-
1
-
-
0004347147
-
Understanding Our Genetic Inheritance, The Human Genome Project: The First Five Years, FY 1991-1995
-
(NIH Publication No. 90-1590, Washington, DC) p. 65. (Available from the National Technical Information Service, U.S. Department of Commerce, Springfield, VA 22161.) Hereafter, Underslaruiing
-
U.S. Department of Health and Human Services and U.S. Department of Energy. (1990). Understanding Our Genetic Inheritance, The Human Genome Project: The First Five Years, FY 1991-1995. (NIH Publication No. 90-1590, Washington, DC) p. 65. (Available from the National Technical Information Service, U.S. Department of Commerce, Springfield, VA 22161.) Hereafter, Underslaruiing.
-
(1990)
-
-
-
2
-
-
0026774858
-
U.S. Department of Health and Human National Center for Human Genome Research
-
Understanding, p. 56. See also, Annual Report. pp. 10-31 and NIH/CEPH Collaborative Mapping Group. A comprehensive genetic linkage map of the human genome, Science
-
Understanding, p. 56. See also U.S. Department of Health and Human National Center for Human Genome Research, Annual Report. 1990, pp. 10-31 and NIH/CEPH Collaborative Mapping Group. A comprehensive genetic linkage map of the human genome, Science, 258: 67-69.
-
(1990)
, vol.258
, pp. 67-69
-
-
-
3
-
-
85012537534
-
-
Understanding
-
Understanding, p. 65.
-
-
-
-
4
-
-
0038007226
-
Guidelines for Predictive Testing for Huntington's Disease
-
(New York, HDSA, November)
-
Huntington's Disease Society of America. (1989). Guidelines for Predictive Testing for Huntington's Disease (New York, HDSA, November);
-
(1989)
-
-
-
5
-
-
0026366030
-
The physician as fortuneteller
-
MacKay, C. (1992). The physician as fortuneteller. J. Clin. Ethics, 2(4), 228-238;
-
(1992)
J. Clin. Ethics
, vol.2
, Issue.4
, pp. 228-238
-
-
MacKay, C.1
-
6
-
-
0026266856
-
Medical and Ethical Consequences of the Human Genome Project
-
Collins, F. (1992). Medical and Ethical Consequences of the Human Genome Project. J. Clin. Ethics 2(4), 260-267.
-
(1992)
J. Clin. Ethics
, vol.2
, Issue.4
, pp. 260-267
-
-
Collins, F.1
-
7
-
-
85012484167
-
Annals of eugenics: A secular faith, I-IV
-
The New Yorker, October, 8, 15, 22, and 29. See also the fuller account in Kevles, D. (1985). In the Name of Eugenics: Genetics and Ihe Use of Human Heredity. (Knopf, New York) and Kevles, D. and Hood, L. (1991). The code of codes: Scientific and social issues in the human genome project. (Harvard University Press, Cambridge), especially the essays by Kevles, Evelyn Fox Keller, and Dorothy Nelkin. Duster, T. (1990). Backdoor to Eugenics (Routledge, New York) offers the perspective of a minority threatened with becoming a permanent social underclass
-
Kevles, D. (1984). Annals of eugenics: A secular faith, I-IV. The New Yorker, October, 8, 15, 22, and 29. See also the fuller account in Kevles, D. (1985). In the Name of Eugenics: Genetics and Ihe Use of Human Heredity. (Knopf, New York) and Kevles, D. and Hood, L. (1991). The code of codes: Scientific and social issues in the human genome project. (Harvard University Press, Cambridge), especially the essays by Kevles, Evelyn Fox Keller, and Dorothy Nelkin. Duster, T. (1990). Backdoor to Eugenics (Routledge, New York) offers the perspective of a minority threatened with becoming a permanent social underclass.
-
(1984)
-
-
Kevles, D.1
-
8
-
-
0026134185
-
The human genome project and bioethics
-
Juengst, E. (1991). The human genome project and bioethics. Kennedy Institute of Ethics Joumal 1(1), 71.
-
(1991)
Kennedy Institute of Ethics Joumal
, vol.1
, Issue.1
, pp. 71
-
-
Juengst, E.1
-
9
-
-
0007032449
-
The Human Genome Project: Cracking the Genetic Code of Life
-
(Plenum Press, New York and London)
-
Lee, T. (1991). The Human Genome Project: Cracking the Genetic Code of Life. (Plenum Press, New York and London).
