The impact of pituitary disease on the family caregiver and overall family functioning

Psychotherapy and Psychosomatics

Volumn 67, Issue 3, 1998, Pages 181-188

  Weitzner, Michael A ^a   Knutzen, Robert ^b  

^a H LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE   (United States)

^b Pituitary Tumor Network Association   (United States)

Author keywords

Family; Pituitary disease; Psychological adaptation; Stress

Indexed keywords

ADAPTATION; CAREGIVER; COPING BEHAVIOR; FAMILY LIFE; HUMAN; HYPOPHYSIS DISEASE; MENTAL STRESS; REVIEW; SATISFACTION; SOCIAL SUPPORT;

CAREGIVERS; FAMILY HEALTH; HUMANS; PITUITARY DISEASES; RESEARCH; STRESS, PSYCHOLOGICAL;

EID: 0031813098     PISSN: 00333190     EISSN: None     Source Type: Journal    
DOI: 10.1159/000012279     Document Type: Review

References (75)

1. Kane RA, Penrod J: Aging and Family Caregiving Policy. Newbury Park, Sage, 1995.
2. Pearlin LI, Mullan JT, Semple SJ, Skaff MM: Caregiving and the stress process: An overview of concepts and their measures. Gerontologist 1990;30:583-594.
3. Schulz R, Visintainer P, Williamson GM: Psychiatric and physical morbidity effects of caregiving. J Gerontol 1990;45:181-191.
4. Haley WE, Levine EG, Brown SL, Bartolucci AA: Stress, appraisal, coping, and social support as predictors of adaptational outcome among dementia caregivers. Psychol Aging 1987;2:323-330.
5. Gatz M, Bengston VL, Blum MJ: Caregiving families; in Birren JE, Schaie KW (eds): Handbook of the Psychology of Aging, ed 3. San Diego, Academic Press, 1990, pp 404-426.
6. Horwitz AV, Reinhard SC, Howell-White S: Caregiving as reciprocal exchange in families with seriously mentally ill members. J Health Soc Behav 1996;37:149-162.
7. Matson N: Coping, caring, and stress: A study of stroke carers and carers of older confused people. Br J Clin Psychol 1994;33:333-344.
8. Jones SL, Roth D, Jones PK: Effect of demographic and behavioral variables on burden of caregivers of chronic mentally ill persons. Psychiatr Serv 1995;46:141-145.
9. Dwyer JW, Coward RT: Gender, Families, and Elder Care. Newbury Park, Sage, 1992.
10. Schofield HL, Murphy B, Hermann HE. Bloch S, Singh B: Family caregiving: Measurement of emotional well-being and various aspects of the caregiving role. Psychol Med 1997;27:647-657.
11. Lazarus RS, Folkman S: Stress, Appraisal, and Coping. New York, Springer, 1984.
12. Vitaliano PP, Russo J, Young HM, Teri L, Maiuro RD: Predictors of burden in spouse caregivers of individuals with Alzheimer's disease. Psychol Aging 1991;6:392-402.
13. McGee RF: Overview: Psychosocial aspects of cancer; in Groenwald SL, Frogge MH, Goodman M, Yarbro CH (eds): Cancer Nursing: Principles and Practice. Boston, Jones & Bartlett, 1993, pp 437-448.
14. Jacobsen PB, Holland JC: The stress of cancer: Psychological responses to diagnosis and treatment; in Cooper CL, Watson M (eds): Cancer and Stress: Psychological, Biological, and Coping Studies. New York, Wiley, 1991, pp 147-169.
15. Hermann H, Schofield H, Murphy B, Singh B: The experiences and quality of life of informal caregivers; in Orley J, Kuyken W (eds): Quality of Life Assessment: International Perspectives. Berlin, Springer, 1994, pp 131-150.
16. Sales E, Schulz R, Bielal D: Predictors of strain in families of cancer patient: A review of the literature. J Psychosoc Oncol 1992;10:1-26.
17. Teri L, Truax P, Logsdon R, Uomoto J, Zant S, Vitaliano PP: Assessment of behavioral problems in dementia: The revised memory and behavior problems checklist. Psychol Aging 1992: 7:622-631.
18. O'Leary PA, Haley WE, Paul PB: Behavioral assessment in Alzheimer's disease: Use of a 24-hour log. Psychol Aging 1993;8:139-143.
19. Yang C, Kirschling JM: Exploration of factors related to direct care and outcomes of caregiving: Caregivers of terminally ill older persons. Cancer Nurs 1992;15:173-181.
20. Blank JJ, Longman AJ, Atwood JR: Perceived home care needs of cancer patients and their caregivers. Cancer Nurs 1989;12:78-84.
21. Stetz KN: Caregiving demands during advanced cancer. Cancer Nurs 1987;10:260-268.
