Referring and Reporting Research Participants at Risk: Views from Urban Adolescents

Child Development

Volumn 67, Issue 5, 1996, Pages 2086-2100

  Fisher, Celia B ^a   Higgins D'Alessandro, Ann ^a   Rau, Jean Marie B ^a   Kuther, Tara L ^a   Belanger, Susan ^a  

^a FORDHAM UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADDICTION; ADOLESCENT; ADULT; ARTICLE; ATTITUDE; CHILD; CHILD ABUSE; CONFIDENTIALITY; FEMALE; HUMAN; JUVENILE DELINQUENCY; MALE; MANDATORY REPORTING; MENTAL DISEASE; PATIENT REFERRAL; PATIENT SELECTION; PSYCHOLOGICAL ASPECT; SOCIAL BEHAVIOR; UNITED STATES; URBAN POPULATION; VIOLENCE;

ADOLESCENT; ADULT; ATTITUDE; CHILD; CHILD ABUSE; CONFIDENTIALITY; DANGEROUS BEHAVIOR; FEMALE; HUMANS; JUVENILE DELINQUENCY; MALE; MANDATORY REPORTING; MENTAL DISORDERS; NEW YORK CITY; PATIENT SELECTION; REFERRAL AND CONSULTATION; SHYNESS; SUBSTANCE-RELATED DISORDERS; URBAN POPULATION;

EID: 0030253090     PISSN: 00093920     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1467-8624.1996.tb01845.x     Document Type: Article

References (69)