-
(1991)
-
-
Lee, T.1
-
10
-
-
85012482632
-
Hearing on Possible Uses and Misuses of Genetic Information
-
(October 17, 1991)
-
U.S. Congress, Subcommittee on Government Information, Justice and Agriculture, Committee on Government Operations, House of Representatives, “Hearing on Possible Uses and Misuses of Genetic Information,” (October 17, 1991);
-
-
-
-
11
-
-
0026074886
-
Priorities in professional ethics and social policy for human genetics
-
Juengst, E. (1991). Priorities in professional ethics and social policy for human genetics. J. Am. Med. Assn. 266, 1836.
-
(1991)
J. Am. Med. Assn.
, vol.266
, pp. 1836
-
-
Juengst, E.1
-
12
-
-
0007032449
-
The Human Genome Project: Cracking the Genetic Code of Life
-
(Plenum Press, New York and London)
-
Lee, T. (1991). The Human Genome Project: Cracking the Genetic Code of Life. (Plenum Press, New York and London), pp. 295-297.
-
(1991)
, pp. 295-297
-
-
Lee, T.1
-
13
-
-
0003827460
-
Strangers at the Bedside: A History of How Law and Bioethics Transformed Medical Decision Making
-
(Basic Books, New York). See also The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, Reports (1975-1978) U.S. Government Printing Office, DHE W Publication No. (05) 75-0001 through 78-0014 and The President's Commission for the Study of Ethical Problems in Medicine arul Biomedical and Behavioral Research. (1983). Summing Up (Final Report). (U.S. Government Printing Office, Washington, DC)
-
Rothman, D. (1991). Strangers at the Bedside: A History of How Law and Bioethics Transformed Medical Decision Making. (Basic Books, New York). See also The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, Reports (1975-1978) U.S. Government Printing Office, DHE W Publication No. (05) 75-0001 through 78-0014 and The President's Commission for the Study of Ethical Problems in Medicine arul Biomedical and Behavioral Research. (1983). Summing Up (Final Report). (U.S. Government Printing Office, Washington, DC).
-
(1991)
-
-
Rothman, D.1
-
14
-
-
0003392970
-
The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research
-
(U.S. Government Printing Office, Washington, DC) No. (05) 78-0012
-
The National Commission for the Protection of Human Subjects. (1978). The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research. (U.S. Government Printing Office, Washington, DC) No. (05) 78-0012.
-
(1978)
-
-
-
15
-
-
0025411067
-
A critique of principlism
-
Some recent articles 15 (April), 219-236 and Wikler, D. (1991). What has bioethics to offer health policy? The Milbank Quarterly 69, 233-251) identify limitations of the approach to resolution of ethical issues through appeal to widely accepted principles, which has characterized recent thought in bioethics. However, it seems well suited to questions in research ethics: see Mackay, C. Ethics committees in the '90′s. The Cambridge Quarterly of Healthcare Ethics (in press)
-
Some recent articles ( Clouser, K., and Gert, B. (1990). A critique of principlism. J. Med. Philos. 15 (April), 219-236 and Wikler, D. (1991). What has bioethics to offer health policy? The Milbank Quarterly 69, 233-251) identify limitations of the approach to resolution of ethical issues through appeal to widely accepted principles, which has characterized recent thought in bioethics. However, it seems well suited to questions in research ethics: see Mackay, C. Ethics committees in the '90′s. The Cambridge Quarterly of Healthcare Ethics (in press).
-
(1990)
J. Med. Philos.
-
-
Clouser, K.1
Gert, B.2
-
16
-
-
85012544858
-
-
U.S. Code of Federal Regulations, Title 45, Part 46—Protection of Human Subjects, Revised June 18 (56 FR 28005, June 18, 1991)
-
U.S. Code of Federal Regulations, Title 45, Part 46—Protection of Human Subjects, Revised June 18, 1991 (56 FR 28005, June 18, 1991).
-
(1991)
-
-
-
17
-
-
0023349546
-
Decision-making in the presence of risk
-
Zeckhauser, R. and Viscusi, W. (1990). Risk within reason. Science 248, 559-563
-
Machina, M. (1987). Decision-making in the presence of risk. Science 236, 537-543; Zeckhauser, R. and Viscusi, W. (1990). Risk within reason. Science 248, 559-563.
