Ethical issues of genetic testing and their implications in epidemiologic studies

Annals of Epidemiology

Volumn 7, Issue 5, 1997, Pages 363-366

  Bondy, Melissa ^a   Mastromarino, Carrie ^a  

^a UNIVERSITY OF TEXAS   (United States)

Author keywords

Epidemiology; Ethics; Genetic Testing

Indexed keywords

ARTICLE; CLINICAL RESEARCH; CONFIDENTIALITY; EPIDEMIOLOGY; GENETIC ANALYSIS; GENETIC SCREENING; HUMAN; INFORMED CONSENT; MEDICAL ETHICS; PRIORITY JOURNAL; PRIVACY;

EID: 0030852258     PISSN: 10472797     EISSN: None     Source Type: Journal    
DOI: 10.1016/S1047-2797(97)00029-X     Document Type: Article

References (21)

1. Siegler M. Confidentiality in medicine: A decrepit concept. N Engl J Med. 1982;307:1518-1521.
2. Norton C. Absolutely not confidential, Hippocrates. 1989;2:53-59.
3. Early CL, Strong LC. Certificates of confidentiality: A valuable tool for protecting genetic data. Am J Hum Genet. 1994;57:727-731.
4. Early CL, Strong LC. Reply to Lowden. Am J Hum Genet. 1996; 58:437-438.
5. Kass NE. Participation in pedigree studies and the risk of impeded access to health insurance. Internal Review Board. 1993;September-October:7-10.
6. Mehlman MJ, Kodish ED, Whitehouse P, et al. The need for anonymous genetic counseling and testing. Am J Hum Genet. 1996;58: 393-397.
7. Rothefleder J. Privacy for Sale: How Computerization Has Made Everyone's Private Life an Open Secret. New York: Simon and Schuster; 1992.
8. Dickens BM. Legal issues in predictive genetic testing programs. Alzheimer Disord. 1994;8:94-101.
9. Pokorski RJ. Insurance underwriting in the genetic era. Am J Hum Genet. 1997;60:205-216.
10. Annas GH, Glantz LH, Roche PA. The Genetic Privacy Act and Commentary, Boston University School of Public Health. 1995;Sec. 132,B1.
11. Senate Bill 1898.
12. Schulte PA. Interpretation and communication of molecular epidemiologic data. In: Molecular Epidemiology: Principles and Practices. Schulte PA, Perera FP, eds. San Diego: Academic Press; 1993.
13. Rothstein MA. Genetic testing: Employability, insurability, and health reform. J Natl Cancer Inst Monographs. 1995;17:87-90.
14. Strong LC, Marteau T. Evaluating children and adolescents for heritable cancer risk. J Natl Cancer Inst Monographs. 1995;17:111-113.
15. Hoskins KF, Stopfer JE, Calzone KA, et al. Assessment and counseling for women with a family history of breast cancer. A guide for clinicians. JAMA. 1995;273:577-585.
16. Lerman C, Schwartz M. Adherence and psychological adjustment among women at high risk for breast cancer. Breast Cancer Res Treatment. 1993;8:145-155.
17. Breo DL. Altered fates - counseling families with inherited breast cancer. JAMA 1993;269:2017-2022.
18. Tanouye E. Gene testing for cancer to be widely available, raising thorny questions. Wall Street Journal. 1993;Dec. 14:B1.
19. Leonard CO, Chase GA, Childs B. Genetic counseling: a consumer's view. N Engl J Med. 1972;287:433-439.
20. Lippman-Hand A, Fraser F. Genetic counseling: parents' response to uncertainty. Birth Defects Orig Art Series. 1979;15:325-339.
21. American Medical Association Code of Medical Ethics, 150th Anniversary Edition. 1997;22-25.