Sexual functioning among women with physical disabilities

Archives of Physical Medicine and Rehabilitation

Volumn 77, Issue 2, 1996, Pages 107-115

  Nosek, Margaret A ^a   Rintala, Diana H ^a   Young, Mary Ellen ^a   Howland, Carol A ^a   Foley, Catherine Clubb ^a   Rossi, Don ^a   Chanpong, Gail ^a  

^a BAYLOR COLLEGE OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CONTROLLED STUDY; FEMALE; HUMAN; MAJOR CLINICAL STUDY; PHYSICAL DISABILITY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SATISFACTION; SELF CONCEPT; SELF ESTEEM; SEXUAL BEHAVIOR; SEXUALITY; SOCIAL ASPECT;

EID: 0030031582     PISSN: 00039993     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0003-9993(96)90154-9     Document Type: Article

References (124)

1. Frank E, Anderson C, Rubinstein D. Frequency of sexual dysfunction in "normal" couples. N Engl J Med 1978;299:111-5.
2. Kinsey AC, Pomeroy WB, Martin CE, Gebhard DH. Sexual behavior in the human female. Philadelphia: Saunders, 1958.
3. Kolodny RC, Masters WH, Johnson VE. Textbook of sexual medicine. Boston: Little, Brown, 1979.
4. Levin RJ. The physiology of sexual function in women. Clin Obstet Gynaecol 1980;7:213-52.
5. Becker EF. Sexuality and the spinal-cord-injured woman: an interview. Sexuality and Disability 1979;2:278-86.
6. Berard EJJ. The sexuality of spinal cord injured women: physiology and pathophysiology. A review. Paraplegia 1989;27:99-112.
7. Charlifue SW, Gerhart KA, Menter RR, Whiteneck GG, Manley MS. Sexual issues of women with spinal cord injuries. Paraplegia 1992;30:192-9.
8. Francois N, Maury M. Sexual aspects in paraplegic patients. Paraplegia 1987;25:289-92.
9. Griffith ER, Tomko MA, Timms RJ. Sexual function in spinal cord injured patients - A review. Arch Phys Med Rehabil 1973;54:539-43.
10. Griffith ER, Triecschmann RB. Sexual functioning in women with spinal cord injury. Arch Phys Med Rehabil 1975;56:18-21.
11. Thornton CE. Sexuality counseling of women with spinal cord injuries. Sexuality and Disability 1979;4:267-77.
12. Dechesne BHH, Pons C, Schellen AMCM, editors. Sexuality and handicap: problems of motor handicapped people. Springfield, IL: Charles C. Thomas, 1986:22-9.
13. Axel S. Spinal cord injured women's concerns: menstruation and pregnancy. Rehabil Nurs 1982;10:10-5.
14. Carty EA, Conine TA. Disability and pregnancy: a double dose of disequilibrium. Rehabil Nurs 1988;13:85-92.
15. Craig DI. The adaptation to pregnancy of spinal cord injured women. Rehabil Nurs 1990;15:6-9.
16. Comarr AE. Sexual response of paraplegic women. Medical Aspects of Human Sexuality 1976;10:124-8.
17. Greenspoon JS, Paul RH. Paraplegia and quadriplegia: special considerations during pregnancy and labor and delivery. Am J Obstet Gynecol 1986;155:738-41.
18. Jackson AB, Varner RE. Gynecological problems encountered in women with acute and chronic spinal cord disabilities [abstract]. Abstracts Digest 1989;111-2.
19. Johnston B. Pregnancy and childbirth in women with spinal cord injuries: a review of literature. Matern Child Nurs J 1982;21:41-6.
20. Leavesley G, Porter J. Sexuality, fertility and contraception in disability. Contraception 1982;26:417-41.
21. Ohry A, Peleg D, Goldman J, David A, Rozin R. Sexual function, pregnancy and delivery in spinal cord injured women. Gynecol Obstet Invest 1978;9:281-91.
