Psychological adjustment and adaptation of siblings and mothers of children with HIV/AIDS

Families, Systems and Health

Volumn 16, Issue 3, 1998, Pages 249-266

  Bettoli Vaughan, Elena ^d   Brown, Ronald T ^a   Brown, Josephine V ^b   Baldwin, Kevin ^c  

^a MEDICAL UNIVERSITY OF SOUTH CAROLINA   (United States)

^b GEORGIA STATE UNIVERSITY   (United States)

^c UNIVERSITY OF NORTH CAROLINA   (United States)

^d NONE

Author keywords

[No Author keywords available]

Indexed keywords

ADJUSTMENT; ANXIETY; ARTICLE; COPING BEHAVIOR; DEPRESSION; FAMILY LIFE; HUMAN; HUMAN EXPERIMENT; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; SIBLING;

EID: 0031662439     PISSN: 10917527     EISSN: None     Source Type: Journal    
DOI: 10.1037/h0089853     Document Type: Article

References (72)

1. Abidin, R.R. (1992). The determinants of parenting behavior. Journal of Clinical Child Psychology 21: 407-412.
2. Achenbach, T., & Edelbrock, C. (1991). Manual for the Child Behavior Checklist and Revised Child Behavior Profiles. Burlington VT: University of Vermont.
3. Affleck, G., Tennen, H., & Rowe, J. (1991). Infants in crisis: How parents cope with newborn intensive care and its aftermath. New York: Springer-Verlag.
4. Boyd-Franklin, N. (1989). Black families in therapy: A multisystems approach. New York: Guilford Press.
5. Breslau, N. (1982). Siblings of disabled children: Birth order and age spacing effects. Journal of Abnormal Child Psychology 10: 85-96.
6. Brown, M.A., & Powell-Cope, G.M. (1991). AIDS family caregiving: Transitions through uncertainty. Nursing Research 40: 338-345.
7. Brown, R.T., Coles, C.D., Smith, I.E., Platzman, K., Silverstein, J., Erickson, S., & Falek, A. (1991). Effects of prenatal alcohol exposure at school age: II. Behavior and medicine. Neurotoxicology and Teratology 13: 369-376.
8. _, Doepke, K., & Kaslow, N.J. (1993). Risk-resistance-adaptation model for pediatric chronic illness: Sickle cell syndrome as an example. Clinical Psychology Review 13: 199-132.
9. _, Kaslow, N.J., Doepke, K., Buchanan, I., Eckman, J., Baldwin, K., & Goonon, B. (1993). Psychosocial and family functioning in children with sickle cell syndrome and their mothers. Journal of the American Academy of Child and Adolescent Psychiatry 32: 654-553.
10. Cadman, D., Boyle, M., & Offord, D. (1988). The Ontario child health study: Social adjustment and mental health of siblings of children with chronic health problems. Developmental and Behavioral Pediatrics 9: 117-121.
11. Cairns, N., Clark, G., Smith, S., & Lansky, S. (1979). Adaptation of siblings to childhood malignancy. Journal of Pediatrics 95: 484-487.
12. Chidwick, A., & Borrill, J. (1996). Dealing with a life-threatening diagnosis: The experience of people with the human immunodeficiency virus. AIDS Care 8: 271-284.
13. Coles, C.D., Brown, R.T., Platzman, K., Raskind-Hood, C., Smith, I., & Falek, A. (1997). A comparison of children affected by prenatal alcohol exposure and attention deficit hyperactivity disorder. Alcoholism: Clinical and Experimental Research 21: 150-161.
14. _, Brown, R.T., Smith, I.E., Platzman, K. A., Erickson, S., & Falek, A. (1991). Effects of prenatal alcohol exposure: I. Physical and cognitive development. Neurotoxicology and Teratology 13: 357-367.
15. Derogatis, L.R. (1983). SCL-90-R: Administration, scoring and procedures. Baltimore MD: Clinical Psychometric Research.
16. Downey, G., & Coyne, J. (1990). Children of depressed parents: An integrative review. Psychological Bulletin 108: 50-76.
17. Dunst, C., Jenkins, V., & Trivette, C. (1984). Family support scale: Reliability and validity. Journal of Individual, Family, and Community Wellness 1: 45-52.
18. _, & Leet, H. (1987). Measuring the adequacy of resources in households with young children. Care: Care, Health, and Development 13: 111-125.
19. _, Trivette, C., & Deal, A. (1988). Enabling and empowering families. Cambridge MA: Brookline Books.
20. Dyson, L. (1989). Adjustment of siblings of handicapped children: A comparison. Journal of Pediatric Psychology 4: 215-229.
21. Ferrari, M. (1984). Chronic illness: Psychosocial effects on siblings. Journal of Child Psychology and Psychiatry 25: 459-476.
22. Gelfand, D., & Teti, D. (1990). The effects of maternal depression on children. Clinical Psychology Review 10: 329-353.
23. Green, G. (1993). Social support and HIV. AIDS Care 5: 87-105.
24. Horwitz, W., & Kazak, A.E. (1990). Family adaptation of childhood cancer: Sibling and family systems variables. Journal of Clinical Child Psychology 19: 221-228.