-
(1987)
Science
, vol.236
, pp. 537-543
-
-
Machina, M.1
-
18
-
-
85012488972
-
Implementing Hurrmn Research Regulations
-
(1983); Whistieblowing in Biomedical Research (1982); also Office of the Director, NIH, Report of Feasibility Study for Evaluation of Implementation of Section 491 of the Public Health Service Act, 1989
-
See The President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research, Protecting Human Subjects (1981); Implementing Hurrmn Research Regulations (1983); Whistieblowing in Biomedical Research (1982); also Office of the Director, NIH, Report of Feasibility Study for Evaluation of Implementation of Section 491 of the Public Health Service Act, 1989.
-
(1981)
-
-
-
19
-
-
0026924558
-
New study of the IRB system
-
See also NIH Guide to Grants and Contracts, Evaluation of NIH Implementation of Section 491 of the Public Health Service Act, Mandating a Program of Protection for Research Subjects, RFP NIH-00-91-12 (3 May 1991), which details the background and plan of the study
-
Mac Kay, C. (1992). New study of the IRB system. Kennedy Institute of Ethics Joumal 2: 3, 283-284. See also NIH Guide to Grants and Contracts, Evaluation of NIH Implementation of Section 491 of the Public Health Service Act, Mandating a Program of Protection for Research Subjects, RFP NIH-00-91-12 (3 May 1991), which details the background and plan of the study.
-
(1992)
Kennedy Institute of Ethics Joumal
, vol.2
, Issue.3
, pp. 283-284
-
-
Mac Kay, C.1
-
20
-
-
0026582990
-
Genetic linkage: Interpreting Lod scores
-
See also NIH/CEPH Collaborative Mapping Group, note 2, NIH/CEPH Collaborative Mapping Group. A comprehensive genetic linkage map of the human genome, Science, 258: 67-69
-
Risch, N. (1992). Genetic linkage: Interpreting Lod scores. Science 255, 803-804. See also NIH/CEPH Collaborative Mapping Group, note 2, NIH/CEPH Collaborative Mapping Group. A comprehensive genetic linkage map of the human genome, Science, 258: 67-69.
-
(1992)
Science
, vol.255
, pp. 803-804
-
-
Risch, N.1
-
21
-
-
85012466514
-
Medical and ethical consequences
-
Collins, F. (1992). Medical and ethical consequences. Clin. Ethics 2(4), 264.
-
(1992)
Clin. Ethics
, vol.2
, Issue.4
, pp. 264
-
-
Collins, F.1
-
22
-
-
85012554371
-
Huntington's Disease Society of America. Presymptomatic Testing for Huntington's Disease
-
Proceedings of a Seminar, American Neurological Association Annual Meeting, October 18 San Francisco, Califomia. The seminar was sponsored by HDS A under a contract from NIH
-
Huntington's Disease Society of America. Presymptomatic Testing for Huntington's Disease. Proceedings of a Seminar, American Neurological Association Annual Meeting, October 18, 1987, San Francisco, Califomia. The seminar was sponsored by HDS A under a contract from NIH.
-
(1987)
-
-
-
23
-
-
85012430833
-
Three Central Themes of Bioethics Today
-
Keynote Address, “Bioethics in a Changing World,” Intemational Symposium of Girton College, Cambridge University and the Intemational Bioethics Institute, Cambridge, England, August 10-16
-
Wamock, Baroness Mary, “Three Central Themes of Bioethics Today,” Keynote Address, “Bioethics in a Changing World,” Intemational Symposium of Girton College, Cambridge University and the Intemational Bioethics Institute, Cambridge, England, August 10-16, 1992.
-
(1992)
-
-
Wamock, B.M.1
-
24
-
-
0025318743
-
The Human Genome Project: Past, present and future
-
Watson, J. (1990). The Human Genome Project: Past, present and future. Science 248, 44-49;
-
(1990)
Science
, vol.248
, pp. 44-49
-
-
Watson, J.1
-
25
-
-
0025778827
-
The case for the human genome
-
The Human Genome Project: Cracking the Genetic Code of Life. (Plenum Press, New York and London)
-
Lee, T., The Human Genome Project: Cracking the Genetic Code of Life. (Plenum Press, New York and London): Maddox, J. (1991). The case for the human genome. Nature 352, 11-14.
