Behavioral capabilities and mortality risk in adults with and without Down syndrome

American Journal on Mental Retardation

Volumn 101, Issue 3, 1996, Pages 269-281

  Strauss, David ^a   Zigman, Warren B ^b  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b NEW YORK STATE INSTITUTE FOR BASIC RESEARCH IN DEVELOPMENTAL DISABILITIES   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTATION; ADULT; ARTICLE; BEHAVIOR; DEFENSE MECHANISM; DOWN SYNDROME; FEMALE; FUNCTIONAL ASSESSMENT; HUMAN; INCIDENCE; MAJOR CLINICAL STUDY; MALE; MENTAL DEFICIENCY; MORTALITY; RATING SCALE; SKILL;

ACTIVITIES OF DAILY LIVING; ADULT; AGE FACTORS; AGED; APRAXIAS; CALIFORNIA; CHI-SQUARE DISTRIBUTION; CROSS-SECTIONAL STUDIES; DATABASES, FACTUAL; DISEASE PROGRESSION; DOWN SYNDROME; FEMALE; HUMANS; INCIDENCE; LIKELIHOOD FUNCTIONS; LOGISTIC MODELS; LONGITUDINAL STUDIES; MALE; MENTAL RETARDATION; MIDDLE AGED; PREVALENCE; SEVERITY OF ILLNESS INDEX;

EID: 0029806254     PISSN: 08958017     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (46)

