The Caregiver Strain Questionnaire: Measuring the Impact on the Family of Living with a Child with Serious Emotional Disturbance

Journal of Emotional and Behavioral Disorders

Volumn 5, Issue 4, 1997, Pages 212-222

  Brannan, Ana Maria ^a,b   Heflinger, Craig Anne ^a   Bickman, Leonard ^a  

^a VANDERBILT UNIVERSITY   (United States)

^b MACRO INTERNATIONAL INC   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 0031532373     PISSN: 10634266     EISSN: None     Source Type: Journal    
DOI: 10.1177/106342669700500404     Document Type: Article

References (49)

1. Angold, A., Messer, S. C., Stangl, D., Farmer, E. M. Z., Costello, H. J., & Burns, B. J. (in press). Perceived parental burden and service use for child and adolescent psychiatric disorders. American Journal of Public Health.
2. Bender, P. M. (1992). EQS: Structural equations program model (BMDP Statistical Software). Los Angeles: University of California.
3. Bentler, P. M., & Wu, E. J. C. (1993). EQS/ Windows user's guide (BMDP Statistical Software). Los Angeles: University of California.
4. Bernheim, K. F. (1990). Principles of family collaboration. Hospital and Community Psychiatry, 41, 1353-1355.
5. Bickman, L., Foster, E. M., & Lambert, E. W. (1996). Who gets hospitalized in a continuum of care? Journal of the American Academy of Child and Adolescent Psychiatry, 35(1), 74-80.
6. Bickman, L., Guthrie, P. R., Foster, E. M., Lambert, E. W., Summerfelt, W. T., Breda, C. S., & Heflinger, C. A. (1995). Evaluating managed mental health services: The Fort Bragg Experiment. New York: Plenum.
7. Bickman, L., Heflinger, C. A., Pion, G., & Behar, L. (1992). Evaluation planning for an innovative children's mental health system. Clinical Psychology Review, 12, 853-865.
8. Bollen, K. A. (1989). Structural equations with latent variables. New York: Wiley.
9. Braithwaite, V. (1989). Caregiving burden: Making the concept scientifically useful and policy relevant. Research on Aging, 14(1), 3-27.
10. Carpentier, N., Lesage, A., Goulet, J., Lalonde, P., & Renaud, M. (1992). Burden of care of families not living with young schizophrenic relatives. Hospital and Community Psychiatry, 43(1), 38-43.
11. Chafetz, L., & Barnes, L. E. (1989). Issues in psychiatric caregiving. Archives of Psychiatric Nursing, 3(2), 61-68.
12. Clausen, J., & Yarrow, M. (1955). Introduction: Mental illness and the family. journal of Social Issues, 11, 3-5.
13. Derogatis, L. R., Lipman, R. S., & Covi, L. (1973). SCL-90, an outpatient psychiatric rating scale: Preliminary report. Psychopharmacology Bulletin, 9, 13-27.
14. Derogatis, L. R., & Melisaratos, N. (1983). The Brief Inventory: An introductory report. Psychological Medicine, 13, 595-605.
15. DeVellis, R. F. (1991). Scale development: Theory and applications. Applied Social Research Methods Series, 26. Newbury Park, CA: Sage.
16. Epstein, N. B., Baldwin, L. M., & Bishop, D. S. (1983). The McMaster Family Assessment Device. Journal of Marital and Family Therapy, 9(2), 171-180.
17. Fadden, G., Bebbington, P., & Kuipers, L. (1987). The burden of care: The impact of functional psychiatric illness on the patient's family. British Journal of Psychiatry, 150, 285-292.
18. Farmer, E. M. Z., Burns, B. J., Angold, A., & Costello, E. J. (1997). Impact of children's mental health problems on families: Relationships with service use. Journal of Emotional and Behavioral Disorders, 5, 230-238.
19. Folkman, S., Chesney, M. A., Cooke, M., Boccellari, A., & Collette, L. (1994). Caregiver burden in HIV-positive and HIV-negative partners of men with AIDS. Journal of Consulting and Clinical Psychology, 62, 746-756.
20. Foster, E. M., Saunders, R. C., & Summerfelt, W. T. (1996). A comparison of multiple methods of predicting level of care in mental health services. Evaluation and Program Planning, 19(2), 143-153.
21. Friesen, B.G., & Koroloff, N.M. (1990). Family-centered services: Implications for mental health administration and research, journal of Mental Health Administration, 17, 13-25.
22. Ghiselli, E. E., Campbell, J. P., & Zedeck, S. (1981). Measurement theory for the behavioral sciences. New York: Freeman.
23. Grad, J., & Sainsbury, P. (1963). Mental illness and the family. Lancet, 1, 544-547.
24. Grad, J., & Sainsbury, P. (1968). The effects that patients have on their families in a community care and a control psychiatric service: A two-year follow-up. British Journal of Psychiatry, 114, 265-278.
