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Volumn 27, Issue , 1998, Pages 473-502

Legal, ethical, and social issues in human genome research

Author keywords

Ethics; Genetics; Law; Project; Society

Indexed keywords


EID: 0002960138     PISSN: 00846570     EISSN: None     Source Type: Book Series    
DOI: 10.1146/annurev.anthro.27.1.473     Document Type: Article
Times cited : (61)

References (118)
  • 1
    • 0027366986 scopus 로고
    • Genetic discrimination and the public entities and public accommodations titles of the Americans with Disabilities Act
    • Alper JS, Natowicz MR. 1993. Genetic discrimination and the public entities and public accommodations titles of the Americans with Disabilities Act. Am. J. Hum. Genet. 53:26-32
    • (1993) Am. J. Hum. Genet. , vol.53 , pp. 26-32
    • Alper, J.S.1    Natowicz, M.R.2
  • 2
    • 0024003794 scopus 로고
    • DNA banking and DNA analysis: Points to consider
    • Am. Soc. Hum. Genet., Ad Hoc Comm. DNA Technol. 1988. DNA banking and DNA analysis: points to consider. Am. J. Hum. Genet. 42:781-83
    • (1988) Am. J. Hum. Genet. , vol.42 , pp. 781-783
  • 4
    • 0000295380 scopus 로고    scopus 로고
    • Gen-etiquette: Genetic information, family relationships, and adoption
    • ed. MA Rothstein. New Haven: Yale Univ. Press
    • Andrews LB. 1997. Gen-etiquette: genetic information, family relationships, and adoption. In Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era, ed. MA Rothstein, pp. 255-80. New Haven: Yale Univ. Press
    • (1997) Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era , pp. 255-280
    • Andrews, L.B.1
  • 5
    • 0025816685 scopus 로고
    • Confidentiality of genetic information in the workplace
    • Andrews LB, Jaeger AS. 1991. Confidentiality of genetic information in the workplace. Am. J. Law Med. 17:75-108
    • (1991) Am. J. Law Med. , vol.17 , pp. 75-108
    • Andrews, L.B.1    Jaeger, A.S.2
  • 7
    • 0029443996 scopus 로고
    • Drafting the genetic privacy act: Science, policy and practical considerations
    • Annas GJ, Glantz LH, Roche PA. 1995a. Drafting the genetic privacy act: science, policy and practical considerations. J. Law Med. Ethics 23:360-66
    • (1995) J. Law Med. Ethics , vol.23 , pp. 360-366
    • Annas, G.J.1    Glantz, L.H.2    Roche, P.A.3
  • 12
    • 2842595434 scopus 로고
    • The human genome project and human identity
    • Brock DW. 1992. The human genome project and human identity. Houston Law Rev. 29: 7-22
    • (1992) Houston Law Rev. , vol.29 , pp. 7-22
    • Brock, D.W.1
  • 13
    • 0347198680 scopus 로고    scopus 로고
    • Buck v. Bell. 1927. 274 U.S. 200, 47 S.Ct. 584, 71 L.Ed. 1000
    • Buck v. Bell. 1927. 274 U.S. 200, 47 S.Ct. 584, 71 L.Ed. 1000
  • 15
    • 0025447633 scopus 로고
    • Which ills to bear? Reevaluating the threat" of modern genetics
    • Capron AM. 1990. Which ills to bear? Reevaluating the threat" of modern genetics. Emory Law J. 39:665-96
    • (1990) Emory Law J. , vol.39 , pp. 665-696
    • Capron, A.M.1
  • 18
    • 0026236503 scopus 로고
    • Call for a worldwide survey of human genetic diversity: A vanishing opportunity for the human genome project
    • Cavalli-Sforza LL, Wilson AC, Cantor CR, Cook-Deegan RM, King MC. 1991. Call for a worldwide survey of human genetic diversity: A vanishing opportunity for the human genome project. Genomics 11: 490-91
    • (1991) Genomics , vol.11 , pp. 490-491
    • Cavalli-Sforza, L.L.1    Wilson, A.C.2    Cantor, C.R.3    Cook-Deegan, R.M.4    King, M.C.5
  • 24
    • 0025444345 scopus 로고
    • Patenting the human genome