22. Reame N. Menstrual health products, practices, and problems. Women's Health 1983;8:37-51.
23. Robertson DNS. Pregnancy and labor in the paraplegic. Paraplegia 1972;16:209-12.
24. Tabash KMA, Brinkman CR, Reff RA. Autonomic dysreflexia in pregnancy. Obstet Gynecol 1982;60:119-21.
25. Verduyn WH. Spinal cord injured women, pregnancy and delivery. Paraplegia 1986;24:231-40.
26. Cole TM. Spinal cord injured patients and sexual dysfunction. Arch Phys Med Rehabil 1975;56:11-2.
27. Warnemuende R. Misconceptions and attitudes about disability and the need for awareness. J Appl Rehabil Counseling 1986;17:50-1.
28. Ray C, West J. I. Social, Sexual and personal implications of paraplegia. Paraplegia 1984;22:75-86.
29. Ford AB, Orfirer AP. Sexual behaviour and the chronically ill patient. Medical Aspects of Human Sexuality 1967;1:51-61.
30. Teal JC, Athelstan GT. Sexuality and spinal cord injury: some psychosocial considerations. Arch Phys Med Rehabil 1975; 56:264-8.
31. Weiss AJ, Diamond MD. Sexual adjustment, identification, and attitudes of patients with myelopathy. Arch Phys Med Rehabil 1966;47:245-50.
32. Bregman S. Sexuality and spinal cord injured woman. Minneapolis: Sister Kenny Institute, 1975.
33. MacDougall JC, Morin S. Sexual attitudes and self-reported behavior of congenitally disabled adults. Can J Behav Sci 1979;11:189-203.
34. Cromer BA, Enrile B, McCoy K, Gerhardstein MJ, Fitzpatrick M, Judis J. Knowledge, attitudes and behavior related to sexuality in adolescents with chronic disability. Dev Med Child Neurol 1990;32:602-10.
35. Sousa JC, Gordon LH, Shurtleff CB. Assessing the development of daily living skills in patients with spina bifida. Dev Med Child Neurol 1976;18(suppl 37):134.
36. McAnarney ER. Social maturation: a challenge for handicapped and chronically ill adolescents. J Adolesc Health Care 1985;6:90-101.
37. Fine M, Asch A. Women with disabilities: essays in psychology, culture, and politics. Philadelphia: Temple University Press, 1988.
38. Brightman AJ, editor. Ordinary moments: the disabled experience. Baltimore: University Park Press, 1984.
39. Hahn H. "The good parts": interpersonal relationships in the autobiographies of physically disabled persons. Wenner-Gren Foundation Working Papers in Anthropology 1983; December: 1-38.
40. Heinrich E, Kriegel L. Experiments in survival. New York: Association for the Aid of Crippled Children, 1961.
41. Cass AS, Bloom BA, Luxenberg M. Sexual function in adults with myelomeningocele. J Urol 1986;136:425-6.
42. Dorner S. Sexual interest and activity in adolescents with spina bitida. J Child Psychol Psychiatr 1977;18:229-37.
43. Comarr AE. Neurological disturbance of sexual function among patients with myelodysplasia. In: McLauren RL, editor. Myelomeningocele. New York: Grunc & Stratton, 1976:797-808.
44. Lonton AP, O'Sullivan AM, Loughlin AM. Spina bifida adults. Zeitschrift für Kinderchirurgie 1983;38(Suppl II):110-2.
45. Castree BJ, Walker JH. The young adult with spina bifida. BMJ 1981;283:1040-2.
46. Bray GD, DeFrank RS, Wolfe TL. Sexual function in stroke survivors. Arch Phys Med Rehabil 1981;62:286-8.
47. Coslett HB, Heilman KM. Male sexual function: impairment after right hemisphere stroke. Arch Neurol 1986;43:1036-9.
48. Fugl-Meyer AR, Jaasko L. Post stroke hemiplegia and sexual intercourse. Scand J Rehabil Med Suppl 1980;7:158-65.
49. Garden FH, Bontke CF, Hoffman M. Sexual functioning and marital adjustment after traumatic brain injury. J Head Trauma Rehabil 1990;5:52-9.