-
(1991)
Nature
, vol.352
, pp. 11-14
-
-
Lee, T.1
Maddox, J.2
-
26
-
-
85012510944
-
National Commission for the Protection of Human Subjects of Research, Report and Recommendations: Institutional Review Boards
-
National Commission for the Protection of Human Subjects of Research, Report and Recommendations: Institutional Review Boards, pp. 43-46 and 103;
-
-
-
-
27
-
-
0003861671
-
The Patient as Partner: A Theory of Human Experimentation Ethics
-
(Indiana University Press, Bloomington and Indianapolis)
-
Veatch, R. (1987). The Patient as Partner: A Theory of Human Experimentation Ethics. (Indiana University Press, Bloomington and Indianapolis) pp. 45 and 98.
-
(1987)
, pp. 45 and 98
-
-
Veatch, R.1
-
28
-
-
0003540824
-
For the Patiem's Good
-
(Oxford University Press, New York and London)
-
Pellegrino, E., and Thomasma, D. (1988). For the Patiem's Good. (Oxford University Press, New York and London);
-
(1988)
-
-
Pellegrino, E.1
Thomasma, D.2
-
29
-
-
0004122237
-
Making HealthCare Decisions
-
(U.S. Govemment Printing Office, Washington, DC)
-
The President's Commission for the Study of Ethical Problems in Medicine and Research. (1982). Making HealthCare Decisions. (U.S. Govemment Printing Office, Washington, DC);
-
(1982)
-
-
-
30
-
-
0003408414
-
A History and Theory of Informed Consent
-
(Oxford University Press, New York)
-
Faden, R., and Beauchamp, T. (1986). A History and Theory of Informed Consent. (Oxford University Press, New York).
-
(1986)
-
-
Faden, R.1
Beauchamp, T.2
-
31
-
-
0026849567
-
Positional cloning: Let's not call it reverse anymore
-
Collins, F. (1992). Positional cloning: Let's not call it reverse anymore. Nature Genetics 1, 1.
-
(1992)
Nature Genetics
, vol.1
, pp. 1
-
-
Collins, F.1
-
32
-
-
85012435406
-
The physician as fortuneteller
-
“In Huntington's disease. [k]nowing that one's genetic makeup, a component of one's identity, harbors the seeds of one's mental and physical deterioration and death describes a wholly existential dimension to self-awareness and autonomy.” See also Kierkegaard, S. (1983). Fear and Trembling, Uans. and ed., H. Hong and E. Hong. (Princeton University Press, Princeton, New Jersey) pp. 55 and 346-347; also. Fox, R. (1974). Ethical and existential developments in contemporaneous American medicine: Their implications for culture and society. Milbank Memorial Foundation Quarterly Fall, 445-483 and Barrett, W. (1962). Irrational Man (Doubleday, New York)
-
Mac Kay, C. (1991). The physician as fortuneteller. J. Clin. Ethics 2(4), 236-237. “In Huntington's disease. [k]nowing that one's genetic makeup, a component of one's identity, harbors the seeds of one's mental and physical deterioration and death describes a wholly existential dimension to self-awareness and autonomy.” See also Kierkegaard, S. (1983). Fear and Trembling, Uans. and ed., H. Hong and E. Hong. (Princeton University Press, Princeton, New Jersey) pp. 55 and 346-347; also. Fox, R. (1974). Ethical and existential developments in contemporaneous American medicine: Their implications for culture and society. Milbank Memorial Foundation Quarterly Fall, 445-483 and Barrett, W. (1962). Irrational Man (Doubleday, New York).
-
(1991)
J. Clin. Ethics
, vol.2
, Issue.4
, pp. 236-237
-
-
Mac Kay, C.1
-
33
-
-
0010417523
-
Geneticists prove clinician's hunches right about myotonic dystrophy
-
Nowack, R. (1992). Geneticists prove clinician's hunches right about myotonic dystrophy. J. NIH Res. 4(4), 49-55;
-
(1992)
J. NIH Res.
, vol.4
, Issue.4
, pp. 49-55
-
-
Nowack, R.1
-
34
-
-
0026560679
-
Genomic imprinting and its implications
-
Hall, J. (1992). Genomic imprinting and its implications. N. Engl. J. Med. 326, 827-829;
-
(1992)
N. Engl. J. Med.
, vol.326
, pp. 827-829
-
-
Hall, J.1
-
35
-
-
0025053269
-
The other human genome
-
Palca, J. (1990). The other human genome. Science 249, 1104-1105;
-
(1990)
Science
, vol.249
, pp. 1104-1105
-
-
Palca, J.1
-
36
-
-
0026933325
-
Imprinting in leukaemia
-
Reik, W. (1992). Imprinting in leukaemia. Nature 359, 362-363;
-
(1992)
Nature
, vol.359
, pp. 362-363
-
-
Reik, W.1
-
37
-
-
0026457431
-
Imprinting and splicing joint together
-
Davies, K. (1992). Imprinting and splicing joint together. Nature 360, 492.
