Treatment characteristics of congenital heart disease and behaviour problems of patients and healthy siblings

Journal of Paediatrics and Child Health

Volumn 33, Issue 3, 1997, Pages 219-225

  Janus, M ^a   Goldberg, S ^a  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

Author keywords

Congenital heart disease; Father reports; Mother reports; Siblings; Treatment characteristics

Indexed keywords

ARTICLE; CONGENITAL HEART DISEASE; DOCTOR PATIENT RELATION; FAMILY; HUMAN; PATIENT ATTITUDE; PRIORITY JOURNAL; SIBLING; TREATMENT PLANNING;

EID: 0030837622     PISSN: 10344810     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1440-1754.1997.tb01583.x     Document Type: Article

References (31)

1. Stein RE, Jessop DJ. A noncategorical approach to chronic childhood illness. Public Health Reports. 1982; 97: 354-62.
2. Pless I, Perrin J. Issues common to a variety of illnesses. In: Hobbs N, Perrin J, eds. Issues in the care of children with chronic illnesses. Jossey-Bass, San Francisco, 1985; 41-60.
3. Lobato D, Faust D, Spirito A. Examining the effects of chronic disease and disability in children's sibling relationships. J. Ped. Psychol. 1988; 13: 389-407.
4. Gallo AM, Knafl KA. Siblings of children with chronic illnesses: A categorical and noncategorical look at selected literature. In: Stoneman Z, Berman PW, eds. The effects of mental retardation, disability, and illness on sibling relationships. Paul H. Brookes, Baltimore, MA, 1993; 215-34.
5. Jessop DJ, Stein RE. Uncertainty and its relation to the psychological and social correlates of chronic illness in children. Soc. Sci. Med. 1985; 20: 993-9.
6. Drotar D, Crawford P. Psychological adaptation of siblings of chronically ill children: Research and practice implications. Dev. Behav. Pediatr. 1985; 6: 355-62.
7. Thompson RH. Where we stand: Twenty years of research on pediatric hospitalization and health care. Child. Health Care. 1986; 14: 200-10.
8. Thompson RH, Vernon DTA. Research on children's behavior after hospitalization: A review and synthesis. Dev. Behav. Pediatr. 1993; 14: 28-35.
9. Wells RD, Schwebel AL. Chronically ill children and their mothers: Predictors of resiliency and vulnerability to hospitalization and surgical stress. Dev. Behav. Pediatr. 1987; 8: 83-9.
10. Wright MC. Annotation: Behavioural effects of hospitalization on children. J. Paediatr. Child Health. 1995; 31: 165-7.
11. Kong SG, Tay JSH, Yip WCL, Chay SO. Emotional and social effects of congenital heart disease in Singapore. Aust. Paediatr. J. 1986; 22: 101-6.
12. Thompson RJ, Gil KM, Gustafson KE et al. Stability and change in the psychological adjustment of mothers of children and adolescents with cystic fibrosis and sickle cell disease. J. Ped. Psychol. 1994; 19: 171-88.
13. McKeever P. Siblings of chronically ill children: A literature review with implications for research and practice. Am. J. Orthopsychiatry. 1983; 53: 209-18.
14. Hobbs N, Perrin JM, Ireys HT. Chronically ill children and their families. Jossey-Bass, San Francisco. 1985.
15. Linde LM, Rasof B, Dunn OJ et al. Attitudinal factors in congenital heart disease. Pediatrics. 1966; 38: 92-101.
16. Landtman B, Valanne EH, Aukee M. Emotional implications of heart disease. Ann. Paed. Fenn. 1968; 14: 71-92.
17. Apley J, Barbour RF, Westmacott I. Impact of congenital heart disease on the family: Preliminary report. BMJ 1967; 1: 103-5.
18. Goldberg S, Simmons RJ, Newman J et al. Congenital heart disease, parental stress, and infant-mother relationships. J. Pediatr. 1991; 119: 661-6.
19. Ainsworth MDS, Blehar MC, Waters E et al. Patterns of Attachment: A Psychological Study of the Strange Situation. Lawrence Erlbaum, Hillsdale, NJ, 1978.
20. DeMaso DR, Campis LK, Wypij D et al. The impact of maternal perceptions and medical severity on the adjustment of children with congenital heart disease. J. Ped. Psychol. 1993; 16: 137-49.
21. Hesz N, Clark EB. Cognitive development in transposition of great vessels. Arch. Dis. Child. 1988; 63: 198-200.
22. Brown JB, Adams ME. Patients as reliable reporters of medical care process. Med Care. 1992; 30: 400-11.
23. Breslau N, Weitzman M, Messenger K. Psychologic functioning of siblings of disabled children. Pediatrics 1981; 67: 344-53.
24. Achenbach TM. Manual for the Child Behavior Checklist/4-18 and 1991 Profile. University of Vermont, Burlington, VA, 1991.
25. Achenbach TM, Howell CT, Quay HC et al. National survey of competencies and problems among 4- to 16-year olds: Parents' reports for normative and clinical samples. Monogr. Soc. Res. Child Dev. 1991; 56:
26. Cohen J. Statistical Power Analysis for the Behavioral Sciences, 2nd edn. Lawrence Erlbaum Associates, Hillsdale, NJ, 1988.
27. Perrin EC, Stein REK, Drotar D. Cautions in using the Child Behavior Checklist: Observations based on research about children with a chronic illness. J. Ped. Psychol. 1991; 16: 411-21.
28. Tavormina JB, Kastner LS, Slater PM et al. Chronically ill children: A psychologically and emotionally deviant population? J. Abn. Child Psychol. 1976; 4: 99-110.
29. Breslau N. The psychological study of chronically ill and disabled children: Are healthy siblings appropriate controls? J. Abn. Child Psychol. 1983; 11: 379-91.
30. Tritt SG, Esses LM. Psychosocial adaptation of siblings of children with chronic medical illnesses. Am. J. Orthopsychiatry 1988; 58: 211-20.
31. Janus M, Goldberg S. Sibling empathy and behavioural adjustment of children with chronic illness. Child Care Health Develop. 1995; 21: 321-31.