22. Aneshendel CS, Pearlin LI, Mullan JT, Zarit SH, Whitlatch CJ: Profiles in Caregiving: The Unexpected Career. San Diego, Academic Press, 1995.
23. Zarit SH: Issues and directions in family intervention research; in Light E, Lebowitz BD (eds): Alzheimer's Disease Treatment and Family Stress: Directions for Research. National Institute of Mental Health. DHHS publication No. ADM-89-1569. Washington, 1989.
24. Niedereche G, Fruge E: Dementia and family dynamics: Clinical research issues. J Geriatr Psychiatry 1984;17:21-56.
25. Haley WE, Brown SL, Levine EG: Family caregiver appraisals of patient behavioral disturbance in senile dementia. Clin Gerontol 1987; 6:25-34.
26. Haley WE, Roth DL, Coleton MI, Ford GR, West CAC, Collins RP, Isobe TL: Appraisal, coping, and social support as mediators of well-being in Black and White Alzheimer's family caregivers. J Consult Clin Psychol 1996;64:121-129.
27. Moos RH, Cronkite R, Billings A, Finney J: Health and Daily Living Form Manual. Palto Alto, Social Ecology Laboratory, Stanford University and Department of Veteran's Affairs Medical Centers, 1984.
28. Clark JC, Gwin RR: Psychosocial responses of the family; in Groenwald SL, Frogge MH, Goodman M, Yarbro CH (eds): Cancer Nursing: Principles and Practice. Boston, Jones & Bartlett, 1993, pp 468-483.
29. Hull MM: Coping strategies of family caregivers in hospice homecare. Oncol Nurs Forum 1992; 19:1179-1187.
30. Kurtz ME, Kurtz JC, Given CW, Given B: Relationship of caregiver reactions and depression to cancer patients' symptoms, functional states and depression - a longitudinal view. Soc Sci Med 1995;40:837-846.
31. Given CW, Stommel M, Given B, Osuch J, Kurtz ME, Kurtz JC: The influence of cancer patients' symptoms and functional states on patients' depression and family caregivers' reaction to depression. Health Psychol 1996;12:277-285.
32. Sarason BR, Sarason IG, Pierce: Social Support: An Interactional View. New York, Wiley, 1990.
33. Haley WE, Levine EG, Brown SL, Berry JW, Hughes GH: Psychological, social, and health consequences of caring for a relative with senile dementia. J Am Geriatr Soc 1987;35:405-411.
34. Haley WE, West CAC, Wadley VG, Ford GR, White FA, Barrett JJ, Harrell LE, Roth DL: Psychological, social, and health impact of caregiving: A comparison of Black and While dementia family caregivers and noncaregivers. Psychol Aging 1995:10:540-552.
35. Bodnar JC, Kiecolt-Glaser JK: Caregiver depression after bereavement: Chronic stress isn't over when it's over. Psychol Aging 1994;9:373-380.
36. McNally JC: Home care: in Groenwald SL, Frogge MH, Goodman M, Yarbro CH (eds): Cancer Nursing: Principles and Practice. Boston. Jones & Bartlett. 1993, pp 1403-1431.
37. Hinds C: The needs of families who care for patients with cancer at home: Are we meeting them? J Adv Nurs 1985;10:575-581.
38. Northouse LL: Social support in patients' and husbands' adjustment to breast cancer. Nurs Res 1988;37:91-95.
39. Ell K, Michimoto R, Mantell J, Hamovitch M: Longitudinal analysis of psychosocial adaptation among family members of patients with cancer. J Psychosom Res 1988;32:429-438.
40. Mor V, Allen S, Malin M: The psychosocial impact of cancer in older versus younger patients and their families. Cancer 1994; 74(suppl 7):2118-2127.
41. Litman TJ: The family as the basic unit in health and medical care. Soc Sci Med 1974;8:495-519.
42. Covinsky KE, Goldman L, Cook EF, Oye R, Desbiens N, Reding D, Fulkerson W. Connors AF, Lynn J, Phillips RS: The impact of serious illness on patients' families. J Am Med Assoc 1994:272:1839-1844.
43. McCubbin H, Figley C: Stress and the Family, vol 1. Coping with Normative Transitions. New York, Brunner/Mazel, 1983.
44. Minuchin P, Minuchin S: Family as the context for patient care; in Bernstein LH, Grieco AJ, Dete M (eds): Primary Care in the Home. Philadelphia, Lippmcott, 1987, pp 83-94.
45. Northouse LL: The impact of cancer on the family: A review. Int J Psychiatry Med 1984;14: 215-242.
46. Turk DC, Kerns RD: The family in health and illness; in Turk DC, Kerns RD (eds): Health, Illness, and Families: A Life-Span Perspective. New York, Wiley, 1985, pp 1-22.