-
(1992)
Nature
, vol.360
, pp. 492
-
-
Davies, K.1
-
38
-
-
0025318743
-
The Human Genome Project: Past, present and future
-
Watson, J. (1990). The Human Genome Project: Past, present and future. Science 248, 44-49.
-
(1990)
Science
, vol.248
, pp. 44-49
-
-
Watson, J.1
-
39
-
-
85012460020
-
Gene that checks cell growth may be key to many cancers
-
Cl (April 23 cf. also Vogelstein. B., and Kinzler, K. Carcinogens leave fingerprints. Nature 355, 209-210; Gamer, C. (1992). Molecular potential. Nature 360, 207-208; also, Kurtz, T. (1992). The ACE of hearts. Nature 359, 588-589; and Cambien, F. et al. (1992). Deletion polymorphism in the gene for angiotensin-converting enzyme is a potent risk factor for myocardial infarction. Nature 359, 641-644
-
Angier, N. Gene that checks cell growth may be key to many cancers. The New York Times Cl (April 23, 1991); cf. also Vogelstein. B., and Kinzler, K. Carcinogens leave fingerprints. Nature 355, 209-210; Gamer, C. (1992). Molecular potential. Nature 360, 207-208; also, Kurtz, T. (1992). The ACE of hearts. Nature 359, 588-589; and Cambien, F. et al. (1992). Deletion polymorphism in the gene for angiotensin-converting enzyme is a potent risk factor for myocardial infarction. Nature 359, 641-644.
-
(1991)
The New York Times
-
-
Angier, N.1
-
40
-
-
85012545025
-
The rights of individuals in a world of advanced data systems
-
In Hinman, E., ed., Advanced Medical Systems: The Third Century. (Symposia Specialists Medical Books, Miami) pp. 24-25; also Veatch, The Patient as Partner: A Theory of Human Experimentation Ethics. (Indiana University Press, Bloomington and Indianapolis), pp. 92-107. Professor Alexander Capron, while acknowledging the principle, appears to accord it less weight; see, D o special rales apply in epidemiology. Law, Medicine and Health Care 19, 184-190 (Fall-Winter, 1990)
-
Fanning, J. (1977). The rights of individuals in a world of advanced data systems. In Hinman, E., ed., Advanced Medical Systems: The Third Century. (Symposia Specialists Medical Books, Miami) pp. 24-25; also Veatch, The Patient as Partner: A Theory of Human Experimentation Ethics. (Indiana University Press, Bloomington and Indianapolis), pp. 92-107. Professor Alexander Capron, while acknowledging the principle, appears to accord it less weight; see, D o special rales apply in epidemiology. Law, Medicine and Health Care 19, 184-190 (Fall-Winter, 1990).
-
(1977)
-
-
Fanning, J.1
-
41
-
-
0025761247
-
Scientific and commercial development of human cell lines
-
Curran, W. (1991). Scientific and commercial development of human cell lines. N. Engl. J. Med. 324, 998-1000.
-
(1991)
N. Engl. J. Med.
, vol.324
, pp. 998-1000
-
-
Curran, W.1
-
42
-
-
84902577151
-
-
(see note 14 above)
-
The Belmont Report, p. 5 (see note 14 above).
-
The Belmont Report
, pp. 5
-
-
-
44
-
-
0026254781
-
Reviewing proposals to study biological correlates of criminahty
-
See below, note 36
-
Reilly, P. (1991). Reviewing proposals to study biological correlates of criminahty. IRB: A Review of Human Subjects Research 13, 8-9. See below, note 36.
-
(1991)
IRB: A Review of Human Subjects Research
, vol.13
, pp. 8-9
-
-
Reilly, P.1
-
45
-
-
0026006785
-
Schizophrenia in the melting pot
-
Leff, J. (1991). Schizophrenia in the melting pot. Nature 253, 692-694.
-
(1991)
Nature
, vol.253
, pp. 692-694
-
-
Leff, J.1
-
46
-
-
85012440892
-
Genetics in popular culture
-
Lecture at U.S. National Institutes of Health, Bethesda, MD (March 19)
-
Nelkin, D. (1992). Genetics in popular culture. Lecture at U.S. National Institutes of Health, Bethesda, MD (March 19).
