Identification of Medical and Nonmedical Needs of Adolescents and Young Adults with Spina Bifida and Their Families: A Preliminary Study

Children's Health Care

Volumn 27, Issue 1, 1998, Pages 47-61

  Kennedy, Suzanne E ^d   Garcia Martin, Sherri D ^a   Kelley, John M ^b   Walton, Brian ^d   Vlcek, Claudia K ^d   Hassanein, Ruth S ^d   Holmes, Grace E ^c  

^a CHILDREN S MERCY HOSPITAL   (United States)

^b St Joseph Hospital   (United States)

^c UNIVERSITY OF KANSAS MEDICAL CENTER   (United States)

^d NONE

Author keywords

[No Author keywords available]

Indexed keywords

EID: 0009789898     PISSN: 02739615     EISSN: None     Source Type: Journal    
DOI: 10.1207/s15326888chc2701_4     Document Type: Article

References (13)

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2. Blum, R. W. (1983). The adolescent with spina bifida. Clinical Pediatrics, 22, 331-335.
3. Börjeson, M-C., & Lagergren, J. (1990). Life conditions of adolescents with myelomeningocele. Developmental Medicine and Child Neurology, 32, 698-706.
4. Carroll, G., Massarelli, E., Opsoomer, A., Pekeles, G., Pedneault, M., Frappier, J-Y, & Onetto, N. (1983) Adolescents with chronic disease: Are they receiving comprehensive health care? Journal of Adolescent Health Care, 4, 261-265.
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8. Hassanein, R. E. S. (1983). Development of an instrument to measure faculty development needs in research and demonstration of these needs in allied health faculties. Unpublished doctoral dissertation. University of Missouri, Kansas City.
9. Holmes, G. E., Baker, A. B., Hassanein, R. S., Bovee, E. C., Mulvihill, J. J., Myers, M. H., & Holmes, F. F. (1986). The availability of insurance to long-term survivors of childhood cancer. Cancer, 57, 190-193.
10. Holmes, G. E., Baker, A. B., Holmes, F. F., & Hassanein, R. S. (1989). The cancer patient. Insurance experiences of childhood cancer survivors. In I. Barofsky (Ed.), Work and Illness (pp. 71-85). New York: Praeger.
11. Parker, G., & Hirst, M. (1987). Continuity and change in medical care for young adults with disabilities. Journal of the Royal College of Physicians, 21, 129-133.
12. Rawlins, P. S., Rawlins, T. D., & Horner, M. (1990). Development of the family needs assessment tool. Western Journal of Nursing Research, 12, 201-214.
13. Rinck, C., Berg, J., & Hafeman, C. (1989). The adolescent with myelomeningocele: A review of parent experiences and expectations. Adolescence, 24, 699-710.