    • Eisenberg RS. 1990. Patenting the human genome. Emory Law J. 39:721-45
    • (1990) Emory Law J. , vol.39 , pp. 721-745
    • Eisenberg, R.S.1
  • 25
    • 25944470986 scopus 로고
    • Order 915.002. Definition of the Term "Disability"
    • Reprinted in March 16, 1995
    • Equal Employ. Oppor. Comm. 1995. Order 915.002. Definition of the Term "Disability" Reprinted in Daily Labor Report., March 16, 1995, pp. E1, E23
    • (1995) Daily Labor Report
  • 28
    • 0028680140 scopus 로고
    • Toward a quality population: China's eugenic sterilization of the mentally retarded
    • Gewirtz DS. 1994. Toward a quality population: China's eugenic sterilization of the mentally retarded. NY Law Sch. J. Int. Comp. Law 15:147-62
    • (1994) NY Law Sch. J. Int. Comp. Law , vol.15 , pp. 147-162
    • Gewirtz, D.S.1
  • 30
    • 0025766980 scopus 로고
    • Genetic discrimination: The use of genetically based diagnostic and prognostic tests by employers and insurers
    • Gostin LO. 1991. Genetic discrimination: the use of genetically based diagnostic and prognostic tests by employers and insurers. Am. J. Law Med. 17:109-44
    • (1991) Am. J. Law Med. , vol.17 , pp. 109-144
    • Gostin, L.O.1
  • 32
    • 0027384143 scopus 로고
    • Privacy and security of personal information in a new health care system
    • Gostin LO. 1993b. Privacy and security of personal information in a new health care system. JAMA 270:2487-93
    • (1993) JAMA , vol.270 , pp. 2487-2493
    • Gostin, L.O.1
  • 33
    • 0029259226 scopus 로고
    • Health information privacy
    • Gostin LO. 1995. Health information privacy. Cornell Law Rev. 80:451-527
    • (1995) Cornell Law Rev. , vol.80 , pp. 451-527
    • Gostin, L.O.1
  • 34
    • 0013034192 scopus 로고
    • Health insurance, employment discrimination, and the genetics revolution
    • ed. DJ Kevles, L Hood. Cambridge, MA: Harvard Univ. Press
    • Greely HT. 1992. Health insurance, employment discrimination, and the genetics revolution. In The Code of Codes: Scientific and Social Issues in the Human Genome Project, ed. DJ Kevles, L Hood, pp. 264-80. Cambridge, MA: Harvard Univ. Press
    • (1992) The Code of Codes: Scientific and Social Issues in the Human Genome Project , pp. 264-280
    • Greely, H.T.1
  • 35
    • 0029449041 scopus 로고
    • Conflicts in the biotechnology industry
    • Greely HT. 1995. Conflicts in the biotechnology industry. J. Law Med. Ethics 23: 354-59
    • (1995) J. Law Med. Ethics , vol.23 , pp. 354-359
    • Greely, H.T.1
  • 36
    • 0031543575 scopus 로고    scopus 로고
    • The control of genetic research: Involving "the groups between"
    • Greely HT. 1997a. The control of genetic research: involving "the groups between." Houston Law Rev. 33:1397-430
    • (1997) Houston Law Rev. , vol.33 , pp. 1397-1430
    • Greely, H.T.1
  • 38
    • 0346568552 scopus 로고    scopus 로고
    • Informed consent, stored tissue samples, and the Human Genome Diversity Project: Protecting the rights of research participants
    • ed. RF Weir. Iowa City: Univ. Iowa Press. In press
    • Greely HT. 1998a. Informed consent, stored tissue samples, and the Human Genome Diversity Project: protecting the rights of research participants. In Ethical Issues in Stored Tissue Samples, ed. RF Weir. Iowa City: Univ. Iowa Press. In press
    • (1998) Ethical Issues in Stored Tissue Samples
    • Greely, H.T.1
  • 39
    • 0347198716 scopus 로고    scopus 로고
    • Problems in protecting "genetic privacy"
    • In press
    • Greely HT. 1998b. Problems in protecting "genetic privacy." Chicago-Kent Law Rev. In press
    • (1998) Chicago-Kent Law Rev.
