Pre-screening education in multiple marker screening programs: The effect on patient anxiety and knowledge

Journal of Genetic Counseling

Volumn 5, Issue 2, 1996, Pages 69-80

  Ormond, Kelly E ^a,c   Pergament, Eugene ^b   Fine, Beth A ^b  

^a UNIVERSITY OF VERMONT   (United States)

^b NORTHWESTERN UNIVERSITY   (United States)

^c Vermont Regional Genetics Center   (United States)

Author keywords

Anxiety; Multiple marker screening; Patient education; Prenatal diagnosis

Indexed keywords

EID: 0002989723     PISSN: 10597700     EISSN: None     Source Type: Journal    
DOI: 10.1007/BF01408532     Document Type: Article

References (40)

1. Abuelo DN, Hopmann MR, Barsel-Bowers B, Goldstein A (1991) Anxiety in women with low maternal serum alpha-fetoprotein screening results. Prenatal Diagnosis 11:381-385.
2. ACOG Technical Bulletin No 154-April 1991 (1992) Alpha-fetoprotein. Int J Gynecol Obstet 38:241-247.
3. ACOG Committee Opinion No 141-August 1994 (1994) Down sydrome screening.
4. American College of Medical Genetics (1994) ACMG position statement on multiple marker screening in women 35 and older. ACMG Letter.
5. Brindle PM, Brown MW, Brown J, Griffith HB, Turner GM (1991) Objective and subjective memory impairment in pregnancy Psych Med 21:647-653.
6. Burton BK, Dillard RG, Clark EN (1985a) Maternal serum α-fetoprotein screening: The effect of participation on anxiety and attitude toward pregnancy in women with normal results. Am J Ob Gyn 152:540-543.
7. Burton BK, Dillard RG, Clark EN (1985b) The psychological impact of false positive elevations of maternal serum alpha-fetoprotein. Am J Ob Gyn 151:77-82.
8. Burton BK (1988) Elevated maternal serum alpha-fetoprotein (MSAFP): Interpretation and follow up Clinical Ob Gyn 31:293-305.
9. Butler G, Mathews A (1983) Cognitive processes in anxiety. Adv Behav Ther. 5:51-62.
10. Faden RR, Chwalow AJ, Orel-Crosby E, Holtzman NA, Chase GA, Leonard CO (1985) What participants understand about a maternal serum alpha-fetoprotein screening program. Am J Public Health 75:1381-1384.
11. Farrant W (1980) Stress after amniocentesis for high serum alpha-fetoprotein concentrations. BMJ 281:452.
12. Fearn J, Hibbard BM, Laurence KM, Roberts A, Robinson JO (1982) Screening for neural tube defects and maternal anxiety. Br J Ob Gyn 89:218-221.
13. Friedman R, Gradstein B (1992) Surviving Pregnancy Loss: A Complete Sourcebook for Women and their Families. Boston: Little, Brown and Company.
14. Haddow JE, Palomaki GE, Knight GJ (1992) Prenatal screening for Down syndrome with use of maternal serum markers. NEJM 327:588-593.
15. Hedegaard M, Henriksen TB Sabroe S, Secher NJ (1993) Psychological distress in pregnancy and preterm delivery. BMJ 307:234-239.
16. Hunter MS, Tsoi MM, Pearce M, Chudleigh P, Campbell S (1987) Ultrasound scanning in women with raised serum alpha fetoprotein: Long term psychological effects. J Psychosomatic Obstetrics and Gynecology 6:25-31.
17. Johnson EJ, Tversky A (1983) Affect, generalization and the perception of risk. J Personality and Social Psychology 45:20-31.
18. Kaffe S, Hsu LYF (1992) Maternal serum α-fetoprotein screening and fetal chromosome anomalies: Is lowering maternal age for amniocentesis preferrable? Am J Medical Genetics 42:801-806.
19. Katz LG (1991) The use of printed instruction sheets to enhance patient compliance. Seminars Derm 10:91-95.
