Defining quality of care for children and adolescents with type 1 diabetes

Acta Paediatrica, International Journal of Paediatrics, Supplement

Volumn 87, Issue 425, 1998, Pages 11-19

  Daneman, D ^a   Frank, M ^a  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

Author keywords

Declaration of Kos; Evidence based medicine; HbA(1c); Quality of care

Indexed keywords

HEMOGLOBIN A1C;

ADOLESCENT DISEASE; CHILDHOOD DISEASE; CLINICAL PRACTICE; CONFERENCE PAPER; COST EFFECTIVENESS ANALYSIS; HEALTH CARE COST; HEALTH CARE QUALITY; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; PRACTICE GUIDELINE; PRIORITY JOURNAL; SOCIOECONOMICS;

EID: 0031784913     PISSN: 08035326     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1651-2227.1998.tb01245.x     Document Type: Conference Paper

References (45)

1. Consensus guidelines for the management of insulin-dependent (type 1) diabetes mellitus (IDDM) in childhood and adolescence (ISPAD and IDF). London: Freund Publishing House, 1995
2. American Diabetes Association. Clinical practice recommendations. Diabetes Care 1998; 21: S1-98
3. Expert Committee of the Canadian Diabetes Advisory Board. Clinical practice guidelines for treatment of diabetes mellitus. Can Med Assoc J 1992; 147: 697-712
4. Angell M, Kassirer JP. Quality and the medical marketplace - following elephants. N Engl J Med 1996; 335: 883-5
5. Blumenthal D. Quality of health care: Part 1: What is it? N Engl J Med 1996; 355: 891-4
6. American Medical Association Council of Medical Service. Quality of care. JAMA 1986; 256: 1032-4
7. Blumenthal D, Scheck AC, editors. Improving clinical practice. Total quality management and the physician. San Francisco, CA: Jossey-Bass, 1995
8. Shelton TL, Jeppson ES, Johnson BH. Family-centered care for children with special health care needs. Washington DC: Association for the Care of Children's Health, 1987
9. Donabedian A. Explorations in quality assessment and monitoring. Vol. 1. The definition of quality and approaches to its assessment. Ann Arbor, MI: Health Administration Press, 1980
10. Brook RH, McGlynn EA, Cleary PD. Quality of health care. Part 2: Measuring quality of care. N Engl J Med 1996; 335: 966-70
11. O'Connor GT, Plume SK, Olmstead EM, Morton JR, Maloney CT, Nugent WC, et al. A regional intervention to improve hospital mortality associated with coronary artery bypass graft surgery. JAMA 1996; 275: 841-6
12. Matsushima M, LaPorte RE, Maruyama M, Shimizu K, Nishimura R, Tajima N. Geographic variation in mortality among individuals with youth-onset diabetes mellitus across the world. DERI Mortality Study Group. Diabetologia 1997; 40: 212-6
13. Scibilia J, Finegold D, Dorman J, Becker D, Drash A. Why do children with diabetes die? Acta Endocrinol 1986; Suppl 279: 326-33
14. Sartor G, Dahlquist G. Short-term mortality in childhood onset insulin-dependent diabetes mellitus: a high frequency of unexpected deaths in bed. Diabetic Med 1995; 12: 607-11
15. Modan M, Karp M, Bauman B, Gordon O, Danon YL, Laron Z. Mortality in Israeli Jewish patients with type I (insulin-dependent) diabetes mellitus diagnosed prior to 18 years of age: a population based study. Diabetologia 1991; 34: 515-20
16. Snorgaard O, Eskildsen PC, Vadstrup S, Nerup J. Diabetic ketoacidosis in Denmark: epidemiology, incidence rates, precipitating factors and mortality rates. J Intern Med 1989; 226: 223-8
17. Basu A, Close CF, Jenkins D, Krentz AJ, Nattrass M, Wright AD. Persisting mortality in diabetic ketoacidosis. Diabetic Med 1993; 10: 782 (Comment)
18. Levitsky LL, Ekwo E, Goselink CA, Solomon IL, Aceto T. Deaths from diabetes in hospitalized children (1970-1988). Pediatr Res 1991; 29: 195A (Abstract)
19. Golden MP, Herrold AJ, Orr DP. An approach to prevention of recurrent diabetic ketoacidosis in the pediatric population. J Pediatr 1985; 107: 195-200
20. DCCT Research Group. Hypoglycemia in the Diabetes Control and Complications Trial. Diabetes 1997; 46: 271-86
21. Swift PG, Hearnshaw JR, Botha JL, Wright G, Raymond NT, Jamieson KF. A decade of diabetes: keeping children out of hospital. BMJ 1993; 307: 96-8
22. Wilson RM, Clarke P, Barkes H, Heller SR, Tattersall RB. Starting insulin treatment as an outpatient. Report of 100 consecutive patients followed up for at least one year. JAMA 1986; 256: 877-80