    • Greely, H.T.1
  • 42
    • 84985239990 scopus 로고
    • The attempt to pass the Genetic Privacy Act in Maryland
    • Holtzman NA. 1995. The attempt to pass the Genetic Privacy Act in Maryland. J. Law Med. Ethics 23:367-70
    • (1995) J. Law Med. Ethics , vol.23 , pp. 367-370
    • Holtzman, N.A.1
  • 45
    • 0007721533 scopus 로고
    • Human Genome Diversity Project
    • Human Genome Diversity Project. 1994. Summary Document. Available at http:// www.stanford.edu/group/morrinst/HGDP. html.
    • (1994) Summary Document
  • 46
    • 0347198708 scopus 로고    scopus 로고
    • HUGO statement on the principled conduct of genetics research
    • May 1996
    • Human Genome Organisation. 1996. HUGO statement on the principled conduct of genetics research. Genome Digest 2 (May 1996). Also available at http://hugo.gdb. org:90/conduct.htm.
    • (1996) Genome Digest , vol.2
  • 51
    • 0027534837 scopus 로고
    • Inherited breast and ovarian cancer: What are the risks? What are the choices?
    • King M-C, Rowell S, Love SM. 1993. Inherited breast and ovarian cancer: what are the risks? What are the choices? JAMA 269:1975-80
    • (1993) JAMA , vol.269 , pp. 1975-1980
    • King, M.-C.1    Rowell, S.2    Love, S.M.3
  • 55
    • 0030003909 scopus 로고    scopus 로고
    • Ethical issues in international collaborative research on the human genome: The HGP and the HGDP
    • Knoppers BM, Hirtle M, Lormeau S. 1996b. Ethical issues in international collaborative research on the human genome: the HGP and the HGDP. Genomics 34: 272-93
    • (1996) Genomics , vol.34 , pp. 272-293
    • Knoppers, B.M.1    Hirtle, M.2    Lormeau, S.3
  • 57
    • 0024970749 scopus 로고
    • DNA fingerprinting on trial
    • Lander ES. 1989. DNA fingerprinting on trial. Nature 339:501-5
    • (1989) Nature , vol.339 , pp. 501-505
    • Lander, E.S.1
  • 61
    • 0347828816 scopus 로고    scopus 로고
    • See Rothstein 1997, pp. 321-51
    • McEwen JE. 1997. DNA data banks. See Rothstein 1997, pp. 321-51
    • (1997) DNA Data Banks
    • McEwen, J.E.1
  • 62
    • 0007211777 scopus 로고    scopus 로고
    • Genealogy, sacredness, and the commodities market
    • Mead A. 1996. Genealogy, sacredness, and the commodities market. Cult. Surviv. Q. 20(Summer):46-52
    • (1996) Cult. Surviv. Q. , vol.20 , Issue.SUMMER , pp. 46-52
    • Mead, A.1
  • 66
    • 0347197764 scopus 로고    scopus 로고
    • Moore v. Regents of the Univ. Calif. 1990. S. Cal. 3d, 120,793, p. 2d 479. 271 Cal. Rptr. 146
    • Moore v. Regents of the Univ. Calif. 1990. S. Cal. 3d, 120,793, p. 2d 479. 271 Cal. Rptr. 146
  • 70
    • 0003849297 scopus 로고
    • Washington, DC: Natl. Acad. Press
    • Natl. Res. Counc. 1992. DNA Technology in Forensic Science. Washington, DC: Natl. Acad. Press
    • (1992) DNA Technology in Forensic Science
  • 72
    • 0004299909 scopus 로고    scopus 로고
    • Washington, DC: Natl. Acad. Press
    • Natl. Res. Counc., Comm. Hum. Genome Divers. 1997. Evaluating Human Genetic Diversity. Washington, DC: Natl. Acad. Press