50. Hawton K. Sexual adjustment of men who have had strokes. J Psychosom Res 1984;28:243-9.
51. Keller S, Buchanan DC. Sexuality and disability: an overview. Rehabil Dig 1984;15:3-7.
52. Monga TN, Lawson JS, Inglis J. Sexual dysfunction in stroke patients. Arch Phys Med Rehabil 1981;62:286-8.
53. Monga TN, Monga M, Raina MS, Hardjasudarma M. Hypersexuality in stroke. Arch Phys Med Rehabil 1986;67:415-7.
54. Papadopoulos C. Sexual problems following a stroke. Medical Aspects of Human Sexuality 1986;20:39-40.
55. Sjogren K, Danber JE. Sexuality after stroke with hemiplegia. I. Aspects of sexual function. Scand J Rehabil Med 1983;15:55-61.
56. Sjogren K, Fugl-Meyer AR. Adjustment to life after stroke with special reference to sexual intercourse and leisure. J Psychosom Res 1982;26:409-17.
57. Davis DL, Schneider LK. Ramifications of traumatic brain injury for sexuality. J Head Trauma Rehabil 1990;5:31-7.
58. Berrol S. Issues of sexuality in head-injured adults. In: Bullard DG, Knight SE, editors. Sexuality and physical disability. St. Louis: Mosby, 1981:203-7.
59. Blackerby WF. Disruption of sexuality following a head injury. Natl Head Inj Found Newsletter 1987;7(1):2-8.
60. Blackerby WF. A treatment model for sexuality disturbance following brain injury. J Head Trauma Rehabil 1990;5:73-82.
61. Blackerby WF, Porter S. Psychosocial aspects of sexual dysfunction in head injury. Phys Med Rehabilitation 1989;3:143-55.
62. Boller F, Frank E, editors. Sexual dysfunction in neurological disorders: diagnosis, management, and rehabilitation. New York: Raven Press, 1982:42-88.
63. Crenshaw TL. Head trauma and orgasm. Medical Aspects of Human Sexuality 1985;19:45-6.
64. Crewe NM. Sexually inappropriate behaviour. In: Bishop DS, editor. Behavioural problems and the disabled: assessment and management. Malabar, FL: Robert E. Krieger Publishing, 1984:120-41.
65. Dengrove E. Sexual disorder in posttraumatic and postconcussional states. Medical Trial Quarterly 1964;10:213-6.
66. Gaspard NJ, Boyce BB. Sexual concerns of the head-injured population. Framingham, MA: National Head Injury Foundation, 1984.
67. Imes C. Rehabilitation of the head injury patient. Cognitive Rehabilitation 1983;1:11-9.
68. Kostelijanetz M, Jensen TS, Norgard B, Lundel I, Jensen PB, Johnsen SG. Sexual and hypothalamic dysfunction in the postconcussional syndrome. Acta Neurol Scand 1981;63:169-80.
69. Kreutzer JS, Zasler ND. Psychosexual dysfunction following traumatic brain injury: methodology and preliminary findings. Brain Inj 1989;3:177-86.
70. Lezak ML. Living with the characterologically altered brain injured patient. J Clin Psychiatry 1978;39:592-8.
71. Lishman WA. The psychiatric sequella of head injury: a review. Psychol Med 1973;3:304-18.
72. Mapou RL. Traumatic brain injury rehabilitation with gay and lesbian individuals. J Head Trauma Rehabil 1990;5:67-72.
73. Mauss-Clum N, Ryan M. Brain injury and the family. J Neurosurg Nurs 1981;13:165-9.
74. Meyer JE. Sexual disturbances after cerebral injuries. J Neurovis Rel 1971;Suppl X:519-23.
75. Miller BL, Cummings JL, McIntyre H, Ebers G, Grades M. Hyper-sexuality or altered sexual preference following brain injury. J Neurol Neurosurg Psychiatry 1986;49:867-73.
