Reconceptualizing Family Caregiving: Family-Based Illness Care during Chemotherapy

Research in Nursing and Health

Volumn 19, Issue 4, 1996, Pages 261-271

  Schumacher, Karen L ^a  

^a OREGON HEALTH AND SCIENCE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ANTINEOPLASTIC AGENT;

ARTICLE; CAREGIVER; FAMILY; FEMALE; HUMAN; LONGITUDINAL STUDY; MALE; MIDDLE AGED; MODEL; NEOPLASM; NURSING; NURSING METHODOLOGY RESEARCH; ORGANIZATION AND MANAGEMENT; PATIENT CARE; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; ROLE PLAYING; SELF CARE; TIME;

ANTINEOPLASTIC AGENTS; CAREGIVERS; FAMILY; FEMALE; HUMANS; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; MODELS, NURSING; MODELS, PSYCHOLOGICAL; NEOPLASMS; NURSING METHODOLOGY RESEARCH; PATIENT-CENTERED CARE; ROLE; SELF CARE; TIME FACTORS;

EID: 0030209696     PISSN: 01606891     EISSN: None     Source Type: Journal    
DOI: 10.1002/(SICI)1098-240X(199608)19:4<261::AID-NUR1>3.0.CO;2-G     Document Type: Article

References (71)

