Community-based service use by people with AIDS: The relevance of informal caregivers

Health

Volumn 2, Issue 2, 1998, Pages 135-156

  LeBlanc, Allen J ^a   Mullan, Joseph T ^b   Wardlaw, Linda A ^b   Harrington, Charlene ^b   Chang, Sophia W ^b  

^a UNIVERSITY OF MARYLAND   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Andersen model of health service use; HIV AIDS services; Informal caregiving

Indexed keywords

EID: 0006383635     PISSN: 13634593     EISSN: None     Source Type: Journal    
DOI: 10.1177/136345939800200202     Document Type: Article

References (59)

1. Allen, S. M. (1994). Gender differences in spousal caregiving and unmet need for care. Journal of Gerontology: Social Sciences, 49(4), S187-95.
2. Andersen, R. M. (1995). Revisiting the behavioral model and access to medical care: Does it matter? Journal of Health and Social Behavior, 36, 1-10.
3. Andrews, R. M., Keyes, M. A., Fanning, T. R. and Kizer, K. W. (1991). Lifetime medicaid service utilization and expenditures for AIDS in New York and California. Journal of Acquired Immune Deficiency Syndrome, 4(10), 1046-58.
4. Arno, P. S. (1986). The nonprofit sector's response to the AIDS epidemic: Community-based services in San Francisco. American Journal of Public Health, 76(11), 1325-30.
5. Bass, D. M. and Noelker, L. S. (1987). The influence of family caregivers on elder's use of in-home services: An expanded conceptual framework. Journal of Health and Social Behavior, 28, 184-96.
6. Bass, D. M., Looman, W. J. and Ehrlich, P. (1992). Predicting the volume of health and social services: Integrating cognitive impairment into the modified Andersen framework. The Gerontologist, 32, 33-43.
7. Benjamin, A. E. (1989). Perspectives on a continuum of care for persons with HIV illness. Medical Care Review, 46(4), 411-37.
8. Berk, R. A. (1995). Use of primary caretakers as proxies to measure the health care needs of patients with AIDS. Public Health Nursing, 12(2), 109-16.
9. Bowling, A., Farquhar, M. and Browne, P. (1991). Use of services in old age: Data from three surveys of elderly people. Social Science and Medicine, 33(6), 689-700.
10. Burton, L., Kasper, J., Shore, A., Cagney, K., LaVeist, T., Cubbin, C. and German, P. (1995). The structure of informal care: Are there differences by race? The Gerontologist, 35(6), 744-52.
11. Choi, Namkee G. (1994). Patterns and determinants of social service utilization: Comparison of the childless elderly and elderly parents living with or apart from their children. The Gerontologist, 34(3), 353-62.
12. Counte, M. A. and Glandon, G. L. (1991). A panel study of life stress, social support, and the health services utilization of older persons. Medical Care, 29, 348-61.
13. Derogatis, L. R., Lipman, R. S., Rickels, K., Uhlenhuth, E. H. and Covi, L. (1974). The Hopkins symptom checklist (HSCL): A self-report symptom inventory. Behavioral Science, 19, 1-15.
14. Ettner, S. L. and Weissman, J. (1994). Utilization of formal and informal home care by AIDS patients in Boston: A comparison of intravenous drug users and homosexual males. Medical Care, 32(5), 459-70.
15. Fleishman, J. A., Hsia, D. C. and Hellinger, F. J. (1994). Correlates of medical service utilization among people with HIV infection. Health Services Research, 29(5), 527-48.
16. Fleishman, J. A. and Mor, V. F. (1993). Insurance status among people with AIDS: Relationships with sociodemographic characteristics and service use. Inquiry, 30(2), 180-8.
17. Hammer, M. (1983). 'Core' and 'extended' social networks in relation to health and illness. Social Science and Medicine, 17, 405-11.
18. Hellinger, F. J. (1993). The use of health services by women with HIV infection. Health Services Research, 28(5), 543-61.