76. Oddy M, Humphrey M. Social recovery during the year following severe head injury. J Neurol Neurosurg Psychiatry 1980;43:798-802.
77. Remillard GM, Andermann F. Sexual ictal manifestations predominate in women with temporal lobe epilepsy: a finding suggesting sexual dimorphism in the human brain. Neurology 1983;33:323-30.
78. Valentich M, Gripton J. Facilitating the sexual integration of the head-injured person in the community. Sexuality and Disability 1986;7:28-42.
79. Weinstein EA. Sexual disturbances after brain injury. Medical Aspects of Human Sexuality 1974;34:10-31.
80. Weinstein EA, Kahn RL. Patterns of sexual behaviour following brain injury. Psychiatry 1961;24:69-78.
81. Zasler ND, Horn LJ. Rehabilitative management of sexual dysfunction. J Head Trauma Rehabil 1990;5:14-24.
82. Zencius A, Wesolowski MD, Burke WH, Hough S. Managing hypersexual disorders in brain-injured clients. Brain Inj 1990;4:175-81.
83. Willmuth ME. Sexuality after spinal cord injury: a critical review. Clin Psychol Rev 1987;7:389-412.
84. Andres P. Sexual and genital prognosis in adult paraplegics. Paraplegia 1972;10:218-26.
85. Bors E, Comarr AE. Neurologic disturbances of sexual function with special reference to 529 patients with spinal cord injury. Urol Surv 1960;10:191-222.
86. Cole TM. Sexuality and spinal cord injured. In: Green R, editor. Human sexuality: a health practitioner's text. Baltimore: Williams & Wilkins, 1975:146-70.
87. Comarr AE. Sexual function among patients with spinal cord injury. Urol Int 1970;25:134-68.
88. Geiger RC. Neurophysiology of sexual response in spinal cord injury. In: Bullard DG. Knight SE, editors. Sexuality and physical disability: personal perspectives. St. Louis: Mosby, 1981:147-55.
89. Higgins GE. Sexual response in spinal cord injured adults: a review of the literature. Arch Sex Behav 1979;8:173-96.
90. Pagan PJ, Wise TN, Schmidt CW. Sexual effects of multiple sclerosis. Special Issue: The physician's guide to sexual counseling. Medical Aspects of Human Sexuality 1986;20:157-64.
91. Kirkeby HJ, Poulsen EU, Petersen T, Dorup J. Erectile dysfunction in multiple sclerosis. Neurology 1988;38:1366-71.
92. Lilius HG, Valtonen EJ, Wikstrom J. Sexual problems in patients suffering from multiple sclerosis. J Chronic Disabil 1976;29:643-7.
93. Stenager E, Stenager EN, Jensen K, Boldsen J. Multiple sclerosis: sexual dysfunction. J Sex Educ Ther 1990;16:262-9.
94. Stone B, Melman A. Management of sexual and bladder dysfunction in multiple sclerosis. J Neurol Rehabil 1989;3:167-75.
95. Szasz G, Paty D, Lawton-Speert S, Eisen K. A sexual functioning scale in multiple sclerosis. International Federation of Multiple Sclerosis Societies: Symposium on a minimal record of disability for multiple sclerosis. Acta Neurol Scand 1984;70(suppl 101):37-43.
96. Smith BH. Multiple sclerosis and sexual dysfunction. Medical Aspects of Human Sexuality 1976;10:103-4.
97. Szasz G, Paty D, Maurice WL. Sexual dysfunctions in multiple sclerosis. Ann N Y Acad Sci 1984;436:443-52.
98. Garden FH. Incidence of sexual dysfunction in neurologic disability. Sexuality and Disability 1991;9:39-47.
99. Berkman AH, Weissman R, Frielich MH. Sexual adjustment of spinal cord injured veterans living in the community. Arch Phys Med Rehabil 1978;59:29-33.
100. Cole TM, Chilgren R, Rosenberg P. A new programme of sex education and counseling for spinal cord injured adults and health care professionals. Paraplegia 1973;11:111-24.
