Persons with AIDS and their family caregivers: Negotiating the journey

Journal of Family Nursing

Volumn 2, Issue 4, 1996, Pages 399-417

  Bunting, Sheila McGuire ^a,b  

^a UNIVERSITY OF TENNESSEE HEALTH SCIENCE CENTER   (United States)

^b University of Tennessee Memphis College of Nursing

Author keywords

[No Author keywords available]

Indexed keywords

EID: 0000718276     PISSN: 10748407     EISSN: 1552549X     Source Type: Journal    
DOI: 10.1177/107484079600200405     Document Type: Review

References (56)

1. Archbold, P. G., Stewart, B. J., Greenlick, M. R., & Harvath, T. (1990). Mutuality and preparedness as predictors of caregiver role strain. Research in Nursing and Health, 13, 375-384.
2. Bell, J. M. (1995). What is "family"? Perturbations and possibilities [Editorial]. Journal of Family Nursing, 1(2), 131-133.
3. Boersma, F. J., & Houghton, A. A. (1990). Dreamwork with a cancer patient: The emergency of transpersonal healing. Medical Hypnoanalysis Journal, 5(1), 3-17.
4. Brown, H. P., Peterson, J. H., & Cunningham, O. (1988). An individualized behavioral approach to spiritual development for the recovering alcoholic/addict. Alcoholism Treatment Quarterly, 5(1-2), 177-196.
5. Brown, J. (1988). Life and death with Joan. In I. Rieder & P. Ruppelt (Eds.), AIDS: The women (pp. 57-62). San Francisco: Cleis Press.
6. Brown, M. A., & Powell-Cope, G. M. (1991). AIDS family caregiving: Transitions through uncertainty. Nursing Research, 40(6), 338-345.
7. Cantor, M. J. (1983). Strain among caregivers: A study of experience in the United States. The Gerontotegist, 23, 597-604.
8. Chance, S. (1988). Surviving suicide: A journey to resolution. Bulletin of the Menninger Clinic, 52(1), 30-39.
9. Chiriboga, D. A., Weiler, P. G., & Nielsen, K. (1990). The stress of caregivers. In D. E. Biegel & A. Blum (Eds.), Aging and caregiving: Theory, research, and policy, (pp. 121-138). Newbury Park, CA: Sage.
10. Cohen, M. H. (1993). The unknown and the unknowable-Managing uncertainty. Western Journal of Nursing Research, 15(1), 77-96.
11. Corbin, J., & Strauss, A. (1988). Unending work and care. San Francisco: Jossey-Bass.
12. Corbin, J., & Strauss, A. (1991). A nursing model for chronic illness management based upon the trajectory framework. Scholarly Inquiry for Nursing Practice, 5(3), 155-174.
13. Cote, T., Biggar, R., & Dannenberg, A. (1992). Risk of suicide among persons with AIDS: A national assessment. Journal of the American Medical Association, 268, 2066-2068.
14. Cox, E. (1990). Thanksgiving: An AIDS journal. New York: Harper & Row.
15. DeFrain, J., Martens, L., Stork, J., & Stork, W. (1991). The psychological effects of a still birth on surviving family members. Omega Journal of Death and Dying, 22(2), 81-108.
16. Fagerhaugh, S. Y. (1975). Getting around with emphysema. In A. Strauss (Ed.), Chronic illness and quality of life (pp. 99-107). St. Louis, MO: Mosby.
17. Flaskerud, J. H. (1995a). Overview of HIV disease and nursing. In J. H. Flaskerud & P. J. Ungvarski (Eds.), HIV/AIDS: A guide to nursing care (3rd ed., pp. 1-29). Philadelphia: Saunders.
18. Flaskerud, J. H. (1995b). Psychosocial and psychiatric aspects. In J. H. Flaskerud & P. J. Ungvarski (Eds.), HIV/AIDS: A guide to nursing care (3rd ed., pp. 308-338). Philadelphia: Saunders.
19. Fuller, R. L., Geis, S., & Rush, J. (1988). Lovers of AIDS victims: A minority group experience. Death Studies, 12, 1-7.
20. Gates, M. F. (1991). Culture care theory for study of dying patients in hospital and hospice contexts. In M. M. Leininger (Ed.), Cultural care diversity and universality: A theory of nursing (pp. 281-304). New York: National League for Nursing.
21. Glaser, B. (1978). Theoretical sensitivity: Advances in methodology of grounded theory. Mill Valley, CA: Sociology Press.
22. Glaser, B. G. (1992). Basics of grounded theory analysis. Mill Valley, CA: Sociology Press.
23. Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. New York: Aldine de Gruyter.
24. Guba, E. G., & Lincoln, Y. S. (1989). Fourth generation evaluation. Newbury Park, CA: Sage.
25. Hadjistavropoulos, T., Taylor, S., Tuokko, H., & Beattie, B. L. (1994). Neuropsychological deficits, caregivers' perception of deficits and caregiver burden. Journal of the American Geriatrics Society, 42, 308-314.
26. Horowitz, A. (1985). Family caregiving to the frail elderly. In M. P. Lawton & G. L. Maddox (Eds.), Annual review of gerontology and geriatrics 5 (pp. 194-246). New York: Springer.
27. Kantrowitz, B., Hager, M., Cowley, G., Beachy, L., Rossi, M., Craffey, B., Annin, P., & Crandall, R. (1992, August 3). Teenagers and AIDS. Newsweek, pp. 45-50.