23. Spaulding RH, Spaulding WB. The diabetes day-care unit. II. Comparison of patients and costs of initiating insulin therapy in the unit and a hospital. Can Med Assoc J 1976; 114: 780-3
24. Chase HP, Crews KR, Garg S, Crews MJ, Cruickshanks KJ, Klingensmith G, et al. Outpatient management vs. in-hospital management of children with new-onset diabetes. Clin Pediatr 1992; 8: 450-6
25. Lee PD. An out-patient focused program for childhood diabetes: design, implementation, and effectiveness. Texas Med 1992; 88: 64-8
26. Schneider AJ. Starting insulin therapy in children with newly diagnosed diabetes. Am J Dis Child 1983; 137: 782-6
27. Lessing DN, Swift PG, Metcalfe MA, Baum JD. Newly diagnosed diabetes: a study of parental satisfaction. Arch Dis Child 1992; 67: 1011-3
28. Hamman RE, Cook M, Kufer S, Young W, Finch J, Lezotte D, et al. Medical care patterns at the onset of insulin-dependent diabetes mellitus: association with severity and subsequent complications. Diabetes 1985; Suppl 1: 94-100
29. Bruce DG, Clark EM, Danesi GA, Campbell LV, Chisholm DJ. Outpatient initiation of insulin therapy in patients with diabetes mellitus. Med J Aust 1987; 146: 19-22
30. Charron-Prochownik D, Maihle T, Siminerio L, Songer T. Outpatient versus inpatient care of children newly diagnosed with IDDM. Diabetes Care 1997; 20: 657-60
31. DCCT Research Group. Effect of intensive diabetes treatment on the development and progression of long-term complications in adolescents with insulin-dependent diabetes mellitus. The Diabetes Control and Complications trial. J Pediatr 1994; 125: 177-88
32. Banion C, Klingensmith G, Giardano B, Radcliffe J. Efficacy of outpatient management of new onset diabetes in children. Diabetes 1987; Suppl 1: 118A (Abstract)
33. Strock E, Spencer M, Sandell J, Hollander P. Reimbursement of an ambulatory insulin program. Diabetes 1987; Suppl 1: 33A (Abstract)
34. DCCT Research Group. The effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus. N Engl J Med 1993; 329: 977-86
35. DCCT Research Group. Feasibility of centralized measurements of glycated hemoglobin in the Diabetes Control and Complications Trial: a multicenter study. Clin Chem 1987; 33: 2267-71
36. Gillery P, Labbe D, Dumont G, Vassault A. Glycohemoglobin assays evaluated in a large-scale quality-control survey. Clin Chem 1995; 41: 1644-8
37. Kullberg CE, Bergström A, Dinesen B, Larsson L, Little RR, Goldstein DE, et al. Comparisons of studies on diabetic complications hampered by differences in GHb measurements. Diabetes Care 1996; 19: 726-9
38. Weykamp CW, Penders TJ, Miedema K, Muskiet FAJ, van der Slik W. Standardization of glycohemoglobin results and reference values in whole blood studied in 103 laboratories using 20 methods. Clin Chem 1995; 41: 82-6
39. Mortensen HB, Hougaard P, for the Hvidøre Study group on Childhood Diabetes. Comparison of metabolic control in a cross-sectional study of 2,873 children and adolescents with IDDM from 18 countries. Diabetes Care 1997; 20: 714-20
40. Daneman D, Knip M, Kaar M-L, Sochett E. Comparison of children with type 1 (insulin-dependent) diabetes in Northern Finland and Southern Ontario: differences at disease onset. Diabetes Res 1990; 14: 123-6
41. Hoffman RP, Tsalikian E. Lack of improvement in glycemic control following switch to multiple daily injection therapy in pediatric IDDM. J Pediatr Endocrinol Metabol 1996; 9 (Suppl 2): 35A (Abstract)
42. Lawson M, Fry M, Frank M, Ehrlich R, Perlman K, Sochett E, et al. Individual versus group education for intensive diabetes management in adolescents with IDDM. J Pediatr Endocrinol Metabol 1996; 9 (Suppl 2): 48A (Abstract)
43. Report from the Pediatric Diabetes Subcommittee to the Diabetes Advisory Committee, Ministry of Health, Province of Ontario, Canada, June 7, 1995
44. Kent LA, Gill GV, Williams G. Mortality and outcomes of patients with brittle diabetes and recurrent ketoacidosis. Lancet 1994; 344: 778-81
45. Rydall AC, Rodin GM, Olmsted MP, Devenyi RG, Daneman D. Disordered eating behavior and microvascular complications in young women with insulin-dependent diabetes mellitus. N Engl J Med 1997; 336: 1849-54