1. American Psychological Association. (1992). Ethical principles of psychologists and code of conduct. American Psychologist, 47, 1597-1611.
2. Appelbaum, P. D., & Rosenbaum, A. (1989). Tarasoff and the researcher: Does the duty to protect apply in the research setting? American Psychologist, 44, 885-894.
3. Asher, S. R. (1993, March). Inviting children to self-refer. Paper presented as part of the invited symposium on "Ethical issues in the reporting and referring of research participants" at the biennial meeting of the Society for Research in Child Development, New Orleans.
4. Beauchamp, T. L., Faden, R. R., Wallace, R. J. Jr., & Walters, L. (1982). Ethical issues in social science research. Baltimore, MD: Johns Hopkins University Press.
5. Berman, A. L., & Jobbs, D. A. (1991). Adolescent suicide assessment and intervention. Washington, DC: American Psychological Association.
6. Black, C., Paz, H., & DeBlassie, R. R. (1991). Counseling the Hispanic male adolescent. Adolescence, 26, 223-232.
7. Bok, S. (1978). Secrets: On the ethics of concealment and revelation. New York: Pantheon.
8. Brooks-Gunn, J., & Rotheram-Borus, M. J. (1994). Rights to privacy in research: Adolescents versus parents. Ethics & Behavior, 4, 109-123.
9. Chase-Lansdale, P. L., & Brooks-Gunn, J. (1994). Correlates of adolescent pregnancy and parenthood. In C. B. Fisher & R. M. Lerner (Eds.), Applied developmental psychology (pp. 207-236). New York: McGraw-Hill.
10. Children's Safety Network. (1991). A data book of child and adolescent injury. Washington, DC: National Center for Education in Maternal and Child Health.
11. Cicchetti, D., & Toth, S. L. (1993). Child abuse, child development, and social policy. Norwood, NJ: Ablex.
12. Department of Health and Human Services. (1991, August). Code of federal regulations, protection of human subjects (DHHS Title 45 Public Welfare, Part 46). Washington, DC: Government Printing Office.
13. DiLalla, L. F., & Gottesman, I. I. (1989). Heterogeneity of causes for delinquency and criminality: Lifespan perspectives. Development and Psychopathology, 1, 339-349.
14. Dougherty, D. M. (1993). Adolescent health: Reflections on a report to the U.S. Congress. American Psychologist, 48, 193-201.
15. Dubow, E. F., Lovko, K. R., & Kausch, D. F. (1990). Demographic differences in adolescents' health concerns and perceptions of helping agents. Journal of Clinical Child Psychology, 19, 44-54.
16. Duckworth, K., & Dejung, J. (1989). Inhibiting class cutting among high school students. High School Journal, 72.
17. Edelbrock, C. (1994). Assessment of child psychopathology. In C. B. Fisher & R. M. Lerner (Eds.), Applied developmental psychology (pp. 294-315). New York: McGraw-Hill.
18. Farr, J. L., & Seaver, W. B. (1975). Stress and discomfort in psychological research: Subject perceptions of experimental procedures. American Psychologist, 30, 770-773.
19. Farrell, A. D., Danish, S. J., & Howard, C. W. (1992). Relationship between drug use and other problem behaviors in urban adolescents. Journal of Consulting and Clinical Psychology, 60, 705-712.
20. Fisher, C. B. (1991). Ethical considerations for research on psychosocial interventions for high-risk infants and children. Register Report, 17, 9-12.
21. Fisher, C. B. (1993). Integrating science and ethics in research with high-risk children and youth. SRCD Social Policy Report, 7(4), 1-27.
22. Fisher, C. B. (1994). Reporting and referring research participants: Ethical challenges for investigators studying children and youth. Ethics & Behavior, 4, 87-95.
23. Fisher, C. B., & Brennan, M. (1992). Application and ethics in developmental psychology. In D. L. Featherman, R. M. Lerner, & M. Perlmutter (Eds.), Life-span development and behavior (pp. 189-219). Hillsdale, NJ: Erlbaum.
24. Fisher, C. B., & Fyrberg, D. (1994). Participant partners: College students weigh the costs and benefits of deceptive research. American Psychologist, 49, 417-427.
25. Fisher, C. B., Hoagwood, K., & Jensen, P. (1996). Casebook on ethical issues in research with children and adolescents with mental disorders. In K. Hoagwood, P. Jensen, & C. B. Fisher (Eds.), Ethical issues in research with children and adolescents with mental disorders (pp. 135-238). Hillsdale, NJ: Erlbaum.
26. Fisher, C. B., Jackson, J. F. , & Villarruel, F. (in press). The study of ethnic minority children and youth in the United States. In R. M. Lerner (Ed.), W. Damon (Series Ed.), Handbook of child psychology: Vol. 1. Theoretical models of human development (5th ed.). New York: Wiley.
27. Fisher, C. B., & Lerner, R. M. (1994). Foundations of applied developmental psychology. In C. B. Fisher & R. M. Lerner (Eds.), Applied developmental psychology (pp. 3-20). New York: McGraw-Hill.
28. Fisher, C. B., Murray, J. P., Dill, J. R., Hagen, J. W., Hogan, M. J., Lerner, R. M., Rebok, G. W., Sigel, I. E., Sostek, A. M., Smyer, M. A., Spencer, M. B., & Wilcox, B. (1993). The national conference on graduate education in the applications of developmental science across the lifespan. Journal of Applied Developmental Psychology, 14, 1-10.
29. Fisher, C. B., & Rosendahl, S. A. (1990). Risks and remedies of research participation. In C. B. Fisher & W. W. Tryon (Eds.), Ethics in applied developmental psychology: Emerging issues in an emerging field (pp. 43-60). Norwood, NJ: Ablex.
30. Fisher, C. B., & Tryon. W. W. (1990). Emerging ethical issues in an emerging field. In C. B. Fisher & W. W. Tryon (Eds.), Ethics in applied developmental psychology: Emerging Issues in an emerging field (pp. 1-14). Norwood, NJ: Ablex.
31. Gans, J. E., & Blyth, D. A. (1990). America's adolescents: How healthy are they? (AMA Profiles of Adolescent Health series). Chicago: American Medical Association.
32. Gaylin, W., & Macklin, R. (1982). Who speaks for the child: The problems of proxy consent. New York: Plenum.
33. Gergen, K. J. (1973). The codification of research ethics: Views of a doubting Thomas. American Psychologist, 8, 907-912.