101. Fitzpatrick WF. Sexual functioning in the paraplegic patient. Arch Phys Med Rehabil 1974;55:221-7.
102. Glass DD, Padrone FJ. Sexual adjustment in the handicapped. J Rehabil 1978;44:1-43.
103. Blake DJ, Maisiak R, Brown S, Koplan A. Acceptance by arthritis patients of clinical inquiry into their sexual adjustment. Psychosomatics 1986;27:576-9.
104. Bregman S, Hadley RG. Sexual adjustment and feminine attractiveness among spinal cord injured women. Arch Phys Med Rehabil 1976;57:448-50.
105. Dell Fitting M, Salisbury S, Davies N, Mayelin DK. Self-concept and sexuality of spinal cord injured women. Arch Sex Behav 1978;7:143-56.
106. Halstead LS, Halstead MM, Salhoot JT, Stock DD, Sparks RW. Human sexuality: interdisciplinary program for health care professionals and physically disabled. South Med J 1976;69:1352-5.
107. Halstead LS, Halstead MG, Salhoot JT, Stock DD, Sparks RW. Sexual attitudes, behavior and satisfaction for able-bodied and disabled-participants attending workshops in human sexuality. Arch Phys Med Rehabil 1978;59:497-501.
108. LoPiccolo J, Steger JC. The Sexual Interaction Inventory: a new instrument for assessment of sexual dysfunction. Arch Sex Behav 1974;3:585-95.
109. Lief HI. Sexual problems in medical practice. Monroe, WI: American Medical Association, 1981.
110. Rosenbaun M, Najenson T. Changes in life patterns and symptoms of low mood as reported by wives of severely brain-injured soldiers. J Couns Clin Psychol 1976;6:881-8.
111. Smith D. Sex and disability: sociosexual education presentation format. In: Tallmer M, DeSanctis P, Bullard DG, Kutscher AH, Roberts MS, Patterson PR, editors. Sexuality and life-threatening illness. Springfield, IL: Charles C. Thomas, 1984:160-5.
112. Ferrandino JJ, Reed V, Marlowe HA. Sexuality education and awareness program. Tampa, FL: Florida Mental Health Institute Program, 1991.
113. Siosteen A. Adjustment to spinal cord injury: a clinical and experimental study on quality of life, sexuality, and fertility. Gothenburg, Sweden: Gothenburg University, 1989:16-8.
114. Garlinghouse NM. Sexuality of male cerebral vascular accident victims. Sexuality and Disability 1987;8:67-72.
115. Beckmann CRB, Gittler M, Barzansky BM, Beckmann CA. Gynecologic health care of women with disabilities. Obstet Gynecol 1989;74:75-9.
116. Curry SL, Levine SB, Jones PK, Kuril DM. Medical and psychosocial predictors of sexual outcome among women with systemic lupus erythematosus. Arthritis Care Res 1993;6:23-30.
117. Schreiner-Engel P, Schiavi RC, Vietorisz D, Smith H. The differential impact of diabetes type on female sexuality. J Psychosom Res 1987;31:23-33.
118. Schover LR, Friedman JM, Weiler SJ, Heiman JR, LoPiccolo J. Multiaxial problem-oriented system for sexual dysfunctions. Arch Gen Psychiatry 1982;39:614-9.
119. Kaplan HS. The new sex therapy. New York: Brunner/Mazel, 1974.
120. American Psychiatric Association. Diagnostic and statistical manual of mental disorders. 3rd ed. Washington, DC: American Psychiatric Association, 1987.
121. Wager M, Neuspiel D, Coupey SM. Sexual behavior of chronically ill adolescent girls: evidence of unmet health needs. Pediatr Res 1986;20:158A.
122. Rosenberg M. Appendix D: Scales and scores. In: Anonymous Society and the adolescent self-image. Princeton, NJ: Princeton University Press, 1965:305-19.
123. Nosek MA, Fuhrer MJ, Howland CA. Independence among people with disabilities: II. Personal Independence Profile. Rehabil Couns Bull 1992;36:21-36.
124. Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Med Care 1992;30:473-83.