    • (1997) Evaluating Human Genetic Diversity
  • 73
    • 0003748389 scopus 로고
    • Washington, DC: Natl. Acad. Press
    • Natl. Res. Counc., Comm. Mapp. Seq. Hum. Genome. 1988. Mapping and Sequencing the Human Genome. Washington, DC: Natl. Acad. Press
    • (1988) Mapping and Sequencing the Human Genome
  • 74
    • 0030866838 scopus 로고    scopus 로고
    • Predisposition genetic testing for late-onset disorders in adults
    • Natl. Soc. Genet. Couns. 1997. Predisposition genetic testing for late-onset disorders in adults. JAMA 278:1217-20
    • (1997) JAMA , vol.278 , pp. 1217-1220
  • 77
    • 0345937312 scopus 로고    scopus 로고
    • Norman-Bloodsaw v. Lawrence Berkeley Lab. 1998. 135 F.3d 1260 (9th Circuit)
    • Norman-Bloodsaw v. Lawrence Berkeley Lab. 1998. 135 F.3d 1260 (9th Circuit)
  • 78
    • 0031543578 scopus 로고    scopus 로고
    • Proposed model ethical protocol for collecting DNA samples
    • North Am. Reg. Comm., Hum. Genome Divers. Proj. 1997. Proposed model ethical protocol for collecting DNA samples. Houston Law Rev. 33:1431-73
    • (1997) Houston Law Rev. , vol.33 , pp. 1431-1473
  • 79
    • 84933494585 scopus 로고
    • Eugenic anxieties, social realities, and political choices
    • Paul D. 1992. Eugenic anxieties, social realities, and political choices. Soc. Res. 59: 663-83
    • (1992) Soc. Res. , vol.59 , pp. 663-683
    • Paul, D.1
  • 86
    • 85010599311 scopus 로고
    • Chromosomes and communication: The discourse of genetic counseling
    • Rapp R. 1988. Chromosomes and communication: the discourse of genetic counseling. Med. Anthropol. Q. 2:143-57
    • (1988) Med. Anthropol. Q. , vol.2 , pp. 143-157
    • Rapp, R.1
  • 87
    • 0029440690 scopus 로고
    • The impact of the genetic privacy act on medicine
    • Reilly PR. 1995. The impact of the genetic privacy act on medicine. J. Law Med Ethics 23:378-81
    • (1995) J. Law Med Ethics , vol.23 , pp. 378-381
    • Reilly, P.R.1
  • 91
    • 0025447484 scopus 로고
    • Procreative liberty and human genetics
    • Robertson JA. 1990. Procreative liberty and human genetics. Emory Law J. 39: 697-719
    • (1990) Emory Law J. , vol.39 , pp. 697-719
    • Robertson, J.A.1
  • 93
    • 0029439988 scopus 로고
    • Genetic information and health insurance: State legislative approaches
    • Rothenberg KH. 1995. Genetic information and health insurance: state legislative approaches. J. Law Med. Ethics 23:312-19
    • (1995) J. Law Med. Ethics , vol.23 , pp. 312-319
    • Rothenberg, K.H.1
  • 96
    • 0026840249 scopus 로고
    • Genetic discrimination in employment and the Americans with Disabilities Act
    • Rothstein MA. 1993. Genetic discrimination in employment and the Americans with Disabilities Act. Houston Law Rev. 29: 23-84
    • (1993) Houston Law Rev. , vol.29 , pp. 23-84
    • Rothstein, M.A.1
  • 99
    • 0007714779 scopus 로고    scopus 로고
    • Jan../Feb 1997
    • Rural Advancement Found. Intnatl. 1997. Communiqué: The Human Tissue Trade (Jan../Feb 1997). Also available at http://www.rafi.ca