1. American heritage dictionary (2nd ed.). (1982). Boston: Houghton Mifflin.
2. Archbold, P.G., Stewatt, B.J., Greenlick, M.R., & Harvath, T. (1990). Mutuality and preparedness as predictors of caregiver role strain. Research in Nursing & Health, 13, 375-384.
3. Bass, D.M., & Bowman, K. (1990). The transition from caregiving to bereavement: The relationship of care-related strain and adjustment to death. The Gerontologist, 30, 35-42.
4. Beck, C.T. (1993). Qualitative research: The evaluation of its credibility, fittingness, and auditability. Western Journal of Nursing Research, 15, 263-266.
5. Bloor, M.J. (1983). Notes on member validation. In R.M. Emerson (Ed.), Contemporary field research (pp. 156-172). Prospect Heights, IL: Waveland Press.
6. Brown, A.M., & Powell-Cope, G.M. (1991). AIDS family caregiving: Transitions through uncertainty. Nursing Research, 40, 338-345.
7. Bull, M.J. (1992). Managing the transition from hospital to home. Qualitative Health Research, 2, 27-41.
8. Carey, P.J., Oberst, M.T., McCubbin, M.A., & Hughes, S.H. (1991). Appraisal and caregiving burden in family members caring for patients receiving chemotherapy. Oncology Nursing Forum, 18, 1341-1348.
9. Charmaz, K. (1983). The grounded theory method: An explication and interpretation. In R.M. Emerson (Ed.), Contemporary field research (pp. 109-126). Prospect Heights, IL: Waveland Press.
10. Checkryn, J. (1984). Cancer recurrence: Personal meaning, communication, and marital adjustment. Cancer Nursing, 7, 491-498.
11. Chick, N., & Meleis, A.I. (1986). Transitions: A nursing concern. In P.L. Chinn (Ed.), Nursing research methodology: Issues and implementation (pp. 237-257). Rockville, MD: Aspen.
12. Christman, N.J., McConnell, E.A., Pfeiffer, C., Webster, K.K., Schmitt, M., & Ries, J. (1988). Uncertainty, coping, and distress following myocardial infarction: Transition from hospital to home. Research in Nursing & Health, 11, 71-82.
13. Collins, C., Stommel, M., Wang, S., & Given, C.W. (1994). Caregiving transitions: Changes in depression among family caregivers of relatives with dementia. Nursing Research, 43, 220-225.
14. Cooper, E.T. (1984). A pilot study on the effects of the diagnosis of lung cancer on family relationships. Cancer Nursing, 7, 301-308.
15. Corbin, J., & Strauss, A.L. (1984). Collaboration: Couples working together to manage chronic illness. Image: The Journal of Nursing Scholarship, 16, 109-115.
16. Corbin, J.M., & Strauss, A. (1988). Unending work and care: Managing chronic illness at home. San Francisco: Jossey-Bass.
17. Dodd, M.J. (1988). Patterns of self-care in patients with breast cancer. Western Journal of Nursing Research, 10, 7-24.
18. Dodd, M.J., & Dibble, S.L. (1993). Predictors of self-care: A test of Orem's model. Oncology Nursing Forum, 20, 895-901.
19. Dodd, M.J., Thomas, M.L., & Dibble, S.L. (1991). Self-care for patients experiencing cancer chemotherapy side effects: A concern for home care nurses. Home Healthcare Nurse, 9(6), 21-26.
20. Emerson, R.M., & Pollner, M. (1988). On the uses of members' responses to researchers' accounts. Human Organization, 47, 189-198.
21. Fitting, M., Rabins, P., Lucas, M.J., & Eastham, J. (1986). Caregivers for dementia patients: A comparison of husbands and wives. The Gerontologist 26, 248-252.
22. George, L.K., & Gwyther, L.P. (1986). Caregiver well-being: A multidimensional examination of family caregivers of demented adults. The Gerontologist 26, 253-259.
23. Germino, B.B., & Funk, S.G. (1993). Impact of a parent's cancer on adult children: Role and relationship issues. Seminars in Oncology Nursing, 9, 101-106.
24. Given, B.A., & Given, C.W. (1991). Caregiving. Annual Review of Nursing Research, 9, 77-101.
25. Given, C.W., Stommel, M., Given, B., Osuch, J., Kurtz, M.E., & Kurtz, J.C. (1993). The influence of cancer patients' symptoms and functional states on patients' depression and family caregivers' reaction and depression. Health Psychology, 12, 277-285.
26. Goldstein, V., Regnery, G., & Wellin, E. (1981). Caretaker role fatigue. Nursing Outlook, 29, 24-30.
27. Gotay, C.C. (1984). The experience of cancer during early and advanced stages: The views of patients and their mates. Social Science and Medicine, 18, 605-613.
28. Hagopian, G.A. (1991). The effects of a weekly radiation therapy newsletter on patients. Oncology Nursing Forum, 18, 1199-1203.
29. Hilton, B.A. (1993). Issues, problems, and challenges for families coping with breast cancer. Seminars in Oncology Nursing, 9, 88-100.
30. Hoffart, N. (1991). A member check procedure to enhance rigor in naturalistic research. Western Journal of Nursing Research, 13, 522-534.
31. Hull, M.M. (1990). Sources of stress for hospice caregiving families. The Hospice Journal, 6(2), 29-54.
32. Jansen, C., Halliburton, P., Dibble, S., & Dodd, M.J. (1993). Family problems during cancer chemotherapy. Oncology Nursing Forum, 20, 689-696.
33. Lewis, F.M. (1986). The impact of cancer on the family: A critical analysis of the research literature. Patient Education and Counseling, 8, 269-289.
34. Lincoln, Y.S., & Guba, E. (1985). Naturalistic Inquiry. Beverly Hills, CA: Sage.
35. Mead, G.H. (1934). Mind, self, and society. Chicago: University of Chicago Press.
36. Meleis, A.I. (1975). Role insufficiency and role supplementation: A conceptual framework. Nursing Research, 24, 264-271.