20. Keenan KL, Basso D, Goldkrand J, Butler WJ (1991) Low level of maternal serum alpha-fetoprotein: Its associated anxiety and the effects of genetic counseling. Am J Ob Gyn 164:54-56.
21. Lappe M (1994) Risk and the ethics of genetic choice. In: Prescribing out Future: Ethical Issues in Genetic Counseling. Bartles D, LeRoy BS, Caplan AL (eds), Minnesota: U Minnesota Press, pp 57-64.
22. Marteau TM, Johnston M, Plenicar M, Shaw RW, Slack J (1988) Development of a self-administered questionnaire to measure women's knowledge of prenatal screening and diagnostic tests. J Psychosomatic Research 32:403-408.
23. Marteau TM, Johnston M, Shaw RW, Mitchie S, Kidd J, New M (1989) The impact of prenatal screening and diagnostic testing upon the cognitions, emotions and behavious of pregnant women. J Psychosomatic Research 33:7-16.
24. Marteau TM (1990) Screening in practice: Reducing the psychological costs. BMJ 301:26-28.
25. Marteau TM, Cook R, Kidd J, Michie S, Johnston M, Slack J, Shaw RW (1992a) The psychological effects of false-postive results in prental screening for fetal abnormality: A prospective study Prenatal Diagnosis 12:205-214.
26. Marteau TM, Johnston M, Kidd J, Michie S, Cook R (1992b) Psychological models in predicting uptake of prenatal screening. Psychology and Health 6:13-22.
27. Mathews A (1990) Why worry? The cognitive function of anxiety. Behav. Res. Ther. 28:455-468.
28. Metzger RL, Miller ML, Cohen M, Sofka M, Borkovec TD (1990) Worry changes decision making: The effect of negative thoughts on cognitive processing. J Clin Psych 46:78-88.
29. Muecke LN (1992) Prenatal screening for neural tube defects: A choice for all. Perspectives in Biology and Medicine 36:87-96.
30. Robinson JO, Hibbard BM, Laurence KM (1984) Anxiety during a crisis: Emotional effects of screening for neural tube defects. J Psychosomatic Research 28:163-169.
31. Rothberg AD, Lits B (1991) Psychosocial support for maternal stress during pregnancy: Effect on birth weight. Am J Ob Gyn 165:403-407.
32. Rourke BP (1969) Explorations in the Psychology of Stress and Anxiety. Ontario: Longmans.
33. Ruiz-Bueno JA, Sime AM, Kitchell MH (1991) Effect of receiving genetic counseling on pre-event anxiety in genetic amniocentesis patients. Pre- and Peri-natal Psychology Journal 6:171-179.
34. Sherr L, Hedge B (1990) The impact and use of written leaflets as a counseling alternative in mass antenatal HIV screening. AIDS Care 2:235-245.
35. Sorenson JR, Levy HL, Mangione TW, Sepe SJ (1984) Parental response to repeat testing of infants with 'false positive' results in a newborn screening program. Peds 73):183-187.
36. Spielberger CD, Gorsuch RL, Lushene R, Vagg PR, Jacobs GA (1983) Manual for the State-Trait Anxiety Inventory, Form Y. Palo Alto, CA: Consulting Psychologists Press, Inc.
37. Standing Medical Advisory Committee (1979) Report By the Working Group on Screening for Neurol Tube Defects. Douglas Black, Chairman. DHSS.
38. Van Der Ploeg HM (1986) Stressful Medical Events: A Survey of Patient's Perceptions. In: Maas et. al, (eds) Topics of Health Psychology New York: John Wiley and Sons, pp. 193-203.
39. Wadwha PD, Sandman CA, Porto M, Dunkel-Schetter C, Garita T (1993) The association between prenatal stress and infant birth weight and gestational age of birth: A prospective investigation. Am J Ob Gyn 169:858-865.
40. Weinman J (1990) Providing written information for patients: Psychological considerations. J Royal Society of Medicine 83:303-5.