47. Eisenberg MG, Sutkin LC, Jansen MA: Chronic illness and disability through the life span: Effects on self and family; in Backer TE (ed): Springer Series on Rehabilitation, vol 4. New York, Springer, 1984.
48. Rait D, Lederberg M: The family of the cancer patient; in Holland JC, Rowland JH (eds): Handbook of Psychooncology: Psychological Care of the Patient with Cancer. New York, Oxford University Press, 1990. pp 585-597.
49. Weihs K, Reiss D: Family reorganization in response to cancer: A developmental perspective; in Baider L, Cooper CL, Kaplan De-Nour A (eds): Cancer and the Family. New York, Wiley, 1996, pp 3-29.
50. Schuler D, Bakos C, Zsambor C, Polcz A, Koos R, Kardos G, Revcsz T: Psychosocial problems in families of a child with cancer. Med Pediatr Oncol 1985;13:173-179.
51. Koocher GP: Coping with a death from cancer. J Consult Clin Psychol 1986;54:623-631.
52. Koocher GP: Psychosocial issues during the acute treatment of pediatric cancer. Cancer 1986;58:468-472.
53. Spinetta JJ: Development of psychometric assessment methods by life cycle stages. Cancer 1984;53:2222-2227.
54. Spinetta JJ: Measurement of family function, communication, belief, and cultural effects. Cancer 1984;53:2330-2360.
55. Sargent J: Physician-family therapist collaboration: Children with medical problems. Fam Systems Med 1985;3:454-465.
56. Kleinman A: The Illness Narratives. New York, Basic Books, 1988.
57. Bowen M: Family Therapy in Clinical Practice. New York, Jason Aronson, 1978.
58. Mullins HC, Christis-Seely J: Collecting and recording Family data: The genogram; in Christie-Seely J (ed): Working with the Family in Primary Care: A Systems Approach to Health and Illness. New York, Praeger, 1991, pp 179-191.
59. Rolland JS: Families, Illness, and Disability: An Integrative Treatment Model. New York, Basic Books, 1994.
60. Bluebond-Langner M: The Private Worlds of Dying Children. Princeton, Princeton University Press, 1978.
61. Sourkes B: Facilitating family coping with childhood cancer. J Pediatr Cancer 1977;2:65-67.
62. Koocher GP, O'Malley J: The Damocles Syndrome: Psychological Consequences of Surviving Childhood Cancer. New York, McGraw-Hill, 1981.
63. Penn P: Coalitions and binding interactions in families with chronic illness. Fam Systems Med 1983;1:16-25.
64. Walker G: The pact: The caretaker/ill-child coalition in families with chronic illness. Fam Systems Med 1983;1:6-29.
65. Adams M: Helping the parents of children with malignancy. J Pediatr 1978;93:734-738.
66. Campbell JJ, Duffy JD, Salloway SP: Treatment strategies for patients with dysexecutive syndromes. J Neuropsychiatry Clin Neurosci 1994; 6:411-417.
67. Epslein NB, Bishop DS: Problem centered systems therapy of the family; in Gurman A, Kniskern D (eds): Handbook of Family Therapy. New York, Brunner/Mazel, 1981. pp 444-482.
68. Campbell JJ, Duffy JD: Treatment strategies in amotivated patients. Psychiatr Ann 1997;27:44-49.
69. Zarit SH, Orr NK, Zarit JM: The Hidden Victims of Alzhcimer's Disease: Families under Stress. New York, New York University Press. 1985.
70. Knight BG, Lutzky SM, Macofsku-Urban F: A meta-analytic review of interventions for caregiver distress: Recommendations for future research. Gerontologist 1993;33:240-248.
71. Gallagher-Thompson D, DeVries H: 'Coping with frustration' classes: Development and preliminary outcomes with women who care for relatives with dementia. Gerontologist 1994;34: 548-552.
72. Mittleman MS, Ferris SH, Steinberg G, Schulman E, Mackell JA, Ambinder A, Cohen J: An intervention that delays institutionalization of Alzheimer's disease patients: Treatment of spouse-caregivers. Gerontologist 1993;33:730-740.
73. Lawton MP, Brody EM, Saperstein AR: Respite for Caregivers of Alzheimer's Patients: Research and Practice. New York, Springer, 1991.
74. Goldberg RJ, Wool MS: Psychotherapy for the spouses of lung cancer patients: Assessment of an intervention. Psychother Psychosom 1985; 43:141-150.
75. Toseland RW, Blanchard CG, McCallion P: A problem solving intervention for caregivers of cancer patient. Soc Sci Med 1995;40:517-528.