25. Howe, G. (1993). Siblings of children with physical disabilities and chronic illness (pp. 153-171). In A. Stoneman & P. Berman (eds.), The effects of mental retardation, disability, and illness on sibling relationships: Research issues and challenges. Baltimore MD: Brookes.
26. Iles, P. (1979). Children with cancer: Healthy siblings' perceptions during the illness experience. Cancer Nursing 10: 371-377.
27. Katz, E., & Jay, S. (1984). Psychological aspects of cancer in children, adolescents, and their families. Clinical Psychology Review 4: 462-483.
28. Kazak, A.E., & Nachman, G. (1991). Family research on childhood chronic illness: Pediatric oncology as an example. Journal of Family Psychology 4: 462-483.
29. _, Segal-Andrews, A.M., & Johnson, K. (1995). Pediatric psychology research and practice: A family/systems approach (pp. 84-104). In M. Roberts (ed.), Handbook of pediatric psychology. New York: Guilford Press.
30. _, & Wilcox, B. (1984). The structure and function of social support networks in families with handicapped children. American Journal of Community Psychology 12: 644-661.
31. Keppel, G. (1982). Design and analysis: A researcher's handbook (2nd ed.). Englewood Cliffs NJ: Prentice-Hall.
32. Koocher, G., & O'Malley, J. (1981). Interviews with brothers and sisters (pp. 101-111). In G. Koocher & J. O'Malley (eds.), Psychosocial consequences of surviving childhood cancer. New York: McGraw-Hill.
33. Kramer, R. (1987). Living with childhood cancer: Impact on the healthy siblings (pp. 31-48). In T. Krulik, B. Holaday, & I. Martinson (eds.), The child and family facing life-threatening illness. Philadelphia: J.B. Lippincott Co.
34. Kupst, M., & Schulman, J. (1988). Long-term coping with pediatric leukemia: A six-year follow-up study. Journal of Pediatric Psychology 13: 7-22.
35. Lavigne, J., & Ryan, M. (1979). Psychologic adjustment of siblings of children with chronic illness. Pediatrics 63: 616-627.
36. Lee, C., & Gotlib, I. (1989). Maternal depression and child adjustment: A longitudinal analysis. Journal of Abnormal Psychology 98: 78-85.
37. Lipson, M. (1994). Disclosure of diagnosis to children with human immunodeficiency virus or acquired immunodeficiency syndrome. Journal of Developmental and Behavioral Pediatrics 15: 61-65.
38. Lobato, D., Barbour, L., & Hall, L. (1987). Psychosocial characteristics of preschool siblings of handicapped and nonhandicapped children. Journal of Abnormal Child Psychology 15: 329-338.
39. _, Faust, D., & Spirito, A. (1988). Examining the effects of chronic disease and disability on children's sibling relationships. Journal of Pediatric Psychology 13: 389-407.
40. Madan-Swain, A., Sexson, S., Brown, R.T., & Ragab, A. (1993). Family adaptation and coping among siblings of cancer patients, their brothers and sisters, and nonclinical controls. The American Journal of Family Therapy 21: 60-70.
41. Mellins, C.A., & Ehrhardt, A.A. (1994). Families affected by pediatric acquired immunodeficiency syndrome: Sources of stress and coping. Journal of Developmental and Behavioral Pediatrics 15: 54-60.
42. Melton, G.B. (1991). Ethical judgments and uncertainty: Dilemmas in the AIDS epidemic. Counseling Psychologist 19: 561-565.
43. Merikangus, K., Weissman, M., & Prusoff, B. (1990). Psychopathology in offspring of patients with affective disorders (pp. 87-100). In G. Keiter (ed.), Depression and families: Impact and treatment. Washington DC: American Psychiatric Press.
44. Murphy, L.B., Koranyi, K., Whited, S., Crim, L., & Bettler, T. (1997, April). Mothers living with HIV: Patterns of adjustment and disclosure. Paper presented at the Sixth Florida Child Health Psychology Conference, Gainesville FL.
45. Oleske, J., Minnefor, A., Cooper, R., Thomas, K., delaCruz, A., Ahdieh, H., Guerrero, I., Joshi, V., & Desposito, F. (1983). Immunodeficiency syndrome in children. Journal of the American Medical Association 249: 2345-2349.
46. Olson, R.A., Hustzi, H.C., Mason, P.J., & Seibert, J.M. (1993). Pediatric AIDS/HIV infection: An emerging challenge to pediatric psychology (pp. 363-383). In M.C. Roberts, G.P. Koocher, D.K. Routh, & D.J. Willis (eds.), Readings in pediatric psychology. New York: Plenum Press.
47. Rolland, J.S. (1984). Toward a psychosocial typology of chronic and life-threatening illness. Family Systems Medicine 2: 245-262.
48. _. (1987). Chronic illness and the life cycle: A conceptual framework. Family Process 26: 203-221.
49. _. (1990). Anticipatory loss: A family systems framework. Family Process 29: 229-244.
