Health-related quality of life

Current Opinion in Gastroenterology

Volumn 12, Issue 1, 1996, Pages 39-43

  Fullerton, Steven C ^a  

^a UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CHRONIC DISEASE; COLON DISEASE; DIABETES MELLITUS; DISEASE DURATION; ENTERITIS; HEALTH; HEALTH CARE DELIVERY; HEALTH CARE POLICY; HUMAN; HYPERTENSION; MEASUREMENT; ONSET AGE; QUALITY OF LIFE; RHEUMATOID ARTHRITIS; SHORT SURVEY;

EID: 0029993567     PISSN: 02671379     EISSN: None     Source Type: Journal    
DOI: 10.1097/00001574-199601000-00008     Document Type: Short Survey

References (36)

1. World Health Organization: Basic Documents. Geneva: World Health Organization; 1948.
2. Patrick DL, Erickson P: Health Status and Health Policy: Allocating Resources to Health Care. Oxford: Oxford University Press; 1993.
3. Stewart AL, Ware JE Jr: Measuring Functioning and Well-Being: The Medical Outcomes Study Approach. Durham, NC: Duke University Press; 1992.
4. Bergner M: Quality of life, health status and clinical research. Med Care 1989, 27(suppl):S148-S156.
5. Kirshner B, Guyatt GH: A methodological framework for assessing health indices. J Chronic Dis 1985, 38:27-36.
6. Ware JE Jr: Measuring patient's views: the optimum outcome measure. BMJ 1993, 306:1429-1430.
7. Lansky D, Butler JBV, Waller FT: Using health status measures in the hospital setting: from acute care to outcomes management Med Care 1992, 30(suppl):S57-S73.
8. Roper WL, Winkenwender W, Hackbarth GM, Krakauer R: Effectiveness In health care: an initiative to evaluate and improve medical practice. W Engl J Med 1988, 319:1197-1202.
9. Ellwood P: Outcomes management: a technology of patient experience [Shattuck Lecture]. New Engl J Med 1988, 318:1549-1556.
10. Wilson IB, Kaplan S: Clinical practice and patients' health status: how are the two related? Med Care 1995, 33(suppl):S209-S214. This paper discusses the causal linkages between clinical disease processes and health status outcomes and suggests ways of integrating these concepts in clinical decision making.
11. Guyatt GH, Feeny DH, Patrick DL: Measuring health related quality of life. Ann Intern Med 1993, 118:622-629.
12. Kaplan RM, Bush JW: Health-related quality of life measurement for evaluation research and policy analysis. Health Psychol 1982, 1:61-80.
13. Campbell A: A Sense of Well-Being in America: Recent Patterns and Trends. New York: McGraw-Hill; 1981.
14. Testa MA, Nackley JF: Methods for quality of life studies. Ann Rev Public Health 1994, 15:585-559.
15. Ware JE Jr: Scales for measuring general health perceptions. Health Serv Res 1976, 11:396-415.
16. Ware JE Jr, Sherbourne CD: The MOS 36-Item Short Form Health Survey (SF-36): I. Conceptual framework and Item selection. Med Care 1992, 130:472-483.
17. Stewart AL, Hays RD, Ware JE Jr: The MOS short-form general health survey: reliability and validity in a patient population. Med Care 1988, 26:724-735.
18. Patrick D, Deyo RA: Generic and disease-specific measures in assessing health status and quality of life. Med Care 1989, 27(suppl):S217-S233.
19. Barr JT: The outcomes movement and health status measures. J Allied Health 1995, 24:13-28. A good review of use of HRQOL assessment in patient outcomes research and how it can be used as part of a continuous quality improvement program.
20. Ware JE Jr: Standards for validating health measures: definition and content J Chronic Dis 1987, 40:473-480.
21. Kessler RC, Mroczek DK: Measuring the effects of medical interventions. Med Care 1995, 33(suppl):S109-S119. This article reviews a number of important issues in selecting HRQOL measures and the relative importance of reliability and validity criteria.