-
(1992)
-
-
Nelkin, D.1
-
47
-
-
0026386882
-
Predictive testing for HD: Maximizing patient autonomy
-
The power of genetic information to amplify the significance of “private information” reinforces the straightforward association of identifiable information about others that is conveyed in even routine medical history. Capron appears to bow to the inevitable as regards epidemiologic research, but familial research is of a different order in my view. See note 25 above
-
Quaid, K. (1992). Predictive testing for HD: Maximizing patient autonomy. J. Clin. Ethics 2, 239. The power of genetic information to amplify the significance of “private information” reinforces the straightforward association of identifiable information about others that is conveyed in even routine medical history. Capron appears to bow to the inevitable as regards epidemiologic research, but familial research is of a different order in my view. See note 25 above.
-
(1992)
J. Clin. Ethics
, vol.2
, pp. 239
-
-
Quaid, K.1
-
48
-
-
0026774858
-
A comprehensive genetic linkage map of the human genome
-
NIH/CEPH Collaborative Mapping Group. (1992). A comprehensive genetic linkage map of the human genome. Science 258, 67-79.
-
(1992)
Science
, vol.258
, pp. 67-79
-
-
-
49
-
-
0003892383
-
Proceed Wilh Caution: Predicting Genetic Risks in Ihe RecombinanI DNA Era
-
(The Johns Hopkins University Press, Baltimore)
-
Holtzman, N. (1989). Proceed Wilh Caution: Predicting Genetic Risks in Ihe RecombinanI DNA Era. (The Johns Hopkins University Press, Baltimore).
-
(1989)
-
-
Holtzman, N.1
-
50
-
-
0026523829
-
Cystic fibrosis: Molecular biology and therapeutic implication
-
Collins, F. (1992). Cystic fibrosis: Molecular biology and therapeutic implication. Science 256, 774-779;
-
(1992)
Science
, vol.256
, pp. 774-779
-
-
Collins, F.1
-
51
-
-
0026640658
-
A welcome animal model
-
Collins, F., and Wilson, J. A welcome animal model. Nature 358, 708-709;
-
Nature
, vol.358
, pp. 708-709
-
-
Collins, F.1
Wilson, J.2
-
52
-
-
0027127985
-
Another protein out in the cold
-
Armstrong, J. (1992). Another protein out in the cold. Nature 358, 709-710.
-
(1992)
Nature
, vol.358
, pp. 709-710
-
-
Armstrong, J.1
-
53
-
-
0026015071
-
Fallacious claims for HGP
-
Sakar, S., and Tauber, A. (1992). Fallacious claims for HGP. Nature 253, 691.
-
(1992)
Nature
, vol.253
, pp. 691
-
-
Sakar, S.1
Tauber, A.2
-
54
-
-
0025283367
-
When competent patients make irrational choices
-
Brock, D., and Wortman, S. (1990). When competent patients make irrational choices. N. Engl. J. Med. 322, 1595-1599.
-
(1990)
N. Engl. J. Med.
, vol.322
, pp. 1595-1599
-
-
Brock, D.1
Wortman, S.2
-
55
-
-
84985256890
-
Ethical principles for the conduct of human subject research: Population-based research and ethics
-
Also, Capron, A. arl. cit., see note 37 above
-
Gostin, L. (1991). Ethical principles for the conduct of human subject research: Population-based research and ethics. Law, Medicine and Health Care 19, 3-4, 191-201. Also, Capron, A. arl. cit., see note 37 above.
-
(1991)
Law, Medicine and Health Care
, vol.19
, Issue.3-4
, pp. 191-201
-
-
Gostin, L.1
-
56
-
-
85012480799
-
Nature, Nurture and the Human Genome
-
paper presented at the conference, “The Genetic Prism: Understanding Health and Responsibility,” University of Califomia, San Francisco, April 8, 1991; a version of the paper is contained on Kevles and Hood, The code of codes: Scientific and social issues in the human genome project. (Harvard University Press, Cambridge), see above note 5
-
Keller, E. “Nature, Nurture and the Human Genome,” paper presented at the conference, “The Genetic Prism: Understanding Health and Responsibility,” University of Califomia, San Francisco, April 8, 1991; a version of the paper is contained on Kevles and Hood, The code of codes: Scientific and social issues in the human genome project. (Harvard University Press, Cambridge), see above note 5.