34. Gibbs, J. C., Basinger, K. S., & Fuller, D. (1992). Moral maturity: Measuring the development of sociomoral reflection. Hillsdale, NJ: Erlbaum.
35. Gregg, V., Gibbs, J. C., & Basinger, K. S. (in press). Patterns of delay in male and female delinquents' moral judgment. Merrill-Palmer Quarterly.
36. Hammond, W. R., & Yung, B. (1993). Psychology's role in the public health response to assaultive violence among young African-American men. American Psychologist, 48, 142-154.
37. Hauck, W. E., Martens, M., & Wetzel, M. (1986). Shyness, group dependence, and self-concept: Attributes of the imaginary audience. Adolescence, 21(83), 529-534.
38. Hoagwood, K. (1994). The Certificate of Confidentiality at the National Institute of Mental Health: Discretionary considerations in its applicability in research on child and adolescent mental disorders. Ethics & Behavior, 4, 123-131.
39. Holder, A. R. (1981). Can teenagers participate in research without parental consent? IRB: Review of Human Subjects Research, 3, 5-7.
40. Hollingshead, A. B. (1957). Two-Factor Index of Social Position. Unpublished manuscript, Yale University.
41. Horowitz, F. D., & O'Brien, M. (1989). In the interest of the nation: A reflective essay on the state of our knowledge and challenges before us. American Psychologist, 44, 441-445.
42. Jackson, J. F. (1993). Multiple caregiving among African Americans and infant attachment: The need for an emic approach. Human Development, 36, 87-102.
43. Jessor, R. (1992). Risk behavior in adolescence: A psychosocial framework for understanding and action. In D. E. Rogers & E. Ginzburg (Eds.), Adolescents at risk: Medical and social perspectives (pp. 19-34). Boulder, CO: Westview.
44. Jessor, R. (1993). Successful adolescent development among youth in high-risk settings. American Psychologist, 48, 117-116.
45. Kandel, D., Davies, M., Karus, D., & Yamaguchi, K. (1986). The consequences in young adulthood of adolescent drug involvement. Archives of General Psychiatry, 43, 746-754.
46. Kohlberg, L. (1984). Essays on moral development: Vol. 2. The psychology of moral development. San Francisco: Harper & Row.
47. Lerner, R. M. (1993). Early adolescence: Toward an agenda for the integration of research, policy, and intervention. In R. M. Lerner (Ed.), Early adolescence: Perspectives on research, policy, and intervention (pp. 1-16). Hillsdale, NJ: Erlbaum.
48. Lester, D., & Anderson, D. (1992). Depression and suicidal ideation in African American and Hispanic American high school students. Psychological Reports, 71, 618.
49. Levine, R. J. (1986). Ethics and regulation of clinical research, Baltimore and Munich: Urban & Schwarzenberg.
50. Liss, M. B. (1994). Child abuse: Is there a mandate for researchers to report? Ethics & Behavior, 4, 133-146.
51. Melton, G. B. (1990). Certificates of confidentiality under the public health service act: Strong protection but not enough. Violence and Victims, 5, 67-71.
52. Melton, G. B., Levine, R. J., Koocher, G. P., Rosenthal, R., & Thompson, W. C. (1988). Community consultation in socially sensitive research: Lessons from clinical trials of treatments for AIDS. American Psychologist 43, 573-581.
53. Office for Protection of Research Risks (OPRR), Department of Health and Human Services, National Institutes of Health. (1993). Protecting human research subjects: Institutional review board guidebook. Washington, DC: Government Printing Office.
54. Pentz, M. A. (1994). Primary prevention of adolescent drug abuse. In C. B. Fisher & R. M. Lerner (Eds.), Applied developmental psychology (pp. 435-474). New York: McGraw-Hill.
55. Petersen, A. C., Compas, B. E., Brooks-Gunn, J., Stemmler, M., Ey, S., & Grant, K. E. (1993). Depression in adolescence. American Psychologist, 48, 155-168.
56. Power, F. C., Higgins, A., & Kohlberg, L. (1989). Lawrence Kohlberg's approach to moral education. New York: Columbia University.
57. Quadrel, M. J., Fischhoff, B., & Davis, W. (1993). Adolescent (in)vulnerability. American Psychologist, 48, 102-116.
58. Richters, J. E., & Martinez, P. (1993). Children as victims of and witnesses to violence in a Washington, D.C. neighborhood. In L. A. Leavitt & N. A. Fox (Eds.), The psychological effects of war and violence on children (pp. 243-280). Hillsdale, NJ: Erlbaum.
59. Scarr, S. (1994). Ethical problems in research on risky behaviors and risky populations. Ethics & Behavior, 4, 147-156.
60. Scott-Jones, D. (1994). Ethical issues in reporting and referring in research with low-income minority children. Ethics & Behavior, 4, 97-198.
61. Society for Research in Child Development. (1993). Ethical standards for research with children. In Directory of members (pp. 337-339). Ann Arbor, MI: SRCD.
62. Sum, A. M., & Fogg, W. N. (1991). The adolescent poor and the transition to early adulthood. In P. B. Edelman & J. Ladner (Eds.), Adolescence and poverty: Challenge for the 1990s (pp. 37-109). Washington, DC: Center for National Policy Press.
63. Takanishi, R. (1993). The opportunities of adolescence - research, interventions, and policy: Introduction to the special issue. American Psychologist, 48, 85-86.
64. Tarasoff v. Regents of the University of California (CA 1976), 131 Cal. Rptr. 14, 551 P.2d 334.
65. Veatch, R. M. (1987). The patient as partner. Bloomington: Indiana University Press.
66. Weithorn, L. A. (1983). Children's capacities to decide about participation in research. IRB: A Review of Human Subjects Research, 5, 1-5.
67. Wilson, D. W., & Donnerstein, W. (1976). Legal and ethical aspects of nonreactive social psychological research: An excursion into the public mind. American Psychologist, 31, 765-773.
68. Windle, M. (1990). A longitudinal study of antisocial behaviors in early adolescence as predictors of late adolescent substance use: Gender and ethnic group differences. Journal of Abnormal Psychology, 99, 86-91.
69. Zaslow, M. J., & Takanishi, R. (1993). Priorities for research in adolescent development. American Psychologist, 48, 185-192.