    • (1997) Communiqué: The Human Tissue Trade
  • 102
    • 0347828800 scopus 로고    scopus 로고
    • Skinner v. Oklahoma ex rel. Williamson. 1942. 316 US 535, 62 S. Circuit. 1110, 86 L.Ed. 1655
    • Skinner v. Oklahoma ex rel. Williamson. 1942. 316 US 535, 62 S. Circuit. 1110, 86 L.Ed. 1655
  • 103
    • 0347198692 scopus 로고
    • Bethesda, MD: Natl. Inst. Health
    • Task Force Genet. Inf. Ins., Natl. Inst. Health/Dep. Energy Work. Group Ethical, Legal, Soc. Implic. Hum. Genome Res. 1994. Genetic Information and Health Insurance. Bethesda, MD: Natl. Inst. Health
    • (1994) Genetic Information and Health Insurance
  • 104
    • 0346568533 scopus 로고
    • UNESCO Intnatl. Bioethics Comm., Subcomm. on Bioethics and Population Genetics.
    • UNESCO Intnatl. Bioethics Comm., Subcomm. on Bioethics and Population Genetics. 1995. Bioethics and Human Population Genetics Research. Available at http://www.biol.tsukuba.ac.jp/~macer/PG. html
    • (1995) Bioethics and Human Population Genetics Research
  • 107
    • 0346568534 scopus 로고
    • Washington, DC: US Gov. Print. Off.
    • US Congr., Off. Technol. Assess. 1988b. Medical Testing in the Workplace. Washington, DC: US Gov. Print. Off.
    • (1988) Medical Testing in the Workplace
  • 108
    • 0003541159 scopus 로고
    • Washington, DC: US Gov. Print. Off.
    • US Congr., Off. Technol. Assess. 1990a. Genetic Witness: Forensic Uses of DNA Tests. Washington, DC: US Gov. Print. Off.
    • (1990) Genetic Witness: Forensic Uses of DNA Tests
  • 109
    • 0347198693 scopus 로고
    • Washington, DC: US Gov. Print. Off.
    • US Congr., Off. Technol. Assess. 1990b. Genetic Screening in the Workplace. Washington, DC: US Gov. Print. Off.
    • (1990) Genetic Screening in the Workplace
  • 113
    • 0038497542 scopus 로고
    • A structure of deoxyribose nucleic acid
    • Watson JD, Crick FHC. 1953. A structure of deoxyribose nucleic acid. Nature 171: 737-38
    • (1953) Nature , vol.171 , pp. 737-738
    • Watson, J.D.1    Crick, F.H.C.2
  • 115
    • 0000566855 scopus 로고    scopus 로고
    • Coming to terms with human variation
    • Weiss KM. 1998. Coming to terms with human variation. Annu. Rev. Anthropol. 27: 273-300
    • (1998) Annu. Rev. Anthropol. , vol.27 , pp. 273-300
    • Weiss, K.M.1
  • 116
    • 0028132846 scopus 로고
    • Genetic testing for children and adolescents: Who decides?
    • Wertz DC. Fanos JH, Reilly PR. 1994. Genetic testing for children and adolescents: who decides? JAMA 272:875-81
    • (1994) JAMA , vol.272 , pp. 875-881
    • Wertz, D.C.1    Fanos, J.H.2    Reilly, P.R.3
  • 118
    • 0029444541 scopus 로고
    • Beyond "genetic discrimination": Toward a broader harm of geneticism
    • Wolf SM. 1995. Beyond "genetic discrimination": toward a broader harm of geneticism. J. Law Med. Ethics 23:345-53
    • (1995) J. Law Med. Ethics , vol.23 , pp. 345-353
    • Wolf, S.M.1


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