Parents' responses to predictive genetic testing in their children: Report of a single case study

Journal of Medical Genetics

Volumn 33, Issue 4, 1996, Pages 313-318

  Michie, Susan ^a   McDonald, Valerie ^a   Bobrow, Martin ^b   McKeown, Carole ^c   Marteau, Theresa ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b CAMBRIDGE UNIVERSITY HOSPITALS NHS FOUNDATION TRUST   (United Kingdom)

^c BIRMINGHAM WOMEN S HOSPITAL   (United Kingdom)

Author keywords

Children; Predictive genetic testing; Psychological impact

Indexed keywords

ADENOMATOUS POLYP; ARTICLE; ATTITUDE; BEHAVIOR; CASE REPORT; DECISION MAKING; FEMALE; GENETIC SCREENING; HEALTH PRACTITIONER; HUMAN; INTERVIEW; MALE; MEDICAL INFORMATION; MOOD; PARENTAL BEHAVIOR; PRESCHOOL CHILD; PRIORITY JOURNAL; RESPONSIBILITY;

EID: 0029999046     PISSN: 00222593     EISSN: None     Source Type: Journal    
DOI: 10.1136/jmg.33.4.313     Document Type: Article

References (14)

1. Michie S. Predictive genetic testing in children: paternalism or empiricism? In: Marteau TM, Richards MPM, eds. The troubled helix: social and psychological implications of the new human genetics. Cambridge: Cambridge University Press, 1996:177-83.
2. Clarke A, Flinter F. The genetic testing of children: a clinical perspective. In: Marteau TM, Richards MPM, eds. The troubled helix: social and psychological implications of the new human genetics. Cambridge: Cambridge University Press, 1996:164-76.
3. Clinical Genetics Society. Report of the working party on the genetic testing of children (Clarke A, chairman). J Med Genet 1994;31:785-97.
4. Morris M, Tyler A, Lazarou L, Meredith L, Harper PS. Problems in genetic prediction for Humington's disease. Lancet 1989;ii:601-3.
5. Tibben A. On psychological effects of presymptomatic DNA-testing for Huntington's disease. PhD thesis, Rotterdam University, The Netherlands, 1993.
6. Barnes C. Genetic testing of children. Fourth European Conference of Psychosocial Aspects of Genetics, Heidelberg, 1994.
7. Marteau TM. The genetic testing of children. J Med Genet 1994;34:743.
8. Michie S, McDonald V, Marteau T. Understanding responses to predictive genetic testing: a grounded theory approach. Psychol Health (in press).
9. Marteau T, Bekker H. The development of a six-item short-form of the state scale of the Spielberger State-Trait Anxiety Inventory (STAI). Br J Clin Psychol 1992;31:301-6.
10. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983;67:361-70.
11. Rosenberg M. Society and the adolescent self image. Princeton: Princeton University Press, 1965.
12. Horowitz M, Wilner N, Alvarez W. Impact of event scale: a measure of subjective distress. Psychosom Med 1979;41:209-18.
13. Wiggins S, Whyte P, Huggins M, et al. The psychological consequences of predictive testing for Huntington's disease. N Engl J Med 1992;327:1401-5.
14. Lynch HT. DNA screening for breast/ovarian cancer susceptibility based on linked markers - a family study. Arch Intern Med 1993;153:1979-87.