19. Horwitz, A. V. and Reinhard, S. C. (1995). Ethnic differences in caregiving duties and burdens among parents and siblings of persons with severe mental illnesses. Journal of Health and Social Behavior, 36, 138-50.
20. Howell, E. M. and Pine, P. (1991). Overview of the HCFA study of cost and utilization of AIDS services in California and New York. Journal of Acquired Immune Deficiency Syndromes, 4(10), 101-14.
21. Johnston, D., Smith, K. and Stall, R. (1994). A comparison of public health care utilization by gay men and intravenous drug users with AIDS in San Francisco. AIDS Care, 6(3), 303-16.
22. Katz, S., Ford, A. B., Moskowitz, R. W., Jackson, B. A. and Jaffe, M. W. (1963). Studies of illness in the aged: The index of ADL, a standardized measure of biological and psychosocial function. Journal of the American Medical Association, 185, 914-19.
23. Kelly, J. J., Chu, S. Y., Buehler, W. and the AIDS Mortality Project Group (1993). AIDS deaths shift from hospital to home. American Journal of Public Health, 83, 1433-37.
24. Kelly, J. V., Ball, J. K. and Turner, B. J. (1989). Duration and costs of AIDS hospitalizations in New York. Variations by patient severity of illness and hospital type. Medical Care, 27(12), 1085-98.
25. Kiyak, H. A., Teri, L. and Borson, S. (1994). Physical and functional health assessment in normal aging and in Alzheimer's disease: Self-reports vs family reports. The Gerontologist, 34(3), 324-30.
26. Lasher, A. T. and Ragsdale, D. (1989). The significant other's role in improving quality of life in persons with AIDS dementia complex. Journal of Neuroscience Nursing, 21, 250-5.
27. Lawton, M. P. and Brody, E. M. (1969). Assessment of older people: Self-maintaining and instrumental activities of daily living. The Gerontologist, 9, 179-86.
28. LeBlanc, A. J., Aneshensel, C. S. and Wight, R. W. (1995). Psychotherapy use and depression among AIDS caregivers. Journal of Community Psychology, 23, 127-42.
29. LeBlanc, A. J., London, A. S. and Aneshensel, C. S. (1997). The physical costs of AIDS caregiving. Social Science and Medicine, 45, 915-23.
30. Logan, J. R. and Spitze, G. (1994). Informal support and the use of formal services by older Americans. Journal of Gerontology: Social Sciences, 49(1), S25-34.
31. London, A. S., LeBlanc, A. J. and Aneshensel, C. S. (1998). The integration of informal care, case management, and community-based services for persons with HIV/AIDS. AIDS Care (in press).
32. Mechanic, D. (1979). Correlates of physician utilization: why do major multivariate studies of physician utilization find trivial psychosocial and organizational effects? Journal of Health and Social Behavior, 20, 387-96.
33. Meyer, M. H. and Pavalko, E. K. (1996). Family, work, and access to health ' insurance among mature women. Journal of Health and Social Behavior, 37(4), 311-25.
34. Miller, B. and McFall, S. (1991) The effect of caregiver's burden on change in frail older persons' use of formal helpers. Journal of Health and Social Behavior, 32, 165-79.
35. Moore, R. D., Stanton, D., Gopalan, R. and Chaisson, R. E. (1994). Racial differences in the use of drug therapy for HIV disease in an urban community. New England Journal of Medicine, 330(11), 763-8.
36. Mor, V., Fleishman, J. A., Dresser, M. and Piette, J. (1992). Variation in health service use among HIV-infected patients. Medical Care, 30(1), 17-29.
37. Morrison, C. (1993). Delivery systems for the care of persons with HIV infection and AIDS. Nursing Clinics of North America, 28(2), 317-33.
38. Mullan, J. T. (1993). Barriers to the use of formal services among Alzheimer's caregivers. In S. H. Zarit, L. I. Pearlin and K. Warner Schaie (Eds.), Caregiving systems: Informal and formal helpers, pp. 241-60. Hillsdale, NJ: Lawrence Erlbaum Associates.