37. Michels, N. (1988). The transition from hospital to home: An exploratory study. Home Health Care Services Quarterly, 9(1), 29-44.
38. Montgomery, R.J.V., Gonyea, J.G., & Hooyman, N.R. (1985). Caregiving and the experience of subjective and objective burden. Family Relations, 34, 19-26.
39. Munkres, A., Oberst, M.T., & Hughes, S.H. (1992). Appraisal of illness, symptom distress, self-care burden, and mood states in patients receiving chemotherapy for initial and recurrent cancer. Oncology Nursing Forum, 19, 1201-1209.
40. Northouse, L.L. (1984). The impact of cancer on the family: An overview. International Journal of Psychiatry in Medicine, 14, 215-242.
41. Northouse, L.L. (1988a). Family issues in cancer care. Advances in Psychosomatic Medicine, 18, 82-101.
42. Northouse, L.L. (1988b). Social support in patients' and husbands' adjustment to breast cancer. Nursing Research, 37, 91-95.
43. Northouse, P.G., & Northouse, L.L. (1987). Communication and cancer: Issues confronting patients, health professionals, and family members. Journal of Psychosocial Oncology, 5(3), 17-46.
44. Northouse, L.L., & Swain, M.A. (1987). Adjustment of patients and husbands to the initial impact of breast cancer. Nursing Research, 36, 221-225.
45. Oberst, M.T., Hughes, S.H., Chang, A.S., & McCubbin, M.A. (1991). Self-care burden, stress appraisal, and mood among persons receiving radiotherapy. Cancer Nursing, 14, 71-78.
46. Oberst, M.T., & James, R.H. (1985). Going home: Patient and spouse adjustment following cancer surgery. Topics in Clinical Nursing, 7(1), 46-57.
47. Oberst, M.T., & Scott, D.W. (1988). Postdischarge distress in surgically treated cancer patients and their spouses. Research in Nursing & Health, 11, 223-233.
48. Oberst, M.T., Thomas, S. E., Gass, K.A., & Ward, S.E. (1989). Caregiving demands and appraisal of stress among family caregivers. Cancer Nursing, 12, 209-215.
49. Orem, D.E. (1995). Nursing: Concepts of practice (5th ed.). St. Louis: Mosby.
50. Perry, G.R., & de Meneses, M.R. (1989). Cancer patients at home: Needs and coping styles of primary caregivers. Home Healthcare Nurse, 7(6), 27-30.
51. Rhodes, V.A., Watson, P.M., & Hanson, B.M. (1988). Patients' descriptions of the influence of tiredness and weakness on self-care abilities. Cancer Nursing, 11, 186-194.
52. Richardson, A. (1992). Studies exploring self-care for the person coping with cancer treatment: A review. International Journal of Nursing Studies, 29, 191-204.
53. Robinson, B., & Thurnher, M. (1979). Taking care of aged parents: A family cycle transition. The Gerontologist, 19, 586-593.
54. Rose, A.M. (1962). A systematic summary of symbolic interaction theory. In A.M. Rose (Ed.), Human behavior and social processes (pp. 3-19). Boston: Houghton Mifflin.
55. Sandelowski, M. (1986). The problem of rigor in qualitative research. Advances in Nursing Science, 8(3), 27-37.
56. Schott-Baer, D. (1993). Dependent care, caregiver burden, and self-care agency of spouse caregivers. Cancer Nursing, 16, 230-236.
57. Schumacher, K.L. (1995). Family caregiver role acquisition: Role-making through situated interaction. Scholarly Inquiry for Nursing Practice, 9, 211-226.
58. Schumacher, K.L., Dodd, M.J., & Paul, S.M. (1993). The stress process in family caregivers of persons receiving chemotherapy. Research in Nursing & Health, 16, 395-404.
59. Stetz, K.M., & Hanson, W.K. (1992). Alterations in perceptions of caregiving demands in advanced cancer during and after the experience. The Hospice Journal, 8(3), 21-34.
60. Stewart, B.J., Archbold, P.G., Harvath, T.A., & Nkongho, N.O. (1993). Role acquisition in family caregivers for older people who have been discharged from the hospital. In S.G. Funk, E.M. Tornquist, M.T. Champagne, & R.A. Wiese (Eds.), Key aspects of caring for the chronically ill: Hospital and home (pp. 219-231). New York: Springer.
61. Stone, R., Cafferata, G.L., & Sangl, J. (1987). Caregivers of the frail elderly: A national profile. The Gerontologist, 27, 616-626.
62. Strauss, A.L. (1987). Qualitative analysis for social scientists. Cambridge: Cambridge University Press.
63. Strauss, A., & Corbin, J. (1990). Basics of qualitative research. Newbury Park, CA: Sage.
64. Strauss, A., & Corbin, J. (1994). Grounded theory methodology: An overview. In N.K. Denzin & Y.S. Lincoln (Eds.), Handbook of qualitative research (pp. 273-285). Thousand Oaks, CA: Sage.
65. Stryker, S., & Statham, A. (1985). Symbolic interaction and role theory. In G. Lindzey & E. Aronson (Eds.), Handbook of social psychology (3rd ed., pp. 311-378). New York: Random House.
66. Suitor, J.J., & Pillemer, K. (1994). Family caregiving and marital satisfaction: Findings from a 1-year panel study of women caring for parents with dementia. Journal of Marriage and the Family, 56, 681-690.
67. Thornton, R., & Nardi, P.M. (1975). The dynamics of role acquisition. American Journal of Sociology, 80, 870-885.
68. Turner, J.H. (1986). The structure of sociological theory (4th ed.). Belmont, CA: Wadsworth.
69. Turner, R.H. (1962). Role-taking: Process versus conformity. In A.M. Rose (Ed.), Human behavior and social processes (pp. 20-40). Boston: Houghton Mifflin.
70. Weisman, A.D., & Worden, J.W. (1976). The existential plight in cancer: Significance of the first 100 days. Psychiatry in Medicine, 7, 1-15.
71. Zarit, S.H., Reever, K.E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20, 649-655.