28. Kuhlman, G. J., Wilson, H. S., Hutchinson, S. A., & Wallhagen, M. (1991). Alzheimer's disease and family caregiving: Critical synthesis of the literature and research agenda. Nursing Research, 40(6), 331-337.
29. McCain, N. L., & Zeller, J. (1994). Research priorities for psychosocial aspects of nursing care in HIV disease. Journal of the Association of Nurses in AIDS Care, 5(2), 21-26.
30. Monette, P. (1988). Borrowed time: An AIDS memoir. New York: Avon.
31. National Cancer Institute, Pediatric Branch. (1991). Conducting an HIV parent support group. Bethesda, MD: National Institutes of Health.
32. National Center for Nursing Research (NCNR). (1990). HIV infection: Prevention and care. (N.I.H. Publication No. 90-2417) Bethesda, MD: U.S. Department of Health and Human Services, U.S. Public Health Service, National Institutes of Health.
33. Nokes, K. M. (1991). Applying the chronic illness trajectory model to HIV/AIDS. Scholarly Inquiry for Nursing Practice, 5(3), 197-204.
34. O'Dowd, M., Biderman, D., & McKegney, F. (1993). Incidence of suicidality in AIDS and HIV+ patients attending a psychiatry outpatient program. Psychosomatics, 34(1), 33-40.
35. O'Hara, M. J. (1995). Care of children with HIV infection. In P. Kelly, S. Holman, R. Rothenberg, & S. P. Holzemer (Eds.), Primary care of women and children with HIV infection (pp. 103-131). Boston: Jones & Bartlett.
36. Peabody, B. (1986). The screaming room. New York: Avon.
37. Powell-Cope, G. M. (1994). Family caregivers of people with AIDS: Negotiating partnerships with professional health care providers. Nursing Research, 43, 324-330.
38. Pratt, C., Wright, S., & Schmall, V (1987). Burden, coping and health status: A comparison of family caregivers to community dwelling and institutionalized Alzheimer's patients. Journal of Gerontological Social Work, 11, 99-112.
39. Rabins, P. V., Fitting, M. D., Eastham, J., & Fetting, J. (1990). The emotional impact of caring for the chronically ill. Psychosomatics, 31, 331-336.
40. Reece, D., Walz, T., & Hageboeck, H. (1983). Intergenerational care providers of noninstitutionalized frail elderly: Characteristics and consequences. Journal of Gerontological Social Work, 5(3), 21-34.
41. Robinson, B. C. (1983). Validation of a caregiver strain index. Journal of Geronto;ogy, 38(3), 344-348.
42. Rodrigues, M. (1988). No patience to go on complaining. In I. Rieder & P. Ruppelt (Eds.), AIDS: The women (pp. 24-30). San Francisco: Cleis Press.
43. Rosenbaum, J. N. (1990). Cultural care, cultural health, and grief phenomena related to older Greek Canadian widows within Leininger's Theory of Cultural Care. Unpublished doctoral dissertation, Wayne State University, Detroit, Michigan.
44. Russell, C. K. (1994). Care recipients' voices: Elders' dependency work. In D. Gaut & A. Boykin (Eds.), Caring as healing: Renewal through hope (pp. 111-132). New York: National League for Nursing.
45. Small, J. (1987). Spiritual emergence and addiction: A transpersonal approach to alcoholism and drug abuse counseling. ReVision, 10(2), 23-36.
46. Smith, M. Y., & Rapkin, B. D. (1996). Social support and barriers to family involvement in caregiving for persons with AIDS: Implications for patient education. Patient Education and Counseling, 27(1), 85-94.
47. Stetz, K. M. (1989). The relationship among background characteristics, purpose in life, and caregiving demands on perceived health of spouse caregivers. Scholarly Inquiry for Nursing Practice, 3(2), 133-153.
48. Stone, R., Cafferata, G. L., & Sangl, J. (1987). Caregivers of the frail elderly: A national profile. The Gerontologist, 27, 616-626.
49. Strauss, A. L., & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.
50. Thorne, S. E. (1993). Negotiating health care: The social context of chronic illness. Newbury Park, CA: Sage.
51. Townsend, A., Noelker, L., Deimling, G. T., & Bass, D. (1989). Longitudinal impact of interhousehold caregiving on adult children's mental health. Psychology and Aging, 4(4), 393-401.
52. Valente, S. M., & Saunders, J. M. (1994). Management of suicidal patients with HIV disease. Journal of the Association of Nursing in AIDS Care, 5(6), 19-29.
53. Weitz, R. (1989). Uncertainty and the lives of persons with AIDS. Journal of Health and Social Behavior, 30, 270-281.
54. World Health Organization (WHO). (1994). Global AIDS statistics. AIDS Care, 6(2), 255-258.
55. Wright, L. M., & Leahey, M. (1994). Nurses and families: A guide to assessment and intervention (2nd ed.). Philadelphia: F. A. Davis.
56. Zarit, S. H., Todd, P. A., & Zarit, J. M. (1986). Subjective burden of husbands and wives as caregivers: A longitudinal study. The Gerontologist, 26(3), 261-266.