Decision making with respect to diagnostic testing: A method of valuing the benefits of antenatal screening

Medical Decision Making

Volumn 16, Issue 2, 1996, Pages 161-168

  Cairns, John ^a   Shackley, Phil ^a   Hundley, Vanora ^a  

^a UNIVERSITY OF ABERDEEN   (United Kingdom)

Author keywords

antenatal screening; benefits; expected utility; information; standard gamble

Indexed keywords

AMNIOCENTESIS; ARTICLE; CONTROLLED STUDY; CYSTIC FIBROSIS; DIAGNOSTIC TEST; FEMALE; FETUS WASTAGE; HETEROZYGOTE; HUMAN; MAJOR CLINICAL STUDY; MEDICAL DECISION MAKING; METHODOLOGY; PRENATAL SCREENING;

ADULT; CYSTIC FIBROSIS; DECISION MAKING; FEMALE; GENETIC SCREENING; HETEROZYGOTE DETECTION; HUMANS; INFANT, NEWBORN; MALE; MODELS, STATISTICAL; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); PATIENT ACCEPTANCE OF HEALTH CARE; PREGNANCY; PRENATAL DIAGNOSIS;

EID: 0029970368     PISSN: 0272989X     EISSN: None     Source Type: Journal    
DOI: 10.1177/0272989X9601600208     Document Type: Article

References (11)

1. British Paediatric Association Working Party on Cystis Fibrosis. Cystic fibrosis in the United Kingdom 1977-85: an improving picture. Br Med J. 1988;297:1599-602.
2. Riordan JR, Rommens JM, Kerem B, et al. Identification of the cystic fibrosis gene: cloning and characterization of complementary DNA Science. 1989;245:1066-73.
3. Kerem B, Rommens JM, Buchanan JA, et al. Identification of the cystic fibrosis gene: genetic analysis. Science. 1989;245:1073-80.
4. Miedzybrodzka ZH, Hall MH, Mollison J, et al. Antenatal screening for carriers of cystic fibrosis: randomised trial of stepwise v couple screening. Br Med J. 1995;310:353-7.
5. Miedzybrodzka ZH, Dean JCS, Russell G, Friend JAR, Kelly KF, Haites NE. Prevalence of cystic fibrosis mutations in the Grampian region of Scotland. J Med Genet. 1993;30:316-7.
6. Miedzybrodzka Z, Haites N, Hall M, et al. Antenatal cystic fibrosis carrier screening - whether, when and how? Paediatr Perinat Epidemiol. 1993;7:368-75.
7. Berwick DM, Weinstein MC. What do patients value? Willingness to pay for ultrasound in normal pregnancy. Med Care. 1985;23:881-93.
8. Lange M, Norby S, Mooney G. Developing a cost benefit approach to prenatal analysis for ADPKD. Paper presented at a workshop organized by the Project Management Group of the EC Concerted Action, Paris, France, 7-8 June, 1990.
9. Botkin JR, Alemagno S. Carrier screening for cystic fibrosis: a pilot study of the attitudes of pregnant women. Am J Public Health. 1992;82:723-5.
10. Green JM. Principles and practicalities of carrier screening: attitudes of recent parents. J Med Genet. 1992;29:313-9.
11. Wertz DC, Janes SR, Rosenfield JM, Erbe RW. Attitudes toward the prenatal diagnosis of cystic fibrosis: factors in decision making among affected families. Am J Hum Genet. 1992;50:1077-85.