25. Heflinger, C. A., Northrup, D. A., Sonnichsen, S. E., & Brannan, A. M. (in press). Including a family focus in research on community-based services for children with serious emotional disturbance: Experiences from the Fort Bragg Evaluation Project. In M. H. Epstein, K. Kutash, & A. Duchnowski (Eds.), Community-Based Programming for Children with Serious Emotional Disturbance: Research and Evaluation. PRO-ED: Austin, TX.
26. Hoenig, J., & Hamilton, M.W. (1967). The burden on the household in extramural psychiatric service. In J. Farndale & H. Freeman (Eds.), New Aspects of the Mental Health Services (pp. 612-635). London: Pergamon.
27. Kazak, A. E. (1989). Families of chronically ill children: A systems and social-ecological model of adaptation and challenge, journal of Consulting and Clinical Psychology, 57(1), 25-30.
28. Kazdin, A. E. (1989). Developmental psychopathology: Current research, issues, and directions. American Psychologist, 44, 180-187.
29. Kovacs, M., Iyengar, S., Goldston, D., Ohrosky, D. S., Stewart, J., & Marsh, J. (1990). Psychological functioning among mothers of children with insulin-dependent diabetes mellitus: A longitudinal study, journal of Consulting and Clinical Psychology, 58(2), 189-195.
30. Lambert, E. W., Brannan, A. M., Heflinger, C. A., Breda, C., & Bickman, L. (in press). Common patterns of service use in children's mental health. Evaluation and Program Planning.
31. Lefley, H. P. (1989). Family burden and family stigma in major mental illness. American Psychologist, 44, 556-560.
32. McCubbin, H. I., Nevin, R. S., Cauble, A. E., Larsen, A., Comeau, J. K., & Pat- rerson, J. M. (1982). Family coping with chronic illness: The case of cerebral palsy. In H. I. McCuhbin, A. E. Caublc, & J. M. Patterson (Eds.), Family Stress, Coping, and Social Support (pp. 169-188). Springfield, IL: Thomas.
33. Miller, I. W., Epstein, N. B., Bishop, D. S., & Keitner, G. I. (1985). The McMaster Family Assessment Device: Reliability and validity. Journal of Marital and Family Therapy, 11(4), 345-356.
34. Montgomery, R. J. V., Gonyea, J. G., & Hooyman, N. R. (1985). Caregiving and the experience of subjective and objective burden. Family Relations, 34, 19-26.
35. Newbrough, J. R., Simpkins, C. G., &. Maurer, H. (1985). A family development approach to studying factors in the management and control of childhood diabetes. Diabetes Care, 9, 83-92.
36. Noh, S., & Turner, R. J. (1987). Living with psychiatric patients: Implications for the mental health of family members. Social Science Medicine, 25, 263-271.
37. Pai, S., & Kapur, R. L. (1982). Impact of treatment intervention on the relationship between dimensions of clinical psychopathology, social dysfunction and burden on the family of psychiatric patients. Psychological Medicine, 12, 651-393.
38. Platt, S. (1985). Measuring the burden of psychiatric illness on the family: An evaluation of some rating scales. Psychological Medicine, 15, 383-393.
39. Poulshock, S. W., & Deimling, G. T. (1984). Families caring for elders in residence: Issues in the measurement of burden. Journal of Gerontology, 39(2), 230-239.
40. Reinhard, S. C., Gubman, G. D., Horwitz, A. V., & Minsky, S. (1994). Burden Assessment Scale for families of the seriously mentally ill. Evaluation and Program Planning, 17(3), 261-269.
41. SAS 6.04 [Computer software]. (1982). Cary, NC: SAS Institute.
42. Schene, A. H. (1990). Objective and subjective dimensions of family burden. Social Psychiatry and Psychiatric Epidemiology, 25, 289-297.
43. Schene, A. H., Tessler, R. C., & Gamache, G. M. (1994). Instruments measuring family or caregiver burden in severe mental illness. Social Psychiatry Epidemiology, 29, 228-240.
44. Singhi, P. D., Goyal, L., Pershad, D., Singhi, S., & Walia, B. N. S. (1990). Psychosocial problems in families of disabled children. British Journal of Medical Psychology, 63, 173-182.
45. Stommel, M., Given, C. W., & Given, B. (1990). Depression as an overriding variable explaining caregiver burdens. Journal of Aging and Health, 2(1), 81-102.
46. Tabachnick, B. G., Fidell, L. S. (1989). Using multivariate statistics. New York: Harper-Collins.
47. Thompson, E. H., Jr., & Doll, W. (1982). The burden of families coping with the mentally ill: An invisible crisis. Family Relations, 31, 379-388.
48. Varekamp, I., Suurmeijer, T. P., Rosendaal, F. R., van Dijck, H., Bröcker-Vriends, A., & Briët, E. (1990). Family burden in fam- ilics with a hemophilie child. Family Systems Medicine, 8(3), 291-301.
49. Weiss, S.J. (1991). Stressors experienced by family caregivers of children with pervasive developmental disorders. Child Psychiatry and Human Development, 21(3), 203-217.