-
-
-
Keller, E.1
-
57
-
-
85012535095
-
Huntington's Disease Research Roster
-
Department of Medical Genetics, Indiana University School of Medicine, Indianapolis, IN
-
Huntington's Disease Research Roster, Department of Medical Genetics, Indiana University School of Medicine, Indianapolis, IN.
-
-
-
-
58
-
-
85012508488
-
The Palieni as Partner: A Theory of Human Ejcperimenlalion Ethics
-
(Indiana University Press, Bloomington and Indianapolis) See also, Patullo, E. (1982). The limits of the ‘Right’ of Privacy. IRB: A Review of Human Subjects Research 4, 4. (April), which is discussed by Veatch. Veatch makes similar points in the same volume on pp. 43-47 and 94-99. Also, see above note 37
-
Veatch, R. (1987). The Palieni as Partner: A Theory of Human Ejcperimenlalion Ethics. (Indiana University Press, Bloomington and Indianapolis) pp. 169-170. See also, Patullo, E. (1982). The limits of the ‘Right’ of Privacy. IRB: A Review of Human Subjects Research 4, 4. (April), which is discussed by Veatch. Veatch makes similar points in the same volume on pp. 43-47 and 94-99. Also, see above note 37.
-
(1987)
, pp. 169-170
-
-
Veatch, R.1
-
59
-
-
0003663231
-
Principles of Biomedical Ethics
-
2nd ed. (Oxford University Press, New York)
-
Beauchamp, T., and Childress, J. (1983). Principles of Biomedical Ethics, 2nd ed. (Oxford University Press, New York).
-
(1983)
-
-
Beauchamp, T.1
Childress, J.2
-
60
-
-
0003520034
-
Screening and Counseling for Genetic Conditions
-
(Superintendent of Documents, U.S. Govemment Printing Office, Washington, D.C.)
-
The President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. (1983). Screening and Counseling for Genetic Conditions. (Superintendent of Documents, U.S. Govemment Printing Office, Washington, D.C.) pp. 6-7 and 41-84.
-
(1983)
-
-
-
61
-
-
85012450231
-
The moral foundations for research with human subjects: A review of The Patient as Partner
-
Mac Kay, C. (1988). The moral foundations for research with human subjects: A review of The Patient as Partner. Bioethics Books 1: i, 20-23.
-
(1988)
Bioethics Books
, vol.1
, Issue.1
, pp. 20-23
-
-
Mac Kay, C.1
-
62
-
-
0026217138
-
Features: Autonomy and beneficience in the family: Describing the family covenant
-
See and Commentaries; Spinsanti, S. (1992). Theoretical aspects: Obtaining consent from the family: A horizon for clinical ethics. J. Clin. Ethics. 3(3), 188-192, and Editorials
-
See Doukas, D. (1991). Features: Autonomy and beneficience in the family: Describing the family covenant. J. Clin. Ethics 2(3), 145-152, and Commentaries; Spinsanti, S. (1992). Theoretical aspects: Obtaining consent from the family: A horizon for clinical ethics. J. Clin. Ethics. 3(3), 188-192, and Editorials.
-
(1991)
J. Clin. Ethics
, vol.2
, Issue.3
, pp. 145-152
-
-
Doukas, D.1
-
63
-
-
85012543532
-
A Policy Analysis of Citizen Rights Issues in Health Dala Systems
-
(U.S. Department of Commerce, National Bureau of Standards, Washington, DC)
-
Westin, A. (1977). A Policy Analysis of Citizen Rights Issues in Health Dala Systems. (U.S. Department of Commerce, National Bureau of Standards, Washington, DC).
