., Aymé, S. (1995). Attitudes towards Down's syndrome: follow-up of a cohort of 280 cases, J. Med. Genet., 32, 597-599.
22. Lechat, M.F. (1992). The concerted action of the EEC for the epidemiological surveillance of congenital anomalies (EUROCAT), Eur. J. Obstet. Gvnecol. Reprod. Biol., 44, 1-20.
23. Lucas, P.J., Lucas, A.M. (1980). Down's syndrome: breaking the news to Irish parents, J. Irish Med. Assoc., 3, 248-252.
24. Murdoch, A. (1984). Immediate postnatal management of the mothers of Down's syndrome and spina bifida children in Scotland, 1971-1981, J. Ment. Defic. Res., 28, 67-72.
25. Murdoch, J.C., Anderson, V.E. (1990). The management of Down's syndrome children and their families in general practice. In: Fraser, W.I. (Ed.). Key Issues in Mental Retardation Research, London: Routledge.
26. Murdoch, J.C., Gurr, E. (1991). Communication of the diagnosis of Down's syndrome in New Zealand, 1972-88, N. Z Med. J., 104, 361-363.
27. Pueschel, S.M. (1985). Changes of counselling practices at the birth of a child with Down's syndrome, Appl. Res. Ment. Retard., 6, 99-108.
28. Pueschel, S.M., Murphy, A. (1976). Assessment of counselling practices at the birth of a child with Down's syndrome, Am. J. Ment. Defic., 81, 325-330.
29. Pueschel, S.M., Monteiro, L.A., Erickson, M. (1986). Parents' and physicians' perceptions of facial plastic surgery in children with Down's syndrome, J. Ment. Defic. Res., 30, 71-79.
30. Quine, L., Pahl, J. (1987). First diagnosis of severe handicap: a study of parental reactions, Dev. Med. Child Neurol., 29, 232-242.
31. Renaud, M., Bouchard, L., Kremp, O., Dallaire, L., Labadie, J.F., Bisson, J., Trugeon, A. (1993). Is selective abortion for a genetic disease an issue for the medical profession? A comparative study of Quebec and France, Prenat. Diagn., 13, 691-706.
32. Richard, N.B. (1986). Interaction between mothers and infants with Down's syndrome: infants characteristics, Top. Early Child Spec., 6, 54-71.
33. Shepperdson, B. (1983). Abortion and euthanasia of Down's syndrome children - the parents' view, J. Med. Ethics, 9, 152-157.
34. Sloper, P., Knussen, C., Turner, S., Cunningham, C. (1991). Factors related to stress and satisfaction with life in families of children with Down's syndrome, J. Child Psychol. Psychiatry, 32, 655-676.
35. Springer, A., Steele, M.W. (1980). Effects of physicians' early parental counselling on rearing of Down's syndrome children, Am. J. Ment. Defic., 85, 1-5.