50. Sahler, O.J.Z., Roghmann, K.J., Carpenter, P.J., Mulhern, R.K., Dolgin, M.J., Sargent, J.R., Barbarin, O.A., Copeland, D.R., & Zeltzer, L.K. (1994). Sibling adaptation to childhood cancer collaborative study: Prevalence of sibling distress and definition of adaptation levels. Journal of Developmental and Behavioral Pediatrics 15: 353-366.
51. Sattler, J.M. (1990). Assessment of children. San Diego CA: Jerome M. Sattler.
52. Sawyer, M., Crettenden, A., & Toogood, I. (1986). Psychological adjustment of families of children and adolescents treated for leukemia. The American Journal of Pediatric Hematology / Oncology 8: 200-207.
53. Scott, G.B. (1987). Natural history of HIV infection in children (pp. 22-23). In B.K. Silverman & A. Waddell (eds.), Report of the U.S. Surgeon General's workshop on children with HIV infection and their families. Washington DC: U.S. Department of Health and Human Services.
54. Simeonsson, R. (1986). Assessment of the family context (pp. 179-192). In R. Simeonsson (ed.), Psychological and developmental assessment of special education. Boston: Allyn and Bacon.
55. _, & McHale, S. (1981). Research on handicapped children: Sibling relationships. Child: Care, Health, and Development 7: 153-171.
56. Sparrow, S., Balla, D., & Cicchetti, D. (1984). Manual for the Vineland Adaptive Behavior Scales. Circle Pines MN: American Guidance Service.
57. Spinetta, J. (1981). The siblings of the child with cancer (pp. 133-142). In J. Spinetta & M. Deasy-Spinetta (eds.), Living with childhood cancer. St. Louis MO: C.V. Mosby.
58. Stoneman, Z., & Brody, G. (1993). Sibling relations in the family context (pp. 3-30). In Z. Stoneman & P. Berman (eds.), The effects of mental retardation, disability and illness on sibling relationships: Research issues and challenges. Baltimore MD: Brookes.
59. Taylor, S. (1980). The effect of chronic childhood illnesses upon well siblings. Maternal Child Nursing Journal 9: 109-116.
60. Taylor-Brown, S., & Kumetat, S.H. (1994). Psychosocial aspects of pediatric human immunodeficiency virus and acquired immunodeficiency syndrome: Annotated literature review and call for research. Journal of Developmental and Behavioral Pediatrics 15: 71-76.
61. Thompson, R., Gil, K., Burbach, D., Keith, B., & Kinney, T. (1993). Role of child and maternal processes in the psychological adjustment of children with sickle cell disease. Journal of Consulting and Clinical Psychology 61: 468-474.
62. _, Gustafson, K., Hamlett, K.W., & Spock, A. (1992). Stress, coping, and family functioning in the psychological adjustment of mothers and adolescents with cystic fibrosis. Journal of Pediatric Psychology 17: 741-755.
63. Tritt, S., & Esses, L. (1988). Psychosocial adaptation of siblings of children with chronic medical illness. American Journal of Orthopsychiatry 58: 211-220.
64. Vance, J., Fazan, L., Satterwhite, B., & Pless, I. (1980). Effects of nephrotic syndrome on the family: A controlled study. Pediatrics 65: 948-955.
65. Varni, J., Wilcox, K., & Hanson, V. (1988). Mediating effects of family social support on child psychological adjustment in juvenile rheumatoid arthritis. Health Psychology 7: 421-431.
66. Walker, C. (1988). Stress and coping in siblings of childhood cancer patients. Nursing Research 37: 208-212.
67. Wallander, J., Pitt, L.C., & Mellins, C.A. (1990). Child functional independence and maternal psychosocial stress as risk factors threatening adaptation in mothers of physically or sensorially handicapped children. Journal of Consulting and Clinical Psychology 58: 818-824.
68. _, Varni, J., Babani, L., Banis, T., De-Haan, C., & Wilcox, K. (1989). Disability parameters, chronic strain, and adaptation of physically handicapped children and their mothers. Journal of Pediatric Psychology 14: 23-42.
69. Wertlieb, D. (1993). Toward a family-centered pediatric psychology: Challenge and opportunity in the international year of the family [special section editorial]. Journal of Pediatric Psychology 18: 541-547.
70. Wilson, L., & Stith, S. (1991). Culturally sensitive therapy with Black clients. Journal of Multicultural Counseling and Development 19: 32-43.
71. Wilson, M., & Tolson, T. (1990). Family support in the Black community. Journal of Clinical Child Psychology 19: 347-355.
72. Wolters, P.L., Brouwers, P., Moss, H.A., & Pizzo, P.A. (1994). Adaptive behavior of children with symptomatic HIV infection before and after zidovudine therapy. Journal of Pediatric Psychology 19: 47-61.