-
(1977)
-
-
Westin, A.1
-
64
-
-
0026546336
-
Molecular insights into hypertrophic cardiomyopathy
-
commenting on progress in research on hypertrophic cardiomyopathy reported in the same issue: Characteristics arid prognostic implications of myosin missense mutations in familial hypertrophic cardiomyopathy, pp. 1108-1114 and an earlier report, in the same journal. Preclinical diagnosis of familial hypertrophic cardiomyopathy by genetic analysis of blood lymphocytes. 325, 1753-1760 (December 19, 1991). These reports and the editorial commenting on them elicited response from Harper, P., and Clarke, A. (1992). Letter: Genetic testing for hypertrophic cardiomyopathy. N. Engl. J. Med. 327, 1175, authors of Should we test children for ‘adult’ genetic diseases? Lancet 335, 1205-1206 (1990) and response in the journal by Watkins, H., Seidman, J., and Seidman, C. (coauthors with Rosenzweig, A. and several others) of the reports of preclinical diagnosis and prognostic implications
-
Curfman. G. (1992). Molecular insights into hypertrophic cardiomyopathy. N. Engl. J. Med. 326, 1149-1151, commenting on progress in research on hypertrophic cardiomyopathy reported in the same issue: Characteristics arid prognostic implications of myosin missense mutations in familial hypertrophic cardiomyopathy, pp. 1108-1114 and an earlier report, in the same journal. Preclinical diagnosis of familial hypertrophic cardiomyopathy by genetic analysis of blood lymphocytes. 325, 1753-1760 (December 19, 1991). These reports and the editorial commenting on them elicited response from Harper, P., and Clarke, A. (1992). Letter: Genetic testing for hypertrophic cardiomyopathy. N. Engl. J. Med. 327, 1175, authors of Should we test children for ‘adult’ genetic diseases? Lancet 335, 1205-1206 (1990) and response in the journal by Watkins, H., Seidman, J., and Seidman, C. (coauthors with Rosenzweig, A. and several others) of the reports of preclinical diagnosis and prognostic implications.
-
(1992)
N. Engl. J. Med.
, vol.326
, pp. 1149-1151
-
-
Curfman, G.1
-
65
-
-
0004057043
-
Habits of the Heart
-
(Harper and Row, Perennial Library Edition, New York)
-
Bellah, R., et al. (1986). Habits of the Heart. (Harper and Row, Perennial Library Edition, New York).
-
(1986)
-
-
Bellah, R.1
-
66
-
-
0017978014
-
Do no harm
-
Jonsen, A. (1978). Do no harm. Ann. Int. Med. 88, 827-832.
-
(1978)
Ann. Int. Med.
, vol.88
, pp. 827-832
-
-
Jonsen, A.1
-
67
-
-
0026441237
-
Genetic testing for Huntington's disease—A family issue
-
Hayes, C. (1992). Genetic testing for Huntington's disease—A family issue. N. Engl. J. Med. 327, 1449-1451.
-
(1992)
N. Engl. J. Med.
, vol.327
, pp. 1449-1451
-
-
Hayes, C.1
-
68
-
-
0027108642
-
Genetics and the public interest
-
Editorial
-
Editorial. (1992). Genetics and the public interest. Nature 356, 365.
-
(1992)
Nature
, vol.356
, pp. 365
-
-
-
69
-
-
0026582462
-
Should patients with Alzheimer's disease be told their diagnosis?
-
Drickamer, M., and Lachs, M. (1992). Should patients with Alzheimer's disease be told their diagnosis? N. Engl. J. Med. 326, 14, 947-951
-
(1992)
N. Engl. J. Med.
, vol.326
, Issue.14
, pp. 947-951
-
-
Drickamer, M.1
Lachs, M.2
-
70
-
-
85012571263
-
The physician as fortuneteller
-
Mac Kay, C. (1992). The physician as fortuneteller. J. Clin. Ethics 2(4), 228-238.
-
(1992)
J. Clin. Ethics
, vol.2
, Issue.4
, pp. 228-238
-
-
Mac Kay, C.1
-
71
-
-
0021452843
-
Ethical issues in research design and conduct: Developing a test to detect carriers of Huntington's disease
-
Mac Kay, C. (1984). Ethical issues in research design and conduct: Developing a test to detect carriers of Huntington's disease. IRB: A Review of Human Subjects Research, 6: 4, 1-5.
-
(1984)
IRB: A Review of Human Subjects Research
, vol.6
, Issue.4
, pp. 1-5
-
-
Mac Kay, C.1
-
73
-
-
85012439350
-
Screening and CounseUng for Genetic Conditions
-
(Superintendent of Documents, U.S. Govemment Printing Office, Washington, DC)
-
The President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. (1983). Screening and CounseUng for Genetic Conditions. (Superintendent of Documents, U.S. Govemment Printing Office, Washington, DC) pp. 59-62.
-
(1983)
, pp. 59-62
-
-
-
74
-
-
85012439350
-
Screening and CounseUng for Genetic Conditions
-
(Superintendent of Documents, U.S. Govemment Printing Office, Washington, DC)
-
The President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. (1983). Screening and CounseUng for Genetic Conditions. (Superintendent of Documents, U.S. Govemment Printing Office, Washington, DC), p. 44.
-
(1983)
, pp. 44
-
-
|