39. Pearlin, L. I., Aneshensel, C. S. and LeBlanc, A. J. (1997). The forms and mechanisms of stress proliferation: The case of AIDS caregivers. Journal of Health and Social Behavior, 38, 223-36.
40. Pearlin, L. I., Mullan, J. T., Aneshensel, C. S., Wardlaw, L. and Harrington, C. (1994). The structure and functions of AIDS caregiving relationships. Psychosocial Rehabilitation Journal, 17(4), 51-67.
41. Penning, M. J. (1995) Health, social support and the utilization of health services among older adults. Journal of Gerontology: Social Sciences, 50B(5), S330-9.
42. Penrod, J. D., Kane, R. A., Kane, R. L. and Finch, M. D. (1995). Who cares? The size, scope and composition of the caregiver support system. The Gerontologist, 35(4), 489-97.
43. Piette, J. D., Fleishman, J. A., Stein, M. D., Mor, V. and Mayer, K. (1993). Perceived needs and unmet needs for formal services among people with HIV disease. Journal of Community Health, 18(1), 11-23.
44. Raveis, V. H. and Siegel, K. (1991). The impact of caregiving on informal or familial caregivers. AIDS Patient Care, February, 39-43.
45. Rundall, T. G. (1981). A suggestion for improving the behavioral model of physician utilization. Journal of Health and Social Behavior, 22(1), 103-4.
46. Seage, G. R., Hertz, T., Stone, V. E. and Epstein, A. M. (1993). The effects of intravenous drug use and gender on the cost of hospitalization for patients with AIDS. Journal of Acquired Immune Deficiency Syndromes, 6(7), 831-9.
47. Seeman, T. E., Bruce, M. L. and McAvay, G. J. (1996). Social network characteristics and onset of ADL disability: MacArthur studies of successful aging. Journal of Gerontology: Social Sciences, 51B, S191-200.
48. Seltzer, B. and Buswell, A. (1994). Psychiatric symptoms in Alzheimer's disease: Mental status examination versus caregiver report. The Gerontologist, 34(1), 103-9.
49. Stein, M. D., Piette, J., Mor, V., Wachtel, T. J., Fleishman, J., Mayer, K. H. and Carpenter, G. C. (1991). Differences in access to zidovudine (ZDV) among symptomatic HIV-infected persons. Journal of General Internal Medicine, 6, 35-40.
50. Stoller, E. P. and Pugliesi, K. L. (1991). Size and effectiveness of informal helping networks: A panel study of older people in the community. Journal of Health and Social Behavior, 32, 180-91.
51. Sussman, M. (1976). The family life of old people. In R. Binstock and E. Shanas (Eds.), Handbook of aging and the social sciences, pp. 218-43. New York: Van Nostrand Reinhold.
52. Tennstedt, S. L., Crawford, S. and McKinlay, J. B. (1993). Determining the pattern of care: Is co-residence more important than caregiver relationship? Journal of Gerontology: Social Sciences, 48(2), S74-83.
53. Tramarin, A., Campostrini, S., Tolley, K. and De Lalla, F. (1997). The influence of socio-economic status on health service utilization by patients with AIDS in North Italy. Social Science and Medicine, 45(6), 859-66.
54. Turner, H. A., Catania, J. A. and Gagnon, J. (1994). The prevalence of informal caregiving to persons with AIDS in the United States: Caregiver characteristics and their implications. Social Science and Medicine, 38(11), 1543-52.
55. Velentgas, P., Bynum, C. and Zierler, S. (1990). The buddy volunteer commitment in AIDS care. American Journal of Public Health, 80(11), 1378-80.
56. Ward, R. A., Sherman, S. and LaGory, M. (1984). Informal networks and knowledge of services for older persons. Journal of Gerontology, 39, 216-23.
57. Wardlaw, L. A. (1994). Sustaining informal caregivers for persons with AIDS. Families in Society, June, 373-84.
58. Wight, R. G., LeBlanc, A. J. and Aneshensel, C. S. (1995). Support service use by persons with AIDS and their caregivers. AIDS Care, 7(4), 509-20.
59. Wolinsky, F. D. and Johnson, R. J. (1991). The use of health services by older adults. Journal of Gerontology: Social Sciences, 46, S345-57.