1. Aylward, E. H., Burt, D. B., Thorpe, L. U., Lai, F., & Dalton, A. J. (1995). Diagnosis of dementia in individuals with intellectual disability. Washington, DC: American Association on Mental Retardation.
2. Arias, M., Ito, E., & Takagi, N. (1983). Concurrent validity of the Client Development and Evaluation Report. In A. B. Silverstein & A. L. Fluharty (Eds.), Pacific State archives VIII (pp. 28-33). Pomona: University of California at Los Angeles, Developmental Disabilities Immersion Program.
3. Ball, M. J., & Nuttall, K. (1980). Neurofibrillary tangles, granulovacuolar degeneration, and neuron loss in Down syndrome: Quantitative comparison with Alzheimer dementia. Annals of Neurology, 7, 462-465.
4. Barcikowska, M., Silverman, W. P., Zigman, W. B., Kozlowski, P. B., Kujawa, M., Rudelli, R., & Wisniewski, H. M. (1989). Alzheimer-type neuropathology and clinical symptoms of dementia in mentally retarded people without Down syndrome. American Journal on Mental Retardation, 93, 551-557.
5. Breslow, N. E., & Day, N. E. (1980). Statistical methods in cancer research: Vol. 1. The analysis of case-control studies. Lyon, France: International Agency on Cancer Research.
6. Brown, W. T. (1985). Genetics of aging. In M. P. Janicki & H. M. Wisniewski (Eds.), Aging and developmental disabilities: Issues and approaches (pp. 185-194). Baltimore: Brookes.
7. Burt, D. B., Loveland, K. A., & Lewis, K. R. (1992). Depression and the onset of dementia in adults with mental retardation. American Journal on Mental Retardation, 96, 502-511.
8. Carter. G., & Jancar, J. (1983). Mortality in the mentally handicapped: A 50 year survey at the Stokes Park group of hospitals. Journal of Mental Deficiency Research, 27, 143-156.
9. Collacott, R. A. (1992). The effect of age and residential placement on adaptive behaviour of adults with Down's syndrome. British Journal of Psychiatry, 161, 675-079.
10. Collacott, R. A. (1993). Epilepsy, dementia and adaptive behaviour in Down's syndrome. Journal of Intellectual Disability Research, 37, 153-160.
11. Cox, D., & Oakes, D. (1984). Analysis of survival data. London: Chapman and Hall.
12. Department of Developmental Services. (1978). Client Development Evaluation Report. Sacramento, CA: Author.
13. Durkin, M. S., Schupf, N., Stein, Z. A., & Susser, M. W. (1994). Epidemiology of mental retardation. In M. Levene & R. Lifford (Eds.), Fetal and neonatal neurology and neurosurgery (2nd ed.). London: Churchill, Livingston.
14. Evenhuis, H. M. (1990). The natural history of dementia in Down's syndrome. Archives of Neurology, 47, 263-267.
15. Eyman, R. K., Call, T. L., & White, J. F. (1989). Mortality of elderly mentally retarded persons in California. The Journal of Applied Gerontology, 8, 203-215.
16. Eyman, R. K., Call, T. L., & White, J. F. (1991). Life expectancy of persons with Down syndrome. American Journal on Mental Retardation, 95, 603-612.
17. Eyman, R. K., Grossman, H. J., Chaney, R. H., & Call, T. L. (1990). The life expectancy of profoundly handicapped people with mental retardation. New England Journal of Medicine, 323, 584-589.
18. Eyman, R. K., Grossman, H. J., Chancy, R. H., & Call, T. L. (1993). Survival of profoundly disabled people with severe mental retardation. American Journal of Diseases of Children, 147, 329-336.
19. Eyman, R. K., Olmstead, C. E., Grossman, H. J., & Call, T. L. (1993). Mortality and the acquisition of basic skills by children and adults with severe disabilities. American Journal of Diseases of Children, 147, 216-222.
20. Harris, C. W., Eyman, R. K., & Mayeda, T. (1982). An interrater reliability study of the Client Development Evaluation Report: Final report to the California Department of Developmental Disabilities. Pomona: University of California at Los Angeles, Mental Retardation Research Center, Lanterman State Hospital.
21. Haveman, M. J., & Maaskant, M. A. (1989). Defining fragility of the elderly severely mentally handicapped according to mortality risk, morbidity, motor handicaps and social functioning. Journal of Mental Deficiency Research, 33, 389-397.
22. Hosmer, D. W., & Lemeshow, S. (1989). Applied logistic regression. New York: Wiley.
23. Jervis, G. A. (1948). Early senile dementia in mongoloid idiocy. American Journal of Psychiatry, 105, 102-106.
24. Krauss, M. W., & Seltzer, M. M. (1986). Comparison of elderly and adult mentally retarded persons in community and institutional settings. American Journal of Mental Deficiency, 91, 237-243.
25. Lai, F., & Williams, R. S. (1989). A prospective study of Alzheimer disease in Down syndrome. Archives of Neurology, 46, 849-853.
26. Malamud, N. (1972). Neuropathology of organic brain syndromes associated with aging. In C. M. Gaitz (Ed.), Aging and the brain (pp. 63-77). New York: Plenum Press.
27. Martin, G. M. (1978). Genetic syndromes in man with potential relevance to pathobiology of aging. In D. Bergsma & D. E. Harrison (Eds.), Genetic effects on aging, birth defects: Original articles (Vol. XIV, pp. 5-39). New York: Liss.
28. Popovitch, E. R., Wisniewski, H. M., Barcikowska, M., Silverman, W., Bancher, C., Sersen, E., & Wen, G. Y. (1990). Alzheimer neuropathology in non-Down's syndrome mentally retarded adults. Acta Neuropathologica (Berlin), 80, 362-367
29. Rothman, K.J. (1986). Modern epidemiology. Boston: Little, Brown.
30. Schupf, N., Silverman, W. P., Sterling, R. C., & Zigman, W. B. (1989). Down syndrome, terminal illness and risk for dementia of the Alzheimer type. Brain Dysfunction, 2, 181-188.
31. Silverstein, A. B., Herbs, D., Miller, T. J., Nasuta, R., Williams, D. L., & White, J. F. (1988). Effects of age on the adaptive behavior of institutionalized and noninstitutionalized individuals with Down syndrome. American Journal on Mental Retardation, 92, 455-460.
32. Silverstein, A. B., Herbs, D., Nasuta, R., & White, J. F. (1986). Effects of age on the adaptive behavior of institutionalized individuals with Down syndrome. American Journal of Mental Retardation, 90, 659-662.
33. Solitaire, G. C., & Lamarche, J. B. (1966). Alzheimer's disease and senile dementia as seen in mongoloids: Neuropathological observations. American Journal of Mental Deficiency, 70, 840-848.
34. Strauss, D., & Eyman, R. K. (1996). Mortality of people with mental retardation in California, 1986-1991. American Journal of Mental Retardation, 100, 643-653.
35. Strauss, D., Eyman, R. K., & Grossman, H. J. (in press). The prediction of mortality in children with severe mental retardation: The effect of placement. American Journal of Public Health.
36. Strauss, D., & Kastner, T. (1996). Comparative mortality of people with developmental disabilities in institutions and the community. American Journal of Mental Retardation, 101, 26-40.
37. Thase, M. E., Liss, L., Smeltzer, D., & Maloon, J. (1982). Clinical evaluation of dementia in Down's syndrome: A preliminary report. Journal of Mental Deficiency Research, 26, 239-244.
38. Thase, M. E., Tigner, R., Smeltzer, D. J., & Liss, L. (1984). Age-related neuropsychological deficits in Down syndrome. Biological Psychiatry, 19, 571-585.
39. U.S. Department of Health and Human Services. (1980). The international classification of diseases, 9th revision, Clinical modification (Vol. 1). Washington, DC: U.S. Government Printing Office.
40. Widaman, K. F. (1984, August). Interrater reliability of adaptive behavior assessments: Item and factor levels. Paper presented at the annual meeting of the American Psychological Association, Toronto, Ontario.
41. Widaman, K. F., Stacy, A. W., & Borthwick, S. A. (1985, May). Multitrait-multimethod of evaluating adaptive and maladaptive behavior of mentally retarded people Paper presented at the annual meeting of the American Association on Mental Deficiency, Philadelphia.
42. Wisniewski, K., Wisniewski, H. M., & Wen, G. Y. (1985). Occurrence of Alzheimer's neuropathology and dementia in Down syndrome. Annals of Neurology, 17, 278-282.
43. Zigman, W. B., Schupf, N., Lubin, R. A., & Silverman, W. P. (1987). Premature regression of adults with Down syndrome. American Journal of Mental Deficiency, 92, 161-168.
44. Zigman, W. B., Schupf, N., Sersen, E., & Silverman, W. (1995). Prevalence of dementia in adults with and without Down syndrome. American Journal on Mental Retardation, 100, 403-412.
45. Zigman, W. B., Schupf, N., Silverman, W. P., & Sterling R. C. (1989). Changes in adaptive functioning of adults with developmental disabilities. Australian and New Zealand Journal of Developmental Disabilities, 15, 277-287.
46. Zigman, W. B., Schupf, N., Zigman, A., & Silverman, W. (1993). Aging and Alzheimer disease in people with mental retardation. In N. W. Bray (Ed.), International review of research in mental retardation (Vol. 19, pp. 41-70). New York: Academic Press.