22. Guyatt GH, Walter S, Norman G: Measuring change over time: assessing the usefulness of evaluative Instruments. J Chronic Dis 1987, 4:171-178.
23. Cunningham WE, Bozzette SA, Hays RD, Kanouse DE, Shapiro MF: Comparison of health-related quality of life in clinical trial and nonclinical trial human immunodeficiency virus-infected cohorts. Med Care 1995, 33(suppl):S15-S25. One of the few studies that has specifically examined HRQOL assessment dif-ferences between clinical trial participants and the general population.
24. Glise H, Hallerback B: Quality of life in gastrointestinal disease: reports from working groups and conclusions. Scand J Gastroenterol Suppl 1993, 199:47-49.
25. American Gastroenterological Association: A primer on outcomes research for the gastroenterologist: report of the American Gastroenterological Association task force on outcomes research. Gastroenterology 1995, 109:302-306. Excellent overview of the present and future uses of HRQOL and the newly evolving concept of patient outcomes research in gastroenterology. Provides recommendations and conclusions for future research directions.
26. Irvine EJ, Feagan B, Rochon J, Archambault A, Fedorak RN, Groll A, Kinnear D, Saibil F, McDonold JW: Quality of life: a valid and reliable measure of therapeutic efficacy in the treatment of inflammatory bowel disease. Gastroenterology 1994, 106:287-296.
27. Irvine EJ: Quality of life in inflammatory bowel disease: biases and other factors affecting scores. Scand J Gastroenterol 1995, 208(suppl):136-140.
28. Welch G, Richter J, Kawachi I, Bachwich D: The SF-36 quality of life measure in inflammatory bowel disease: an evaluation of its reliability and validity [abstract]. Gastroenterology 1995, 108(suppl):940.
29. Turnbull GK, Vallis TM, Luyendyk Y, Tanton RT, Schep GN: What predicts quality of life in Crohn's and ulcerative colitis patients? [abstract]. Gastroenterology 1995, 108(suppl):931.
30. Provenzale D, Shearin M, Tillinger W, Phillips-Bute B, Sherman R, Bollinger M, Koruda D, Drossman D, Wong JB: The effect of post-operative health status on decisions for prophylactic colectomy or surveillance in patients with ulcerative colitis [abstract]. Gastroenterology 1995, 108(suppl):30.
31. O'Keefe EA, Talley NJ, Zinsmeister AR, Jacobsen SJ: Bowel disorders impair functional status and quality of life in the elderly: a population-based study. J Gerontol a Biol Sci Med Sci 1995, 50:M184-M189.
32. Reilly WT, Talley NJ, Pemberton JH, Schleck CD, Zinsmeister AR: Impact of fecal incontinence on health perception and daily activities in a random sample of community subjects [abstract]. Gastroenterology 1995, 108(suppl):676.
33. Diehl DL, Fullerton SC, Mayer EA: Functional bowel disease symptoms in patients with chronic fatigue syndrome: prevalence and quality of life [abstract]. Gastroenterology 1995, 108(suppl):592.
34. Dapoigny M, Abitbol JL, Meric G, Geneve J, Fraitag B: Fedotozine in irritable bowel syndrome: results of a 6 week placebo controlled multicenter therapeutic trial [abstract]. Gastroenterology 1995, 108(suppl):588.
35. Lynn J, Virnig BA: Assessing the significance of treatment effects: comments from the perspective of ethics. Med Care 1995, 33(suppl):S292-S298. One of the few articles that addresses value judgment in the determination of alternative treatments and that incorporates both efficacy and overall effectiveness measures. The need for more explicit definition of outcome measures is highlighted.
36. Ware JD Jr: Development of the SF-36. In SF-36 Health Survey: Manual and Interpretation. Boston: The Health Institute, New England Medical Center; 1993:1-22.